New to this. CIDP

Just been diagnosed with CIDP. Anyone out there have it?

[ldwilliams]

yes i have it

there is a good facebook group - facebook.com/groups/7274004...

there site -

gaincharity.org.uk/

they have a lot of info in both and a lot of patients willing to offer their experiences etc

[1inamillion]

I’ve just been diagnosed with MADSAM neuropathy which is very similar and also very rare. I’ve just started my first course of IVIg treatments this past week.