Parkinson's

[Heracleslion]

parkinsons disease, is there any connection with AF?

[gemsmum]

I have had PAF for over three years and only last month my Dr sent me to a neurologist as he suspected Parkinson’s as I have a chin tremor. Still not diagnosed yet but Neurologist said he suspected Parkinson’s and I had a Datscan last week but no results yet. What has made you ask, do you or someone else think they might have Parkinson’s? I am dreading results as I have been very depressed since seeing Neurologist. Kind regards.

[Heracleslion in reply to gemsmum]

my sympathy, and you don't necessarily have Parks, all symptoms seem to,fit all diseases and that's the danger ,of reading too much. my Falls Clinic says you can bypass the GP and go straight to the neurolObits, so try that. good luck, and mAybe antidepressants could help

[37Polly in reply to gemsmum]

Don’t despair yet. I have severe jaw tremor (dentist trips are a trial) as well and hand trembling, but thus far am diagnosed as “essential tremor”. I always ask about Parkinsons and so far am told no. BTW a good test is try a healthy glass of wine...if tremor goes away...it is essential tremor...for most of us. The docs still don’t know why exactly. A NIH study is underway because it apparently isn’t a simple answer, and needless to say, prescribing alcohol could be worse for your health. For years I have had a glass of wine while preparing dinner or putting on makeup to go out for an evening. Then I skip drinks out or for dinner. Beats daily meds with side effects. Good luck.

[gemsmum in reply to 37Polly]

Thank you 37Polly, your reply gives me some hope, I can open my mouth wide and no tremor but when a little ajar tremor starts. Also tremor eases with a glass of wine, kind regards Heather

[Hidden in reply to gemsmum]

I have noticed that I too sometimes get a little tremor around my mouth and wondered about Parkinsons. Do hope it isn't the case for both of us!

All th best,

Sandi

[gemsmum in reply to Hidden]

Thank you Sandi for your best wishes and the same to you regarding Parkinson’s, I am the same as you regarding AF it appears about twice a year and I use Bisoprolol as PIP, kind regards, Heather

[Hidden in reply to gemsmum]

Well, I'm getting episodes far more often than that- around once a week now -but they never last more than a couple of hours so little chance of stroke and I've now started taking the half dose of apixaban which doesn't cause all the bruising that the full dose did, so I should be covered for the 2.2% stroke risk!

All the best,

Sandi

[BobD Volunteer]

In the fifteen years I have been involved with AF nobody has mentioned a connection. Why would there be?

[Paulbounce]

In the early stages of PD you have an increased chance of going in to afib. The further PD progress`s the less likely you are to have afib. This is my understanding.

gemsmum Good luck with your results. May I suggest you don`t ask `doctor Google`. Every time I look something up on Google it`s fatal ! A cold turns in to a terminal illness and don`t even ask me about where I got my cold sore from !

True story. A month ago a very close friend of mine called me in tears. She had a kidney cyst and had searched it on Google. It said she had a 85 - 100% chance of it being cancer. What a load of tosh. She has since seen the consultant and is one 100% clear.

The only way I take notice of any online medical info is if it`s a medical review in a journal.

Often these things are not half as bad as we think they will be. I really hope things go well for you and it turns out to be good news.

Best,

Paul

[Heracleslion in reply to Paulbounce]

bless you Paul, you're absolutely right. I actually read the leaflet that came withMirtazapine, and found that the symptoms which made fear I had Parks were side effects of the drug, and nothing sinister at all.

that said, I wonder if we really need all this druggery.

[Paulbounce in reply to Heracleslion]

Hi Heracleslion.

I think it`s human nature to panic if we have some symptoms of some something that could be serious. It often turns out to be nothing but we still worry.

Pleased all turned out to be OK.

Have a great weekend.

Best,

Paul

[gemsmum in reply to Paulbounce]

Thank you Paul for your good wishes. Consultant said he did not know of any other reasons for a chin tremor other than Parkinson’s so I am not expecting good news from my Dat scan. I’m surprised my AF hasn’t appeared as I am under so much stress. My daughter wants me to move house so I am nearer to her and family especially if I have Parkinson’s, been in my house for 30 years so a big decision to make soon, kind regards, Heather

[Paulbounce in reply to gemsmum]

Hi Heather.

I hope your Dat scan brings good news. I`m not surprised you are stressed waiting for the results.

Even if they are not want you want to hear, medical advances are moving so quickly, I`m sure there will be things to help you a lot. Why not ask your doctor about clinical trials and what new treatments you could try ?

Moving house is stressful - certainly when you have lived in one place for so long. Take a positive from the negative though - you get to see more of your family. That can only be a good thing and something to look forward to

Hope all turns out good for you.

Best,

Paul

[Auriculaire in reply to Paulbounce]

That's odd. I was told I had a cyst on my right kidney a few years ago after a scan. I looked it up on Google and was quite relieved as the sites I consulted said it was highly unlikely to become cancerous.

[Paulbounce]

It was suspected of being a complex cyst - not a renal cyst. The site had information from the Bosniak Grading stage 4 cyst. It only quoted that in search results which was incorrect. That states 85 - 100% chance of it being cancer.

Best,

Paul