What we do

ALD Life is a patient support group for patients and families affected by Adrenoleukodystrophy (ALD) – a rare genetic disorder that impacts mainly young boys between the ages of 4 to 10. We provide emotional and financial support to patients and families including a grants programme that helps families cover vital support costs. We provide practical information and advice to patients and families to help them make informed decisions about their health and social care needs. We also help fund medical research projects looking into finding better treatment or a cure for the disorder.

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Please help us to support patients and families affected with Adrenoleukodystrophy (ALD), like yourselves, everywhere.

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