My brother was diagnosed at 3 and is ... - Leukodystrophy Su...
Leukodystrophy Support
195 posts •
My brother was diagnosed at 3 and is now 19
You need to be a member of this community to see this post.
The ability to reply to this post has been turned off.
7 Replies
You need to be a member of this community to see hidden responses.
Not what you're looking for?
You may also like...
Difference between AMN and ALD
My 32 year old son just passed on June 27th . He was diagnosed at 25 with ALD. Everyone told me it...
drugs for 8 years old boy suffering ALD
Hello!
My son a year ago was diagnosed with ALD. The disease progressed rapidly, now he already is...
Genetic testing for under 16s
Is it hard to get genetic testing for your son or daughter? It is suggested it is difficult for...
Hi, I am looking for some advice on follow-up of asymptomatic men with ALD. My brother is 32.
I have read the latest review article relating to regular MRI scans and adrenal function tests. Has...
Do you want to get in touch with someone with a similar experience of ALD or AMN?
If you do, we have a contacts list full of people willing to provide support about all aspects of...
I hate to ask but i need to know…how long after the disease sets in do male children have before they lose the battle with this disease?
I have 3 sons who have just been diagnosed with ALD
What's your view on Lorenzo's Oil?