Could I have comments on the attached lin... - Cure Parkinson's
Could I have comments on the attached link - its an American approach to exercise (Boxing training vs Parkinsons) its moving bigtime + /fun
fantastic,
Need to get the gloves back on, I boxed when in the RAF and the trainning is hard , still try to skip , however i am more time on my ass than on my feet.
Great video though, do we have any thing like this in the UK
Al
I think its amazing and everyone looks like they are thoroughly enjoying themselves. As far as I know there is nothing like this in the Channel Islands or the UK. Everyone seems to cater for the able bodied. I would like to see us do more exciting things like this!
In my humble opinion i think you see the following with boxing and many of the other exercise topics.:
1. PD kicks your arse and reconditions you both physically and mentally over a period of time. It is typical for the there be a 1-3year period of non-diagnosis from the time you are first experiencing debilitating symptoms. During this time the Dr's have no clue what to do but the do tell you to stop exercising (at least mine did). Net result is reconditioning (particularly cardiovascular fitness).
2. As you mentioned on one of my posts it is hard to work out if it is meds or the disease sometimes. Lets face it l-dopa isn't a nice med and can make you feel totally crap.
3. No one is getting younger. PD makes you feel old to begin with. I am 36 but look like I am at least 45-50 and feel like I am 60.
Conclusion: exercise works because of -
a) it offsets the reconditioning you experience as a result of the disease process and the various directions of Dr leading up to their final diagnosis of PD i.e. don't exercise
b) Strenuous exercise gets the blood moving and means you aren't feeling the negative side of the meds.
c) Age reconditions us too, but with PD at a faster rate
I think you need to do what makes you feel good. It may feel good whilst doing exercise but you will hit the wall afterwards and it will take a long time to recover. My US Dr's try to emphasize balance. Balancing physical activity with not over doing it. Anyway just some simple thoughts from a simply Aussie living in the US.
Thank you, I agree its tough to get the mix right = doing what you want to do, what makes you feel good and how you feel after. I for one find it hard not to over do it as I find it hard to judge.
Why do you say PD makes you feel old to begin with. Your comment I am 36 but look like I am at least 45-50 and feel like I am 60 makes me feel sad. Do you think the condition has aged you physically? I really, really try and put a good front on. Inside I am very, very scared about what the future will bring. I am also determined no matter how many low blips I have that I will not let this condition get the better of me and take over.
Beat that PD if you are listening (smiles).
Totally agree with you I also struggling with judging when enough is enough. I typically realize I have donel too much when it is too late to do anything about it. I keep positive in fact more positive Than I really feel sometimes so that my family doesn't become negative. I wish I could say that PD hasn't aged me but it has both physically and mentally. I don't necessarily see that as a bad thing. My disease gives me a different/unique perspective on life. A perspective I don't think I would have had the chance to develop had I not gotten sick - I have become greartful for it. There are other things the disease has given me that I am great full for eg I am closer to my mum&dad, closer to wife and kids. The disease isn't all bad ;-^
My computer doesn't let me run videos (like me sloooooooo). I agree with Aussie. I hav a closer relationship with my kids. They have needed me and I'm still able to support them in small ways. My mom is 91 and Iives far away. It's getting harder to travel but knock wood I still can visit her. I only hate it when I'm jealous of people older than me (71) who skip about and get up to give me a seat 
I work out at Rock Steady Boxing, a non-contact boxing program for PWP's. rocksteadyboxing.org We each do what we capable of each day. I am a great believer in going as hard as you can. The key to me is "Recover at least as hard as you train".
Hi Beang thanks for posting. Has anyone that does the program had deep brain stimulation? Does it affect or enhance what they can do at a session. I think its fantastic as it seems to work on every muscle of the body. Whats your favourite part of the program? I have Skype if you want to chat?
