i have parkinson's diease wanted to know ... - Cure Parkinson's

Cure Parkinson's

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i have parkinson's diease wanted to know about new meds avalible age 55 some meds not generic im seeing a neurologist on several meds

Armymom32 profile image
17 Replies

looking for web sight where someone understands this illness

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Armymom32 profile image
Armymom32
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17 Replies
Armymom32 profile image
Armymom32

thanks for your help got to go to work now

wifeofparky profile image
wifeofparky

most new drugs are not generic and won't be till their patents expire. Seek out a support group near to you and attend a few meetings. For information go to pdf.org.

Educate yourself to be a better patient and if your neuro is not a Movement Disorder Specialist, ask for referrals.

larry33b profile image
larry33b

I have come to the conclusion that NOBody understands this disease.

shasha profile image
shasha in reply to larry33b

MOST OF ALL ... US !

Hikoi profile image
Hikoi

Wayne by inert are you saying the pill is ineffective? Can you give any reference for this? I'm not quite sure about generics i know there are possible differences but not aware they are quite as you describe.

WayneP profile image
WayneP in reply to Hikoi

This is a copy from a post I wrote.

I deleted my post due to old info and a very bad experience. FDA does NOW require that generics meet same standards as brands. That was not always the case in the history of generics I can very much attest. Almost died from bad generic meds in 1999. They did not work but the real ones did!!! Laws are changed now as I researched per your post. Thank you for enlightening ME making me relook into this area I was not comfortable with. I never take generics but will now after this.

Hikoi profile image
Hikoi in reply to WayneP

Thanks Wayne. Isnt the interne amazing!

WayneP profile image
WayneP in reply to Hikoi

Very much so and I am glad to hear I was wrong.

aboutmydisease profile image
aboutmydisease

This is not my understanding, which is that generics must contain the same proportion of molecules of active ingredient as the original brand. (The situation is more complex in the case of 'generic' versions of biological drugs, so-called biosimilars). Can I ask Wayne, what is the source of the information you have given for the effectiveness values? If original brands where 99.8% effective than generics with only 60% effectiveness would never be prescribed, despite the lower purchase price.

WayneP profile image
WayneP in reply to aboutmydisease

I deleted my post due to old info and a very bad experience. FDA does NOW require that generics meet same standards as brands. That was not always the case in the history of generics I can very much attest. Almost died from bad generic meds in 1999. They did not work but the real ones did!!! Laws are changed now as I researched per your post. Thank you for enlightening ME making me relook into this area I was not comfortable with. I never take generics but will now after this.

driller profile image
driller

Try Parkinson's movement.com, I find alot of good info their.

Regards;

ERIC

honeycombe3 profile image
honeycombe3

Larry & Sharon,

Quite right so..........let's keep trying to use this site to help us understand a little more from each other!!! GOOD LUCK

Angela

grammieof3 profile image
grammieof3

My requip xl now comes in generic big help on pocketbook can't tell any difference.

Hikoi profile image
Hikoi

Armymom

I use this to learn about meds

parkinsons.org.uk/Docs/B013...

shetawk profile image
shetawk

Fillers and coatings can be different. I had substitute for my regular amantadine (pink. uncoated tablet). Substitutes were two different coated tabs. One was red and the other yellow. One of the substitutes gave me hallucinations of beautiful patterns of fabric in bright colors that revolved and changed shape. They also made me feel spacey so I stopped. But what a show! , My daughter told me I "tripped".

Dennis profile image
Dennis

One of the substitutes gave me hallucinations of beautiful patterns of fabric in bright colors that revolved and changed shape.

I experience this as well and now the hallucinations are of animals, etc... ~~Dennis

Hikoi profile image
Hikoi

Amantadine is known to cause hallucinations in some people and usually the dose is lowered until your new furry friends go away. I have known people to get quite attached to their animal visitors and miss them when they go!