As a person with Parkinson’s, my body does not regulate heat well.
Today is the last gasp of hot temperatures.
It is going up to 99 again, but tomorrow it starts to drastically drop.
This morning I did what some of my Parkinson’s buddies suggests. When it comes to exercise, push yourself, do a little more than you think you can do.
I walked for almost a mile. Before i just walked barely ½ mile.
I want the strength in my legs back!!
And my arms.
You see, exercise is the one thing that will keep Parkinson symptoms in check.
I believe doing anything, like some of you suggest, like puttering around the house, puttering in the garden, walking in the countryside, is all wonderful.
I tend to get dizzy when I exert myself too much. So I stop, stand up straight, take a deep breath and steady myself. Tucking in the tailbone and counting my steps each time I put my heel on the ground, helps a lot too…..
Thanks to everyone for your wonderful support. Without you I could not do this.
You inspire me.
Lovingly, Eva Gabrielle
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12stargate
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To get your legs back do squats. We do squats more than any other exercise at Crossfit. I do ass to the floor squats every day a least 25 or as many as 50. I also do them with 125 pounds on my shoulders but no more than 25 a day. They are hard to do at first but good form is a must. Start slow and work your way up, My wife now does 25 a day but must hold on to some thing. Do this at first to you get the hang of it. The most i have squat is 335 pounds.
I keep learning from each person here. Today I have picked up on your comment about the body not regulating heat well. We just had an endocrinology appt to get results from quite an extensive number of blood tests. Being new to this ...3 months in...we had not been told of the many effects this condition has on a person. I read daily and try to take it all in and then gradually reveal to my husband as time goes on. I know ..I am being protective of him, whether that is good or not so good.
Anyway, being that the neurologist said on first visit at end of May that my husband had nothing bad and that it was manageable, we were encouraged! We started quite gradually on regular C/L ( not timed release form) giving it the 3 month trial period to see what happened. It's been the worst 3 months of both of our lives. I have pressed forward to understand all that this condition encompasses, and to maybe rule out other things on my own. ( He wrote in his report to our referring doctor that it could be Parkinsons, could be Parkinsonism, and could be Parkinson Plus. Oh, brother. On follow up visit 2 weeks later, he said yes, Parkinson's.)
Through this site, I have learned about the visual disturbances, which my husband seems to have, most definitely the anxiety, the extreme, extreme fatigue, heat intolerance, and stiffness, to name just a few. The bloodwork from endo showed mostly normal ranges. Dr. spoke about symptoms of low testostetone ( fatigue, reduced muscle and bone mass, loss of libido) , but the result shows in range; therefore he is hesitant to treat. Thyroid was most surprising at normal ranges also. This time TSH 3.17. I was so sure that would be the cause of his heat intolerance.
My husband is a positive, upbeat person, always seeing humor in things and trying to make jokes. Currently, he is a mess and it all began when he got to second C/L dose. In 2 to 2 1/2 months time, he is forgetful, at times disoriented, frustrated, slow to find words, slow in speaking, emotional, withdrawn, and so unhappy. I find the cognitive decline hard to believe in such a short period. MRI and EEG are normal. We are gradually getting off the C/L and are currently down to 1/2 tablet (25/100) a day. He is working with an exercise physiologist 2 times a week, doing small routine at gym 1-2 times per week, and getting into walking more often again. He was a distance runner for many years and thrived on it.
I am so worried and concerned. I see all the suggestions for natural supplements and that is the route we prefer. Thanks to all of you who post those.. I refer to them often...as yet have not known just what to get and how to start. Have not approached neuro about it, either.
Time to get yard work done before the heat sets in. Hope husband is feeling up to helping.
Any comments are most welcomed. You all are very appreciated! Its just so much to decipher.
Your reply is very good. It would be helpful if you could tell your husbands age. The things you mention "he is forgetful, at times disoriented, frustrated, slow to find words, slow in speaking, emotional, withdrawn, and so unhappy." do not sound like Parkinson's (PD for short) They sound like dementia or side effects from C/L I would with the help of his Dr. remove him from the C/L it will not set him back but will eliminate it as the problem. Pd does not act that fast. In fact i would do it whether the Dr. wants to are not.
I am 62 10 years with PD and it has slowed me down a little.
As for as the exercise unless he as something wrong that would stop him he should be exercising every day. being a long distance runner shows he has the discipline to do it. For me Crossfit saved my life. It is a group exercise that can and is adjusted for all in the class it is for anyone of any age or ability .
I just said that not to alarm you just to start looking at something else. It sounds most likely to be the meds. What other symptoms does he have. please reply i am just trying to help.
Sorry i just read your first post. I think the meds are causing. in your first post you said that a lower dose he was better. Please his Doctor and try another med C/L appears not to be for him. Not every one can take it.
I too have problems regulating my body temp. I've complained about that to my doctor for years. He said maybe I need estrogen (at 68?). I haven't taken him up on it, I already take so many pills and each one has it's own side effects. I too am going to be pleased to see cooler weather roll in. Today is suppose to be in the low 80's here in Arkansas..definitely a day for some outside time, especially in the morning while it is in the 70's. In fact I think it's time for me to get going.
King David, the world's 1st person with Parkinson's disease, also had trouble with temperature regulation. Some of us think that the Parkinson's was the underlying medical problem.
Listen to the story: King David was now very old and no matter how many blankets covered him, he could not keep warm. So his advisers told him, 'let us find a young virgin to wait on you and look after you, my Lord. She will lie in your arms and keep you warm.' So they searched throughout the land of Israel for beautiful girl. They found Abishag... and brought her to the King. The king was very beautiful and she looked at King and took care of him. But the king had no sexual relations with her.... 1st Kings chapter 1
I gave a recent talk about other evidence that King David had Parkinson's. See the video of the presentation dl.dropboxusercontent.com/u...
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Sinemet? Too much or not enough?
I hope this can assist 
I have Parkinson’s and my mother also had it?? 
Bucket List -- Does This Count?
