Quite right Wendells, these services are available in UK, its accessing them.
Mavis you need to speak of everything to the medical professionals about your husbands needs and symptoms, I agree with Wendells you cannot manage all these things yourself. Ask your doctor or the palliative nurse to arrange for someone to come and speak with you personally and to assess the situation.
Start making a list from what you have said here and then you can go through that list with the medical professionals, just ask when you say the things on the list:
" - What help can I access to help this situation?
- Will you (whoever you are speaking with) arrange this for me?
- Will you give me a contact number I can ring should I not hear from any one
concerning these matters? "
I am sorry the system seems to be falling down for you at this time, but I hope after speaking with those professionals who can help you will soon be finding things much easier for both you and your husband.
Take good care BC