Trigeminal Neutalgia: Recently... - British Lung Foun...

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Trigeminal Neutalgia

paddies17
paddies17
7 Replies

Recently diagnosed with Trigeminal Neuralgia. Any help with coping gratefully received.

7 Replies
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2greys

There are a few sufferer's posts on this forum at HealthUnlocked that you might do a search on for Trigeminal Neutalgia. Just click on the Follow button to start posting.

healthunlocked.com/foggys/p...

Search results for you are here:

healthunlocked.com/foggys/s...

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RoadRunner44

Two family members had this vile condition! The pain is unimaginable and the medication doesn't always work, but makes you sluggish all of the time. My aunt ended up having an operation for it and has had no problems since apart from a little electric shock type pain very rarely, which is nothing to her now. I hope you have an understanding doctor who will take the pain seriously. Regards Chrys

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Don-1931

Sorry I've no help to offer, but I can wish you well and welcome you to the group. 😐

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Ergendl

Some migraineurs like myself use Cefaly to make the trigeminal nerves less touchy, but I'm not sure whether that would just make things worse for TN. Cefaly uses tiny electrical currents to stimulate the nerve so that it gets less trigger happy.

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Johnem

I get this occuring fairly frequently and it is wickedly painful. Fortunately, when it was diagnosed, Tegretol (carbamazepine) was prescribed and it is very effective in controlling the condition in my case and gets rid of it fairly quickly...I can then stop the medication until the next time.

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bobbyfloyd

I have neuralgia and it is a vile thing to have, the pain is unbelievable and although i am on 6 tablets a day nothing helps, there is a page on Facebook with many sufferers on that page, have a look and if you cant find i i will get the page for you, hope your better soon

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bobbyfloyd

found the page for you it is called trigemal neuralgia family, but there are many more on facebook

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