This question is about different cultu... - HealthUnlocked Blog
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This question is about different cultural attitudes to healthcare. Do your family & friends agree with medical advice your doctor gives you?
SaskiaHUHealthUnlocked246 VotersPlease select one:
never tell family about my health conditions
I make my own choices with my doctor. My family and friends do not interfere.
please do take care in the way that the results from this survey are interpreted. the question is a bit vague and answers might hide a lot. for example i don't always talk to people about what Dr has said. and if I do then whether people agree or not is irrelevant and not discussed. nobody in my circle has appropriate medical qualification to say whether or not a treatment is correct.
Well said!
years ago in took my baby to the doctor as I FELT something was wrong. There was nothing that could be identified and I felt a fool taking him. Doctor said it was a 'virus'. Two days later he was dead.
several years after that I went to GP who diagnosed me with trigeminal neuralgia. Read up about it and thought no I've not got that. Started relaxing my face particularly lower jaw. All pain went away and has never come back.
so no I don't trust what doctors tell me. I check it out.
There are no words, I’m sorry for your loss 😢
Don't feel sorry that wasn't the point of the disclosure. It was over 20 years ago. I have grieved and it also put me in a better place to help people.
I just always check out what I am told by doctors. Like all professions you get good and bad.
Soundslike Maisethedog has a father/doctor that I would class as one of the good ones.
i never, ever trust a doctor or a chemist, picked up my medication from the chemist, I always read the paperwork inside the box 📦. It was antibiotics for bad legs, the paper said dont take statin while on these antibiotics, went back into chemist, she said oh yeah, I forgot.
Life is shitty sometimes, I am very sorry to hear this happened to you x
I have had Park inson's disease since 1992. My doctor put me onto some PD medication that does nothing to slow down or reverse PD symptoms. I has been persuaded to join an organization called, 'RUN/WALK for LIFE. Within six months I had started to get better. After two years of walking for one hour every second day, my PD symptoms had all but disappeared. My Neurologist took no notice of this improvement and insisted that I continue taking the medication, even though I no ger needed it. He was not interested with the fact that my symptoms were much better. He had been trained to believe that there is no cure for PD, therefore I must continue to take the useless medication. I have not been back to a neurologist ever since!
Doctors are not interested in patients getting better! It is bad for business!
Really glad you feel so much better 😊
my cardiologist is named John pepper, tho he is a professor now.sorry,couldn't believe it, had to say something, haha. You keep well.
The older I get the less faith I have in the medical services (across the board) and their advice.They are trained in the medical and mechanical aspects of the body, we are the people who know our own individual bodies. I give three personal examples of the wrong advice but there are certainly more.
Approximately 30 years ago I was diagnosed with trigeminal neuralgia which I believe can stay with you for life. Excruciating pain on one side of the face. I went home, read up about it and knew they were wrong. I was in a bad relationship and has been unconsciously clenching my teeth. I started to relax my facial muscles and have never experienced it again to this day.
I was advised by a physiotherapist to use a walking stick due to arthritis in the feet and slight curvature of the spine. Body bent slightly to the left but it was/is hard to notice. After a year of using the walking stick my body was bending forward and was very noticeable. Walking became very painful and slow. About 4 weeks ago I stopped using the walking stick. I am now walking upright most of the time there has been a significant reduction in pain, sometimes none at all and I walk at a far quicker pace.
An IBS diagnosis led me to this site. I never believed in the diagnosis although the symptoms I experienced kept me under house arrest almost on a daily basis! I was later diagnosed with h pylori. I started to drink kifir daily which got my bowel working normally. I've started to do yoga most days as I'm not afraid of having an embarrassing accident. This is having a positive impact on my psychological and physiological wellbeing. It's going some way to correct my posture.
I guess what I'm saying is that the medical profession are not always right. They are reactive as opposed to proactive almost as if they jump to the first diagnosis that seems to fit, with very little exploration of other underlying causes.
There is almost certainly the financial benefits of sticking with the medical model even if it is unethical.
Do not take everything you are told at face value, do your own research. Listen to and know your own body. Don't be afraid of trying something that might work for you, but of course this needs to be discussed with your doctor. You've got nothing to loose.
Doctors are trained to examine patients and prescribe medication. They are not trained to overcome all of our health problems. Fast walking works for PD and I have been doing it since 1994 and have not needed to consult a doctor on my movement problems ever since.
I agree. I guess in essence that was what I was saying.
I had chest pains for about 12 months, with days when they were severe, so off to the GPs I went.All that happened was a chat, no examination, no medication,just a reply that it was 'probably Arthritis'. Months went by, the pain still there, so I went back to see him. I asked for an MRI scan, definately not was his responce.I then asked for an X-ray, reluctantly he agreed. When the results came back I was sent for, he told me that there had been a SIGNIFICANT WORSENNING OF THE VETEBRA IN MY NECK. I have osteo arthritis and spondulosis,my spine is shrinking. When I left school I was 5' 9", I am now 5'6". I then asked if there was anything he could reccomend as treatment. He just looked at me and said " WHAT DO YOU EXPECT, YOUR 80 YEARS OLD". Later that year while on a cruise, the chest pain came back with a vengence. After 3 hours in the Medical Centre I was diagnosed as having ANGINA. I am now being looked after fantastically at our NEW GPs, we left the one that appeared not to treat anyone 80 and over.Therefor would you all please ask, and persevere to try and get the treatment that should be available to us, and if you have to get a second opinion please do, even if it means moving to a new GP practice like we did.
bludnut
not always!
Hi SaskiaHU
My friends and family see how i suffer because of incompetence of few Dr but not all.
what advice, about what? Question is far too general.
Just a thought. Perhaps the questions are general on purpose to generate more of an indepth discussion!
Possibly, but would have thought that would have resulted in the opposite. I could tick 'maybe' - and get nowhere.
True.
I have put maybe. My dad is a retired doctor, so I rely on him a lot for advice and to weigh up advice. Unlike many doctors, he is not arrogant, always willing to admit when he doesn't know and keen to learn. My husband has gradually learnt through experience (especially with our daughter) that doctors can't always be trusted. He will tend to trust my opinion on advice given.
The question is far too generalised. The answer from me is "it depends",. Doctors failed to identify my thyroid eye disease, but it is a rare condition which requires expert diagnosis at an eye hospital. Mostly I get good advice from my GP practice, but it is harder to get a face to face appointment these days. Agreed with the comment about family and friends - they are not qualified to agree or disagree!!! They have not done a medical training!
regards
Jude
I agree with you. I chose the 'maybe' option as there was nothing else that would answer the question. I have had good and bad experiences with doctors. I went undiagnosed with Crohn's disease for many years. It is difficult to diagnose, but I needed emergency surgery to get a diagnosis, and lost three feet of my small intestine. My other illnesses haven't been much better in that regard. Restless Leg Syndrome isn't on the curriculum of the undergraduate training at medical school. As far as family are concerned, there is my daughter and myself. We discuss whatever the doctors say, and then evaluate it. You cannot rely totally on their advice. They are only human, and I think we know our bodies better than they do. I find it better to have honest discussions with doctors and try to come to a resolution or decision together. On the whole I find them helpful, with one or two 'horrors '. But I agree, a rather ambiguous question
mostly leave it to me to sort. It’s my body, I’m the one who goes through all the aggro. Some of them don’t understand all of what I explain to them anyway. They just know I will do my utmost to feel better.
Very poorly phrased question. Far too vague.
There appears as expected to be a mixed response to this question. Like everything else I think it depends on your doctor(s) and where you live. I tell my closest friends about my medical conditions because they are my friends but also in case something happens. In relation to accepting advice from my doctor I would have to respond by saying in my experience I get very little advice from the doctor. I am told I have a condition(s) and am left in limbo about what to do. This results in joining these sort of forums or unfortunately searching Google for the advice/ answers. Patients are now statistics and probably due to staff shortages and many doctors now working part time the personal touch has disappeared.
i don't put Dr on pedestals they to can make mistakes and it's happened to me when was young.
I now research everything and I'm lucky my GP is extremely good and doesn't mind looking at new research when I being it.
Just yesterday with new rhumitologist we have strong disagreementson longevity of pmr and bone density drugs but I believe he's willing to listen.
Like this rhumitologist he is adamant that Pmr is 2yrs max and it doesn't affect hands. So behind his research and listen to patients.
I only have a husband and he has a hospital phobia so I went on my own and all decisions were mine. My children were too young.
my family always ask do I agree with the doctors as I’ve has so many miss diagnosis. I tend to do my own research before or after an appointment.
In order to determine cultural differences, you would need to also know country, race, gender, rural vs suburban.
There are some doctors who don't seem to listen to their patients. I have had different diagnosis from different doctors for the same visits.
This is how I operate. If I have a medical concern I will start with the NHS because they have incredible diagnostic tools. The NHS is great at keeping people alive. Once I have the NHS diagnosis then I will start contacting alternative therapists or considering alternative approaches. Often the NHS are poor at dealing with issues like asthma. But for all the time and money I have spent with alternative practitioners and healers and the like my asthma, eczema and hay fever etc remain.
I don't see it as agreeing with the doctor. I see it as getting the best out of the NHS, but not stopping there.
I make my mind up for myself.
some times when it is thought out but not blindly ….. like taking a drugs because it is prescribed
I always check my test results on line nowadays because in the past my doctors have been completely wrong and have made things worse. Recently - if I can get to see a doctor - they have been OK.
my family and friends do not have enough medical knowledge to give an opinion about treatment or doctor's advice
What goes between me and my dr is private. Nothing to do with my family or friends unless I ask them for an opinion.
This question is far too vague, and what has cultural attitude got to do with such a simple question. Doctors afterall should be trained to be aware of cultural differences required when treating a patient, just the same as they should be disability aware. We live in a multicultural society . Of course when we speak of a NHS system it has to work mainly on an equality basis in order to prevent discrimination for any reason. So your questions should not really have a cultural implication .I and my family expect to get the treatment based on correct diagnosis that is available to me via NHS, and I expect the GP to offer the best that is Available on the NHS and inform me if there is another option if not available. The constitution states all treatment has to be in the patients best interest irrespective of status ect. So the GP is supposed to know whats best for their patient which is an almost impossible task in the current NHS dillema. All patients have a right to refuse any treatment, and doctors should not have to give a set treatment if its bad for a patient. As in transfusions not being given on religious grounds.
Only one friend has the right to know and she is my Power of Attorney, another is ex NHS so I talk things over with her sometimes, but make my own decisions and would never take advice from a friend unless I agreed with ti.
My health condition has no tests nor treatments. My regular doctors never learned it in school (it may be taught in a few now) and the specialists have very few recoveries among their patients. It's deadly for me to be put into a hospital or try the meds they give there, from antibiotics to allergy meds, and pain meds. They only know medications. They will be getting a crash course in post viral illnesses, now. I hope they can learn new things. They have no spare time.
I don’t take everything a doctor says as gospel. They should be able to explain and respond to my challenge.
Input from others is not asked.
I never discuss my doctor’s appointments with family or friends. I think of it rather like confession, although my doctor a while back discussed my appointment with my brother. I was furious.
On the whole, I tend to believe advice and find out more. But that leads me to issues sometimes where further exploration - from NICE Guidelines and other recognised sources - give me cause for concern.
For example, I've now got access to all my NHS consultation records and test results available on the app. I've been repeatedly told things like "but your ESR is always high", "it's well known that patients from afro Caribbean descent always have lower neutrophils" or "some people just always show blood in their urine. It's very common and there's no need for further investigation". I can now see that my ESR and neutropenia only occur when I'm unwell with a mystery illness 'that will pass'. And now, I'm moving through the stages of chronic kidney disease at a swift pace...but that's good because they can consider doing a biopsy on the kidney to find out what the cause is once it reaches stage 3??
It would be great if more resources were made available to our health service so that known obstacles we're aware of can be tackled. Obstacles like greater inclusion for medical research, improve medical equity, encourage diversity in patient forums etc.
Jo
may I ask how you managed to access your health records on the app. My go practice told me it was not yet possible. Many thanks
Hi Callista
I think it's been a slowly developing service. But since the necessity, brought on with NHS Covid vaccination histories etc, more of a centralised approach has taken place.
In the link below, it describes writing to your GP practice requesting access to more detailed information than the basics. I did this back in May 2020 and was able to read a brief summary from each appointment/ hen interaction with the practice. The link also explains that all NHS App users will have access to more from November 2022:
nhs.uk/nhs-app/nhs-app-help...
Hope this information is useful!
Jo xxx
Thankyou so much for taking the trouble to reply. I suspect my GP practice is not keen on the idea. I did write to request online access but they maintain that no one can access their records online yet. I have little faith in the NHS so was not overly surprised at this claim.
I will try again in November but am not optimistic…
I answered other, because my family and friends don't belong from the same culture. They are divided and varied. And although 80% of those whom I presently am in touch with agree, 5 years ago around 30% of them agreed only. I've come up from 30% partly because the mindset of some of them changed and partly because I spend more time with new friends and hardly talk to my family. So you could say the size of my family and friends circle has become smaller, which is why the percentage is higher
don't talk to them about it.
This is a strange question. Why would you involve others in your health care, unless of course you were vulnerable?
I voted other as sometimes I agree and sometimes not.
When I received a letter from the practice to say that my T3 Tablets would be double the dose and in capsule form, to be taken on alternative days. It was obvious that I would disagree .
I make my own choices with my doctor but always I tell with my family
I find the question somewhat vague. After all, we know some docs give good advice, and some don't. Generally I avoid discussing what a doc told me, with anyone else cuz I'm not interested in getting into arguments/debates.
Dear SaskiaHU, after 7 months without polls you have seen fit to post 3 in the last fortnight. Dare I ask why? Apart from anything else the polls alone are filling my newsfeed. I have to follow the 3 HU forums ,in order to receive useful updates+ the 2 I admin for, + 1 other because it interests me. All the replies to the polls which to be honest don't interest me just clog up the newsfeed making it difficult to Admin/spot spammers.
Surely 1 poll each month is more than enough. 
Nothing to do with my friends.... My family make their own decisions and I make mine. GPS mine included, can make mistakes, because they don't know you and of lack of time to read your notes! Therefore, I don't always agree with them so if I'm worried, I get a second opinion.
I make my choices with my GP and my family might discuss these with me and have differing opinions but in the end its my decision
Yes, unless I felt very unconvinced by the rationale behind the advice
We often discuss it and make decisions based on what the doctor says and whether or not we agree.
canno properly assrss over phone
NO I do not always agree with any Doctor, I tend to be educated enough on my own medical needs and if I desire a treatment and my Doctor does not agree with ME, then I find a new Doctor.
My daughter does, my son, sister and friends are not so involved or aware, they express no opinion about whatever they are aware of.
Whilst there are many good Doctors and Nurses, I no longer fully trust the NHS or the medical profession
I always ask GOD to direct me to the right Dr's , and medical professionals, and then I do my research, and ask GOD to guide me to make the right decision(s), including whether to get a a second opinion😇. I do discuss information with specific, trusted loved one's. who may give me their perspective.
Definite maybe. Doc's are so busy these days, that it's pretty darned difficult to be sure you are getting the best, especially when if you see a different Doc, you can get a totally different answer and diagnosis!
Hello Saskia, my name is Larry (USA) and I want to ask a question to any and all people from the UK about their experiences with healthcare in the UK. I have read many posts on this site as well as Quora and the medical groups I had belonged to on Facebook. I've detected some frustration from patients quite a few times about not being able to get the care they think they need or deserve. The way that I've understood it is that everyone is assigned a GP and the GP decides if and when you get to see a specialist. The other frustration I've detected is the waiting time to see a physician (or dentist). I imagine you are aware of the proponents in the US to have socialized medicine. Depending on the type of healthcare you have in the US, you may have to have a referral from the GP in order to see a specialist or you could have the type where you can make an appointment with a specialist on your own. The cost of our healthcare is dependent on the type of insurance you have also. Just curious if there are any thoughts on this especially from anyone who knows something of the differences between the two country's healthcare systems.
The NHS is funded by a tax called National Insurance, which working folk pay from their wage (whether weekly or monthly). If for any reason we are not working we can get a credit for that period. National Insurance also pays toward Unemployment, Sickness and Disablement benefits. Income tax goes towards funding all kinds of things including Government and warfare. There is also a Pension contribution for the elderly and a separate Pension scheme which is partly funded from wages and also there is an Employer's Pension contribution also. The whole idea of the NHS was 'Care from the Cradle to the Grave' with no cost to those on small or non-existent incomes. Worked well until the 1980s. I trained as a nurse in the early 1970's, so I saw what it was, and then , what it has become now.
For many years, since the 1980s, Companies have been nibbling around the edges of the National Health Service. Firstly certain ward services (cleaning, Laundry and catering) were outsourced, which led to chaos and infections, no clean sheets for patients and for those on specialist diets, much chaos. Even Sterile supplies (Operating room instruments) were farmed out for cleaning, resulting in the severe delays of surgery in the Public sector. Hospital Trusts, with many more levels of management were installed in Hospitals, taking more of the hospitals' funding, and away from bedside care. Public Funding Initiatives were brought in to build new hospitals, but they would only be leased to the NHS.
Nurse Training was taken off the wards and into Universities, whilst a whole tier of qualified nurses was abolished. Students were no longer on the wards and hence even longer queues built up for treatment. Those who could afford private healthcare went to private clinics, which is all very well, until there is an emergency, at which point the patient is put in an anbulance and taken to the NHS (No emergency Care in Private hospitals, except the big ones like Barts and Tommy's).
Yes, at the moment there is a lot of dissatisfaction in all aspects of nationalised care, as well as other industries which were nationalised, but were sold off by Government, Buses, Trains, shipping and aircraft as well as our nationalised telephone service. Much of our industry was sold off too, Cars, Steel manufacturing, the Coal mines, etc. Much of the dissatisfaction comes from there not having been put in place any replacement for these sold off industries to ease the plight of those who were previously employed by them and are now unemployed. Even our biggest Pharmaceutical chain was bought out by an American Company, who went on to sell it to Switzerland..
So, as you can see, the NHS is now a shadow of it's former self, being eaten by private costs.
Hope this is some help,
Cheers, Midori
Thanks so much for your reply Midori. I posted my same question and made a statement on Quora and I got some pretty nasty responses from people in the UK telling me that everything is great and that they get the care they need easily and that I have been grossly misinformed. I didn't intend to make anyone angry, I was trying to understand how well it's working there. About 15 years ago, one of our son's played in a soccer (football) league. The coach was from England. When my wife and I asked him and his wife why they came to the US, they said they wanted to get their teeth fixed and it was nearly impossible in England. I imagine you're partly familiar with American politics. The progressive left are the ones pushing for socialism, particularly healthcare with college education right behind it. Democrat senator Bernie Sanders posted a video of a short interview he had with the PM of Norway. He zeroed in on asking her questions about the free healthcare and education. The one question he didn't ask is how it all gets paid for. You mentioned a tax called National Insurance. How much is taken out of people's paychecks for this tax? We have money taken out of our income for social security and Medicare both of which are intended for the elderly such as myself. A lot of companies offer benefits including healthcare which they pay part of then they take money from your paycheck to pay for the rest of it. Maybe you've seen now how our president Joe Biden is wanting to relieve some student debt paid for with federal taxes. It's unfair to the students who have already paid off their loans and unfair to tax payers because the government isn't going to help pay our house mortgages or car loans. It's his way of buying votes in the very near upcoming election.
I'm unsure of the % but 21% is tickling at the back of my mind. NI covers all of our costs, except for dentistry. We used to have NHS Dentistry, but the Government wasn't paying dentists the full cost of NHS treatment, and many dentists started to go towards an Insurance based service, and It got so that less and less NHS patients can now get NHS dentistry. Now it is almost totally private.
Most countries in the EU seem to have a mix of funded and non-funded care, and in the EU countries, you (in theory) can be treated in any one of them.
All got a bit confused when we left the EU.
I think folk got angry as certain politicians want to move away from the NHS to a fully Insurance based system like in the States. It's a very sore point whenever the Conservatives are in power.
Have to be non-specific, I'm afraid as Politics is a subject we aren't encouraged to talk about here on this Forum..
Cheers, Midori
It is interesting to note the football coach went to the states for dental work when he could have paid for it here if wanting to go down the insurance route.Our National Insurance contributions are 13.5% of gross earnings. I've got 3 chronic conditions, 6 long term prescriptions that are covered by the £110 per year NHS Prescription Prepayment Certificate. I'm very happy that I don't have the added worry about losing my health care if I lose my employment.
We definitely do our fair share of moaning and groaning...until we're reminded that our National Health Service is ours. We're all on waiting lists etc, but we're all more likely to agree that we've hope we will be treated soon. Politics aside, I'd rather live in a society where we try to protect each other rather than a country where we're expected to take care of ourselves.
Wishing you well!
Jo xxx
i never take what doctors say, purely because of the errors made with me.been diagnosed with asthma, diabetes, pneumonia, fluid on the lung, turns out to have been 1 and 1half liquid fighting to stop my heart ❤️ from working, none of the above proved to be true. So, always but always check the work of your doctors. All mistakes mentioned above, were made by different doctors, so, be careful.
I’ve learnt not to discuss my conditions or doctors appointments with others as you soon find everyone likes to have an opinion and it’s not their business.
I think it’s important to listen to your own body and take professional advice to give yourself the best chance for a more positive outcome. But ultimately it’s your responsibility to get further advice if something feels wrong.
I totally agree. My VA Mental Health team wanted me to try Adderall XR for over 5 months. I do not trust Opiates and a prescription of 12 HydrHydroCodon tablets last for over 5 years for my back lockup and debilitating pain! I just dumped my new female VA DR. I was on Adderall XR for 3 weeks and then she wanted me to start taking 2 days off per week. I was just getting use to feeling better and not sleeping most of the day! Your the Captain of your ship - let your body determine if the medication is worth the effort! Not all of us druggies!
psychiatrist decides we dont question it
Family is what has caused me to see a lot of Doctors, etc. This is true, I'm not joking.
if relevant I will discuss with my Wife. No reason to discuss with anyone else.
I've was diagnosed w/ADHA Yrs ago & again 1 yr ago. I received treatment in my 30s and my life became amazing. I had to stop after getting pregnant. I've been asking, begging for complete treatment, not just meds, for over 6 yrs. my symptoms have gotten horrible and I've been in a deep chronic state of depression for yrs now. One Dr. said she didn't prescribe meds (or treatment) for adults who said they had ADHD, because they "just needed to do the work". I've been treated like I'm just drug seeking even though I've begged for a therapist who specializes in ADHD. I miss appointments, forget about referrals and my doctors have prescribed me so many meds that I didn't need. I've been diagnosed 2 times w/Lupus, then Undiagnosed twice. Yet I was given medication that caused me to vomit 8 hrs straight. The turnover in my clinic is insane. Once I came early for a walk in appt, completed paperwork then, due to a error on their part I was ordered to wait outside in 100° heat with no shade. They forgot about me. When I complained to my insurance they simply claimed I was not there that day. I don't trust them. yet have a disability claim pending, changing now would be a disaster.
My family isn't interested in my health challenges😔
My family being from originally from Central Africa isn’t very sensitive to mental health issues and doesn’t know how to deal with it even when they have to confront it when denial doesn’t work. I think like a lot of Black families living in occidental countries, there are too much survival issues like getting enough food and shelter in a discriminatory society has been ingrained too much to put mental well being as a priority, as making sure that you get every possible social distinction to protect you (diplomas, work contract, house/property) is felt as more urgent.
My mother finally had to learn to take my mental well being into account after the burn out, but that doesn’t mean that she really is equipped to support me (even now as she failed when I was younger), and I also had to learn as an adult how to ask for the help I didn’t have before and sometimes emphasize when I had to take medical treatment and so on. (Still learning)
My friends it’s easier, not only because we’re mostly millennials, but also because we all dealt with our respective issues or had someone to support in our circle so it’s easier to talk about it and to get acknowledgment that getting treatment from licensed professional is often necessary. But we also are able to warn others when we see that they are slipping off the rails or when they might not be getting the right help.
My doctor really won't help with my mental health. It's very disappointing, because he trained under my previous doctor who had no second thoughts about helping me. My wife is a little grossed out, but her mother has the same doctor as me and has no complaints about him.
See my post below. Not all DR's really understand the amount of mental pain a person goes threw - with decades with Major ADHD disabilities. Most seem to feel -" No blood or guts on the floor - your just whining and weak!"
That seems like it. Gets pretty frustrating though. Looking into a shrink for the new year, so I got myself prepared by backing off on one med and dropping another altogether. Now maybe I can convince this one I'm serious.
Was on Adderall 10mg XR for three weeks, when new DR. wanted me to start taking 2 day Drug hollidays per week. To say the least, I later went ballistic with confusion and anger!. She gave NO reason why, but informed me that she had 30+ years of GP experience. I was so stunned, because my Mental Health TEAM, VA, had been advising me to go onto a stimulent for 5 months! I hardly drink, have never used street drugs or weed, and I don't smoke anything! I,m on Atomoxatine now tell I get a new Doctor. Hopefully I'll get a doctor that really knows what she or he is doing! I'm really hoping that the Adderall XR will help with my lausey memory. Age 74, male, in good health, no heart problems, +ED .
I thought I had friends and a family until I got endo with multiple surgeries. Both (friends & family) have strangely disappeared 😦🫢
My family (when I had one) told me to my face that I am an attention seeking hypochondriac who has lied about being sick and in pain, for so long that now I actually believe in my own lies. Woow!! 😯 💪🏻
As to how I get the surgeons to chop me up; I’m sure I’ll know all about it when they find a plausible story or accusation which they can bend to fit in Series 2 Episode 5. Can’t wait.
They have to believe and accept it (even though they behave as though I don’t exist and Im not allowed into the only place I call HOME)
When I go to my lazy GP, I’m usually armed with my symptoms, diagnosis & a small selection of ‘drugs’ from which the cheapest is chosen and sent to the pharmacy for delivery.
Lots of love from me & my invisible 🫥 friends; Endo, Fibro, Asthma, No. 4 - No. 12 of all my many diagnosis & the usual partridge in a pear tree 🌳
I don't say anymore. After having surgery, the problem was corrected. The family said there was nothing wrong. The evidence said something different.
My Family doesn’t even ask me how I am, let alone, asking me about any medication/ treatment/medical advice. I’ve been off work for 2 months & spent a huge amount of that time in Bed. No one in my Family knows! I feel worse & guilty about my illness because of the way I am ignored. 🥲
in light of of no sound critical alternative thoughts and strategies most definitely my medical team taking charge of steering this ship is the way to go.
sometimes
I’ve become my own advocate. I do my research and always ask questions. I’ve left providers that weren’t helpful and found ones that were and that treated me with respect. I often use my intuition on things. But….I can also admit when I’m wrong and listen to other opinions.