Which of the following, if any, affec... - Lung Conditions C...
Which of the following, if any, affect(s) your participation on the BLF community?
Please select all that apply:
Thanks for checking 
Only just found the forum recently. Fantastic and informative, good work.
I find the community very helpfully and enjoy the interaction.feel part of a very big family
An excellent forum, with a lot of knowledgeable and caring people on it. I'm very glad I joined it. I find it most helpful and reassuring.
Fantastic site
Love this forum as others on understand and can relate
I always read. And try to reply and show my support but most of the things I don't know about or understand
Snap x
I have gained a lot from being a member and hope I have helped others in some small way.
I read the various items most days ,have replied to a few and written a few of my own . Nice people and Ihave learned a bit about other illnesses as well as my own emphysema.
Sometimes people are very quick to make comments on subjects that aren't really helpful when they don't agree and its new people trying to just give an opinion There are some who seem to only like to be in a group and not like anyone new joining in. Also seems to be a lot asking medical tests results questions that are not appropriate as we aren't medical professionals we are all different and lots of conditions affect us all differently so I think this problems needs to be addressed.
Get loads of useful information and many answers, however I have an incident with another poster, who insisted on information, other wise well done excellent job.
Thanks for the check Ben. I always read and actually take up any relevant suggestions. The group is always warm and helpful and it is good to read the notes each day.
Best wishes
Dan
I like to read posts and reply to many but rarely post. I may post an update on Pete soon though. Xx
I do get involved, but only when I know the facts, People rely on the information they read here, and don't need false hope's
Great forum . Keep it up
I read what’s posted every day and feel a lot of them has helped me many thanks
Good Service, as and when needed. Thank you
I have contributed. I read many of the post and feel humbled by the problems experienced by the issues members write obout . They make me wish I could come up with some magic bullet to cure their ills .
I find the site difficult to navigate and somewhat confused in it's organisation … but some of that may be attributable to my PC. I am particularly interested in asthma/bronchiectasis but see a lot of stuff that isn't really relevant.
There is a separate site 4 asthma.
Sometimes you just don't know what you really need to know. Reading blf has helped me vastly and I feel I cope better now. Thanks folks. Jane.
I do contribute (and voted as such), but more so on the "Patient" branded website, as it has far more bronchiectasis sufferers posting. BronchX tends to get a bit lost amongst the great weight of COPD sufferers on BLF, who for obvious and understandable reasons spend a lot of their keyboard time reinforcing each other with supportive messages and social chat that I find of limited interest. You need a more compartmentalised approach to coralling the input on "the minor diseases"
I find this forum so helpful xx
As admin of a sports forum I enjoy forums. As a person with quite a few health problems, I find this forum helpful and friendly. It works both ways, I can post my experiences and some advise to people who post with problems I am familiar with. and receive the same when needed. I think this forum does a great job and I like to post as well as read..
keep up the good work xx
I'm very grateful for the forum. They have helped me a lot over the years. I also answer other people's queries when I can, particularly the newbies. In fact, a discussion I had yesterday has given me ammunition for my doc's appointment this afternoon. There's always more to learn.
Gosh after reading reply’s forgot what I was going to say lol
But agree with all others SURPOSE best get back to trying rember what I was going to do.
Main problem is having to sign in every time.surely there must be a method where l can stay signed in
Would appreciate any advice
Thank you
At the moment I'm fairly active and fit but with a fairly recent diagnosis of emphasemia. I don't visit the site very regularly but it is a comfort to know it's there and that more experienced sufferers might be able to advise me if the need arises. It seems very friendly & supportive.
I like to help others when I can. I certainly receive help if I need it.
I really like what you say about helping others.Since I joined this site becos of frequent chest infections I've found so much help and advice from here.It's really helped when I've been worried.I usually read people's messages every day and its really made me realise that there are others much worse than myself.I'm on another course of antibiotics with bad side effects.Trying to carry on but am itching on my arms and felt like flu for the first day or two.I don't know if I should ask go to change them but half way through now?love Sandybluesxx
Good place to come for information and help, real nice crowd of folk on here xx
Reading the posts really help me but confused by numbers that are put up and don’t want to make fool of myself if I ask wrong things
I have not found answers to my questions yrt but will keep asking
I used to post more but I seem to be doing a lot of visits to GP,hospital,Family and shopping not forgetting since we went onto UC phoning DWP to find out why nothing makes sense anymore?
I’m laid up up once again with chest infection. Back on Amoxicillin 500mg . Def can’t venture out yet
This is the worst bout I can remember having. Heaving quite a lot. I realise there’s no miracle cure
Hi Ben
Over the years I have noticed more people are joining from other countries, while this is good for the site it can be very confusing when joining conversations. Would it be possible to have the members country’s flag next to their user name?
Regards
Hi Ratatouille
Health Unlocked (our forum provider) currently allow forum users to display their country as part of their user profiles, so if you click onto their user name - if that person has opted to disclose this - you will be able to view where they are based.
Health Unlocked are always looking out for new ideas and feedback on the features of the platform so if you wanted to put this idea (or any others) forward to them, I'd definitely suggest putting it forward - their email is support@healthunlocked.com
Best wishes,
Ben
Usaly can tell by how they write Have had interactions with French Italian etc.
So diverse refreshing to read others views perspectives.
Thanks Ben, I wasn’t aware of this tool
I have found this forum has let me know that there are many other people with various kinds of lung conditions so I don't feel alone!
Ratatouille's idea is good.
It is good to belong to such aN informed group. For me it's a good mix between high end science and down to earth practicality.
Thanks for all your comments and votes everyone! Much, much appreciated.
The forum is excellent. I'm glad I found it .
I love this site, i had learned alot about my condition and found all the people really helpful and they are such a nice caring bunch. Glad I joined.
I sometimes think I haven't got any wonderful words of wisdom to contribute.
judith we don't need wonderful words of wisdom,we can get them from Wikipedia,just be you,that's enough for us.regards Skis x
aawhhh !! bless you just to know you are is very uplifting xx
When I found the forum 4/5 years ago I was so pleased as my husband had Copd and I didn't know much about it. I found it invaluable, informative and supportive and I have continued to do so over the years. I've read the posts most days and occasionally I contribute o ask for advice. The only negative is I find it very dostressing when members pass away and when regular members stop contributing and we don't hear from them again.
Corin
I am from Canada and I like reading the posts as I have COPD and I like to read about all the different meds that are out there to help people with this condition.
I already contribute whenever I can.Thanks good luck Sandy blues x
I value this site when I need to find anything out and I I know I can rely on
I am happy that I can advise and get advice depending on how I or someone else feels. It's nice to know you're not alone with lung conditions
So glad I found this site have learned such a lot from other members
i do read comments every day and found this forum very helpful
this site helped me before attending my copd appointment with nurse pre armed me on questions i needed to ask thanks to the people and site admins
This is the best site going
I would be lost without the advice offered on here! Still struggling with a lung infection that will not go away, the worry is that the image on the x-ray will be something more sinister 
Thanks
I like to read posts and occasionally reply when able.
Sorry Ben but I don’t get a lot of time and just like reading at present
A lot of good info here; you can't get common sense stuff from a doctor....they don't revolve around that.
An excellent source of information and support, identifying and sharing with one another.
Get lots of information and some interesting and entertaining stories. Very seldom do I contribute as most of the time it has all been said already. x
I love checking out this site most days, I have emphysema and have learned a thing or two just by reading the posts on here. I will keep on reading
Even though i have,nt posted yet this is the best site i have found
Site helped me understand my illness much more than my doctor or nurse did. It really helps to speak to fellow sufferers.
Same here
The people on this forum are a fountain of knowledge and are rich in experience.
I believe we should encourage others to join and actively participate that do not necessarily have lung disease, nevertheless an interest in lung disease. For example, there is no better place in my opinion for healthcare students to learn. They could ask questions about the reality of living with lung disease and learn far more than any book can teach them
Excellent and interesting forum. I'm a previously very healthy 82 yr old and have just been diagnosed with chronic hypersensitivity pneumonitis, having never heard of it before - after being told I had idiopathic pulmonary fibrosis. Bit confused as you might imagine.
Hoping somebody here has something similar and can possibly offer a little reassurance, swap symptoms, or give a little hope!
I found the site very informative and interesting and some of the things that I read about my condition (COPD) enlightened me and made me feel positive about the future. Nice people on this site.
Am Australian. Found your site when in hospital with a COPD attack brought on by virus. Didn't get much information about my condition. My GP and hospital people had not heard of the lung flute etc. I really learned a lot from your site. I have purchased privately an Acapella device to help with my condition. Wouldn't have ever known about this had I not accessed your site so thank you. We need more education here in Australia about lung conditions and help both for patients and the medical profession.
This is a great community
Wonderful forum. .. always find everyone helpful and very supportive. I haven't posted as yet but l am sure l will be happy to as and when l feel the need, but have gained so much information by just reading , l was diagnosed with COPD last year and once l found the forum it helped me so much .
Brilliant forum. Getting to chat with people that understand what you are going through. Fantastic support. Thank you so much. You give people so much help and piece of Mind.
I love to just read it helps me a lot
I like to read the comments it helps me a lot thank you
I joined a few weeks ago and have found it helpful reading about people with similar problems. I was diagnosed lpf 2years ago. I have good days and bad days. I found it difficult to talk about things but maybe in time l will be able to make a meaningful contribution to the forum. I do wish everyone good luck and admire so many of you after reading about the problems you are going through.
I have been on BLF a long time and learned everything I know about copd on here. I try and answer as much as possible to give back what I can.
I have seen many different 'groups' on here and although I always feel others care and we are part of big HU family I miss the warmth and more human touch of some past members. I liked the members who used to post funnies and made us all laugh. I don't feel as though there are many on here like that now and it has got too serious for my taste.
I read the Forum every day, nice to see everyone is ok and still Positive. I have learnt a lot from everyone else who contributes, I tend to Double read on some posts from members who are more knowledgeable. You know who you are. Thank You XXX
I’ve been on the site for quite a while now, find it useful, helped me a great deal ( except when we had the trolls ) also such a lot of the people I talked to have gone. I’m not saying this in a well not very nice way, but admit I feel it’s lost it’s umph, that’s sad.
Etch45☹️
Mainly when I’m having a bad night ,or if I get an email otherwise I just like to read
I am really enjoying this forum. People sound so nice and helpful. It is like a family. I am so glad I came across it. Thankyou everyone
