My dad is 65 and the most amazing man I ever met. I remember him teaching me to swim when I was little, playing cricket in the park on a summers day (yes we did have them!) and especially getting so excited when he bought his first car. A green Talbot Horizon back in the 80's. He worked an extra night job to buy the car so we could go out as a family and so he wouldn't have to spend over an hour walking to work every day.
Fast forward to the present day.
He cannot get out of bed without needing his oxygen and having a terrible bout of coughing. He refuses his dinner as he has no appetite. He drifts off to sleep many times during the day. Just getting up and going to the bathroom is a struggle. He manages a small bowl of soup for tea. I ask how he has been since I saw him this morning and he admits he's had a bad day. When asked why he didn't tell me this morning.......he didn't want to worry me.
I love him and hurt for him. For the man he once was......only 6 months ago running around with his 14 month old grand daughter. This awful disease has robbed him of his independence that he so fiercely valued.
And what can we do?
My mum says laughter is the best medicine........and we laugh together xxx