Practical Information Leaflet: Focus Group

Last year, we started the process of reviewing our Practical Information Leaflets. With the support from our volunteer medical writer, feedback provided by members and expertise from medical advisers, we have finally completed our Practical Information Leaflets.


However, to allow us to finally publish our Practical Information Leaflets, we would like your feedback to see if they are user-friendly, fit for purpose and relevant to your health and social care needs.


If you would like to volunteer, please send an email to, choosing a Practical Information Leaflet to review.

Practical Information Leaflets:

Symptomatic Boys

Asymptomatic Boys

Male AMN

Female AMN

Female Carriers

Please also feel free to add your feedback below, once you've been given a Practical Information Leaflet.


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