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Dancing Eye Syndrome Support Trust

Welcome to the community! Please introduce yourself and share your story!

Welcome to the dancing eye syndrome community! This community has been created with the assistance of the Dancing Eye Syndrome Support Trust to provide you with a space to connect with other caregivers and patients.

Please introduce yourself to the group and don't be afraid to share your great advice and support! The communities on HealthUnlocked are open and friendly environments where members can share their stories in confidence. By sharing it you'll be helping many people who are going through the same event as you and you'll also foster a great environment for the community to grow and prosper.

Give it a go and introduce yourself and your story today!


HealthUnlocked Communities Team

1 Reply

Hello Everyone

I am one confused lady. I have had flashing in my left eye for the past 8months along with every now and again what looks like a cobweb all across the left eye. Optician cannot find anything wrong. CTScan is thankfully all clear. I have now been referred to an eye specialist but just been informed that as I have been referred to them as an emergency then it is a minimum of 6months waiting instead of the 12months if not an emergency!. The flashing which I tend to see at night when it is dark can be a straigt bright line or an upside down V and tends to be at the top centre and sometimes to the left of the eye, over the past week I have now started to also see a round white spot in the left corner of my eye. the flashing only last a split second and then repeats more often if I blink my eyes. I also get dry eyes and have a cream to use as and when which helps the eyes to stop feeling gritty but does nothing to stop the flashing in the eye. Quite often I feel as though I have a cold which causes pain in/around my left eye and also down the left side of my nose and pain my my left cheek. This is helped by taking a pain killer tablet. The consultant (from CTScan) and doctor thinks it may be migrain that I am suffering from? and my optician says that it could be vision migrain, she also said that it could possibly be a bad circulation problem?. I just feel so worried as it is ongoing and as my doctor forgot to transfer me to the eye specialist in October this means I now have another five months to wait to see the eye specialist so any advise would be greatly appreciated. I

I was diagnosed three months ago with underactive thyroid and I now take Levothyroxine 50 micro-grams per day. When the trouble with my eye started I was trying different contact varifocals but once this problem occured I now wear glasses only.

Look forward to hopefully hearing from someone soon :-)