What is the most valuable aspect of be... - HealthUnlocked Blog
HealthUnlocked Blog
What is the most valuable aspect of being part of your community on HealthUnlocked?
SaskiaHUHealthUnlocked252 VotersPlease select one:
its a family who works together to give support, love, understanding we are going through the same thing support is everything when your sick love julie
I do agree with you.
Thank you! Well stayed.
Gaining advice and support from other people's experiences, going through similar challenges. Learning a lot from how they cope and manage. It's been a sanity saving and quality of life improving thing for me.
I totally agree
Health Unlocked is so many things to me. The friendships, information, support, all huge parts. Just wonderful.
As it's not possible to choose more than one choice, i' choose the first two for me, but have noticed during my years here that all options to vote on have proved beneficial for many of our members 
All of the above. I joined to learn more about my condition but I find the support and warmth of other members incredibly uplifting.
Same. I find it refreshing to chat with people who are kind and helpful. I can be myself and not the stigmatized alchofrolic the world see's.
I agree. Knowing your not alone is good to know.
Considering others ideas, experiences and practical solutions. Sharing our own experience and building knowledge and understanding
Well I’ve ticked one but really it’s all of the above. It’s wonderful to be able to chat to others who are (or have) experienced / experiencing the same as you are. Also learning about different heart conditions and the impact on people that it has.
Fiona
Ps speaking as one who has just been referred back to Heart Failure Clinic as my heart has been playing up and it showed up on the 3 day halter I had from Harefield.
I agree it is not really only one option that fits how beneficial HealthUnlocked is to all us ladies who participate. I also believe if we share information we are much more likely to be able bring about a cure. Together we become a force and that force has a voice. We can use our voices to encourage researchers to help us get a cure. I am grateful everyday for all of you who care enough to share your joys and sorrows. I sent an email to Bayer to encourage starting a human clinical trial with the latest drug they have that showed results in animals. Those pleas for help from us who are suffering will go out into the world and someone will help us get better. I have faith. I hope that Pfizer will also work on a vaccine for us. In the meantime I continue to read and look for info to help myself stay well. Love and hugs to all. M.
I think it’s given me more confidence to question my condition and discuss it more with my GP or consultant. Love to all
Being able to dip in and out. Depending my good will energy. Plus my need support energy.
I like to discover how other people manage with their conditions and be able to ask them how they managed when they had particular procedures done. How safe is it? How painful was it? etc. Also how do you cope if you are allergic to procedures and cannot have them done if they want to inject you different dyes etc. if you are having scans. Also it is very reassurring to be able to connect with other people who have the same type of medical procedures.
I love to help others quit smoking and hopefully not get lung cancer like I did.
Sharing problems and helping each other find ways forward. Realising we are not alone in the difficulties we face
Hearing the lived experience of others who are going through something similar. This information can't be provided by the doctors or healthcare team.
I can give other Pd patients HOPE, knowing that there is someone who has been able to reverse his Pd symptoms and to know that several studies have proved that Energetic EWalking can and does Reverse the symptoms.
What a nuisance it could only be one choice. I could easily have ticked 3!
Knowing others care and are willing to help in so many ways just makes life so much more worthwhile. Bless you all.
Mutual support, advice and sharing of experience. Having chronic illness means feeling isolated most of time and HU has helped with easing of this hugely! I am grateful for this forum and the support I get from the people in HU.
I can't chose (just1) The emotional support is always there just for saying what's happening in my life, the learning & research is also important to me I don't know what I would do if I lost all the beautiful on this site I love them all kycmary!
It is very difficult to choose and vote on one of the specific areas above, as it is all these things together which make Healthunlocked an amazing, caring and educational place to be when dealing with MPN's.
we are a family who cares, supports and love each other that is everything
What a beautiful way to express it! Yes, we are a family. Thank you for reminding me.
Finding that others can point you to the information you need to know at a time when this may not be filtering through efficiently from normal (med.) channels, e.g. I found it very helpful when someone posted a link to a news report and journal info. on the Third Vaccine.
i went to the doctor told me nothing is wrong said i was being mental and upset at losing dad. went had an independant blood test done (scleroderma, lupus) mild case if it gets worse they will do meds. i feel lost, upset, i have left stanford for lack of care..julie
I would have to say "All of the above!"
Learning I am not alone with what I am going through and that some people are nice as we support each other and are there for each other.I like the Survey. Thank you for including me.
Gaining advice and support from other people's experiences, going through similar challenges. Learning a lot from how they cope and manage. It's been a sanity saving and quality of life improving thing for me.
Knowing your not alone and getting friendly advice and support x
it is so hard when stanford said nothing was wrong it was a slap in the face to me. i have esophagael scleroderma from san mateo medical center i can now go foreward with treatment because the doctors there believed me. they said i know my body best not stanford. i felt like an orphan now i have found a place like home where i am safe and feel loved. love julie
We feel the pulse and give support to all around us on our Hub
Feeling of community and having people with similar experiences to draw on. Not feeling alone and having positive supportive experiences
By help and advice and support in all areas of my life , and by other peoples posts on similar issues to mine.
I like that there are so many of us, That we don't have to be there or share all the time
. In a way how ever much of care and understanding we give.
At the same time, we can ask for our selfs.
It's great to get nice replys and feel respected.
I get more knowledge and support with my condition and treatment from the experiences of others than, often, from my professionals.: also, it is extremely helpful as some members have medical training. The best support ever!
So true