Dancing Eye Syndrome Support Trust

Living with it!

Its not there all the time but when its here i just cant do anything but shut up shop (stop doing everything) and go find my bed or somewhere I can rest for a couple of hours.

Since having the head injury its just taken on a mind of its own as to how rapid it gets. I do thank go i do not drive as i really don't know how i'd manage when it comes on.

The worse thing is I cannot work out what is triggering it to happen-does anyone have any ideas? Is it a neurological condition/issue?

I look forward to the support on here..

1 Reply

I don't actually know much about the disease, but Islaroby2 might...?