What was your biggest reservation abou... - HealthUnlocked Blog
HealthUnlocked Blog
What was your biggest reservation about joining HealthUnlocked? (If you feel comfortable, please explain your answer in the replies below!
We want to help people improve their health outcomes. To do this, we need to know what is stopping people from joining the platform. Thank you for your time :)
I only joined because I thought I had to I order to join the guys nutrition group
is there an app to access it easier? I just go to my emails and access it that way so an app would be much easier?
Yes there is an app.
Thank you! I have looked in my App Store on my iPhone but couldn’t see it, il look again lol
Hello Dragonfly766,
Thank you for your reply. Based on extensive user research and feedback we decided to focus solely on an enhanced mobile web experience. By doing this, we have been able to deliver improvements to the site more rapidly. If you are wanting a shortcut, we recommend adding HealthUnlocked to your iPhone homescreen. Here is a step-by-step guide on how to do this: support.healthunlocked.com/...
I hope this helps 😀 Please do let me know if you run into any issues.
All the best,
SaskiaHU
Thank you!!
Your right, it’s not there anymore, I think, Hu, isn’t supporting iOS any more, honeybug . Can you enlighten us, I forgot what you said about iOS.
Dragonfly766 . I have tagged a friend on here, she knows more about it.
Thank you!!
Hi Dragonfly766😊
Before the pandemic I received notification that HU wasn’t supporting. iOS anymore. They instructed me to contact administraton for further instructions.
Apologies…suffering severe brain fog atm and don’t remember specifics.
Best wishes for success
Love and prayers.
EJ 😊🤗♥️🥰🙏🕊🌿🌸🦋
Hi T♥️
Before the pandemic I got notice that HU was not supporting iOS anymore.
They instructed me to contact the administration for instructions which I failed at doing.
I’m struggling badly with severe brain fog atm and tell you the specifics, apologies.
Sending you my love and prayers.
😊🤗♥️🥰🙏🕊🌿🌸🦋🥢🥢🥢
I agree,an app would be better,doctor or nurse could recommend it
I was concerned that I would receive a lot of spam asking me to complete marketing surveys like this one.
I was in denial about having PD
Great platform to find links to medical information. Also good to know you are not alone, hear from others how to tackle your issues.
I joined it as soon as I heard about it on the Pernicious Anaemia website. I had no misgivings.
I had no reason
I just came across your website by accident after being diagnosed with Severe copd. I had no reservations about joining. Brian
No reservations - a great help to me and I hope I have helped others
it’s always good to know others in the same position as ourselves and share our knowledge and concerns.
It's is an amazingly helpful platform for people with all MPN's
I did not know Healthunlocked was international. Even based in UK?
The Atrial Fibrillation forum was recommend to me by a friend many years ago. As I was quite computer literate it was easy for me to join. As far as I can remember I had no qualms whatsoever re joining. I've learnt so much from other members there.
Hi Saskia, I didn't have any reservations really other than getting bombarded with emails which hasn't happened.
Best wishes
it was such a lonely feeling walking round the house most of the time ,I had never heard of anyone having restless legs at the time ,was just about ready for self harm , then looking online came across a group called Health Unlocked so had a look and decided to join and spent many hours reading about people with the same problems and I think that’s what got me through,with the medication I’m on have been settled for the last few years ( touch wood )
I found its been very helpful and knowledgable things i didnt know about with my Hashimoto's and PA i do tend to not let it sink in and i end up asking again so Sorry
Never considered any problems other than May be encountering trolls. Find the facility great for advice from others with similar problems and articles and advice.
I had been diagnosed with an autoimmune disease (GCA) which was something I had not heard of before. I found the site while researching the disease and it has been very helpful.
I had no reservations, as I was already active on Aspergillosis groups as well. One of the Aspergillosis groups also hosts bi weekly group video conference calls, which is great way to learn about aspergillosis and speak to people who are having the same issues, and get ideas on managing the life changes due to the disease
I needed to lose weight before I could have my knee op. It was lockdown so slimming club were closed and then I found this. Now had both knees done.
I had no problem joining,and it’s been extremely helpful to me.sometimes people in the same position as myself have given me different ways of dealing with a health problem.
I’ve also made some friends from it.
Previous forums i've joined had so much negativity and extremly draining so was wary initially, find this one very friendly and informative.
I had no reservations about joining but I’m selective in my responses as I don’t want to repeat what others have said or in the case of tinnitus issues I don’t wish to be reminded of my noises that never end or ever will.
Am already joined into the folks that post on here. People are really helpful and the admin team will point to the right place within HU if a question needs answering.
no reservations about joining . Had never heard of bronchiectasis until diagnosed with a CT scan .
No reservations at all. Reading of the experience of others is very useful and brings a sense of perspective.
I had no reservations.
I came upon it by accident. So happy I did because I find it very helpful to know people feel the same as you and are on the same treatment. You know you are not alone on this journey💕
I was uncertain how useful the information posted would be. Normally, I only rely on vetted scientific information. However, I’ve found many of the personal experiences helpful.
I had never heard about it until I found it on line.
I hadn't heard about it, I don't know if it's more popular in the US but it certainly isn't where I live.
No reservations.
not being sure if information would be confusing or contradictory.
My anonymity
I was having a real bad time with pain I needed to talk to someone other than family I'm ever so glad I did the people on here are so nice and most importantly we can all relate to each other whatever your medical condition may be. I even told my Painmanagement consultant about this site he seemed interested
i felt it would be good for my mental health.
I was a little disappointed in the low volume of adult hydrocephalus queries/ articles
I was nervous about how easy it would be to use, as I am not very Tech savvy. I had come across it by accident but the Thyroid UK site was a life saver for me. Once I had learned from other users and understood my condition I was able to understand how to improve my health. I have also been able to write about my experiences and hopefully help others with thyroid issues.
I'm not in the UK, I'm Canadian
I don’t read or participate much. I thought I would, and I do, find it depressing to hear of others struggles.
o reservations after browsing content.
No reservations after browsing content
It's hard to remain positive when you read about disaster stories ( mostly in the US) and hear from people that should be available to cutting edge medicine but do not have the resources to go to countries that have a lot more to offer.
I didn't feel uncomfortable about joining up at all. I only felt positive that it might help me, which it has. I was grateful that there was such a forum.
I found lots of information via Roy Castle when I was diagnosed in 2018 and do read posts and at times respond if I can usefully give information
no reservations! The most helpful site I ever found. Was thrilled with the info my drs never gave me. Never any doubts. The best!
I had zero reservations. I needed a place full of people experiencing things I am. I am so happy I did join.
I wish there was a "follow" button so I could see replies to content I wish to follow. I did try the "save" button on posts but that doesn't seem to alert to new replies to a post.
NO RESERVATIONS!
The Macmillan nurse at my hospital recommended the site; that's how I joined, about four years ago, and I have been enjoying the links I have with some of the other members. I have been finding it takes up a lot of my time, so I am not engaging as much as I used to. If there's someone I can help, I do that, and there are one or two who can help me, and one or two who are just friends.
I would say all in all, it's invaluable, especially when my GP tried to diagnose me with an underactive thyroid; the help I got from the thyroid members was second to none.
No qualms just thought a positive thing to do
I have never joined a support group in all the years that I have had MS and was very grateful to find this group and it came at the right place at the right time!
I feel you need a category for those who had no reservation. I hadn't heard of health unlocked. Perhaps you need to advertise soemwhere to make your presence known.
Hi Saskia - I wondered exactly how it would work as I thought that covering so many conditions might make navigating confusing. But I love it now! I just get the Glaucoma UK questions/replies in my inbox and haven't really looked round elsewhere on the site. The Glaucoma info is super helpful.
Thanks! Helen
I wasn't sure that it wouldn't be a duplication of a different site that I go to for information.
No reservations
Had none.
I was hesitant joining HU because of all the negative information regarding any type of social platform and the danger of becoming addicted to the site to such an extent that real life becomes a second priority. Also, two psychiatrists advised me that joining could make me sicker. I joined to get the feel of the site first before I made a decision to stay. There have been times, though, when I question my decision.
I joined, because I wanted information. I didn't find it unusually difficult or different.
I was invited by a fellow patient for lack of local support. I was not given to chasing tech or social platforms yet here I am and even now in the language I use “platforms” I am learning when I thought I wouldn’t nor couldn’t. It was a initial slow starter for me but so many have amassed so much helpful information that is not even gained with my medical team. The kid gloves are off when truth is needed and that has always been best to my thinking and processing. There are times when pictures would be helpful but I understand the need to avoid salacious activity but to me it is much like throwing the baby out with the bath water. Why can’t the private chat room be used between those with common issues for clarity between one another. When photographs were allowed I discovered something about myself that I hadn’t realized was symptomatic to a potential problem so I had it looked at and now it’s being monitored for any problematic changes. Perhaps growth and change will come without the expense of others in need. Still, for now Healthunlocked gets my vote of approval.
Did not have one, I have ADHD so have no issue with over sharing lol
I joined immediately I heard about it because I was looking for support group. I'm glad I took the decision.
Great platform to find links to medical information. Also good to know you are not alone, hear from others how to tackle your issues! Thanks for all!
Best forum. I’ve recommended it to lots of people. I suppose it took a while to find, but I’m not one for lots of social media. I’m sure I was using google, found Thyroid Uk and it went on from there
I thought it would be a chance to market alot of marketing to me for stuff I would never buy.
I never heard of Health Unlocked until a kind neighbour told me about it. I joined and have been helped so much as someone recently diagnosed with underactive thyroid.
I used to use this quite regularly and I had no reservations about joining. I had signed up to the step programme and health unlocked was somehow attached. Then I tried to join Glaucoma UK and somehow health unlocked was there again. HOWEVER I can no longer use it because it has been so overdeveloped that it is not compatible with my phone any more. It's a pity because I had found the glaucoma support group very supportive and helpful.
I was looking for info on MS when I found this site. It has been a God sent experience finding this site. I love it
I had no reservations. I've been on it for years and was an ambassador or admin on it. I don't come on much now as I use other sites.
My only concern was how to navigate the site. I don't use social media. Still finding my way around, but so pleased I did. This forum is invaluable for support and information.
I have advanced prostate cancer and although I haven't posted so far I find this group an excellent source of information.
google says its not secure.
i really like it for we all have MS and it is great to hear how people have different ways of coping with different things ...i enjoy all of the people and all of the fun pictures and photos....love and happiness...
I was already a member of the Fibromyalgia group, and they decided their way was with HU.
Cheers, Midori
Your group saved my life. My husband John has since passed (2020), but you were absolutely a lifeline for me. I believe I found you by accident, but since then, I have spread your name and website far and wide. I do check in from time to time. Thank you for being there for me. Hugs to you all, Alice Brecheisen, Milwaukee, WI, USA
I'd never heard of it before, but have learned a lot from others.
Just reluctant to accept a label, to be put in a category.
Thought it might be UK only. (I'm in the US).
Sometimes the platform feels too open. People looking for a diagnosis, aligning their symptoms with members.
I didn’t have any reservations when I joined 6 years ago. I needed help and luckily it was here!
I guess it was imposter syndrome I didn’t know of my experiences were relevant and interesting to others so before even wondering if I could relate to people I was a bit scared of not being the right person to answer questions and participate.
Health Unlocked is a site in the U.K. Since I am not British, I felt like I might not be welcome.