They are looking to compile a thorough resource about PGD on the Internet for families, students, and the general public just interested in the procedure in general. In addition to scientific and factual information they want to put up on the website, they are looking for family stories. If you'd like to remain anonymous, please feel free to say so.
To get involved contact Nadia at the Genetic Alliance UK: nadia@geneticalliance.org.uk or 020 7704 3141 Ext. 101
Further information about the project: geneticalliance.org.uk/abou...
Is there any aspect of your condition where you would support? 
Genetic testing for under 16s
Difference between AMN and ALD