How well do you know your condition? - Atrial Fibrillati...
How well do you know your condition?
Please select all that apply:
What is this? The 2 answers do not seem to cover the ‘real’ possible answers..
Such as:
Know my condition Very Well, and am Satisfied with all information currently available to me!
insufficient depth in the questions
I live in Spain so docs here don't think you are entitled to know !
is that really true or just being sarcastic?
True I'm afraid
well, thats just total BS.... I hope you get ALL the information you need to make a really great decision for YOU. My docs work for me, they are just my consultants, not my boss. How can anyone make a decision about their health and/or treatments without knowing all the facts, options both medical and non medical. Well your in a great place here to learn alot from real people. Each of us have our own personal chapters in this book we have called AFIB. Each of us have different experiences, different approaches, and the AFIB is different for each of us. Read, ask all the questions you want no matter what they are. We are here for ya. Welcome !
Thank you have been greatly assured
and informed by all in relation to my AF in the absence of empathy and information from the doctors here in Spain their health system is nothing like our NHS.
How do you know that is total BS as you purportedly live on a different continent with a completely different health system. How rude and bad mannered of you.
It is your body and you have every right to know options available.Dosent matter where you live, what country you are from, color of skin, male or female. PERIOD.
What IS BS, is not asking, and not getting information.
So yes! Ask, demand.
If nothing changes, then nothing will change.
In Ireland, you're literally told you have AFib, told "take these" by medical doctors and sent home. No such thing as a referral in the hospital to cardiology unless your meds aren't working or imagine, you get to see the cardiac nurse when you're in heart failure. Absolutely ridiculous unless you fight like I did to see cardiologist and Electrophysiologist and get an ablation.
Only too true in Ireland docs great you like assume we know about your condition no need for you to know or challenge our methods Not all but many don't explain anything you are talked at just take this etc
The BHF booklets are an antidote as is this forum learning about a condition being aware of triggers and lifestyle adjustments makes life more liveable
It also dispels fears and helps patients cope better with the effects of a fib a flutter and ectopic runs
That impacts on the life of the patient and more importantly the carers their families as these folk are usually alarmed and distressed by the impact of the afibber in full surge.
So
Thanks to all who reveal the true situation so we can all advocate for change for better understanding and movement to better treatment plans after all our health service and doctors should be on the same page supporting better and prompt outcomes for people - who pay their salary support their education and training and have an ongoing interest in their development
Reality model much needed to out perspective on things !
Rant over - most consultants and hospital based doctors get it - your ill and need a good treatment plan that takes account of how the condition has or has not progressed
Never be afraid to ask it's only then you live without doubt
Healthy 65
I officially complained about being left for medical to treat me. But as soon as I was diagnosed in gp's surgery, with afib with rvr, I was sent to the hospital across the road. I didn't see the medical consultant until the following morning and I had questions for him already. Then I found two fb forums and tfound that I needed an EP and so I asked patient services if I could see cardiologist for referral to ep. Their reply in writing, was that, "in this hospital the medical team treat AFib.". I asked why I couldn't see a cardiology nurse "only if you're in heart failure". So I argued. Got my appointment with cardiologist in the hospital. Got my referral out of our area to an EP. Saw him on 1st Dec, had ablation on 21st Dec. Nsr since. I was in the hospital in July last year, the medical doctor said if my episodes lasted longer than two hours to come in for monitoring. Sure, from Sept onwards, I had ten hour episodes every three days. I'd have lived in the hospital. With no bed, just a trolley, cos that's our local hospital, always over crowded.
Move !
That is simply a rude and unnecessary response
Not always possible you know another rude and bad mannered response.
My GP in Australia thinks the same but I insist with questions. This week had a phatology test and pay an small fee for them to send mi a copy with the results so I will have more questions to make...we should have the right to know to keep an eye on them, in case they make mistakes by careless...often happens.
The condition changes so always looking for information and also new treatments. I have a dilated cardiomyopathy and AF and it the moment different symptoms.
Seems to me to be a perfectly adequate questionnaire. I have read up about my condition and believe I have enough information to always ask questions and know what works for me. I also am always interested to know new information that has a scientific and/or anecdotal basis. Keeping informed is the best way for me to help my body.
Interesting, ...my AF is not very bad and so I hesitate to ask doctors too many questions. Particularly at this difficult time.
I was only told by my family that I had AF after a long period in ICU. I also now take blood thinning medication for it but have been more interested in brain tumour and thyroid removal
I wish that you would arrange some decent research on our varied experience of drugs etc with a good deal more than six participants!
With thanks
I have proximal Afib and know my condition. How can I find names of the most qualified experienced doctors in southern ca (I live in Costa Mesa). That info is so hard to find and I don’t know that take my word for it is a good approach. Any recommendations?
Check out Dr Wolf in Houston Texas... wolfminimaze.com/the-wolf-m...
Thinly veiled advert for patients day. Good effort 😊
I am 80 years old but try to live an active life, like walking and socialising etc. I have had AF for 15/20 years and had an ablation after a year of different tablets, also several hospital visits. Since the last one I have been on Flecanaide and Riveroxoban and potter along quite nicely, also coping with other things like Fibromyalgia. So at my age I don’t think anything is going to change much, it’s quite interesting to read other people’s experiences though!
Here is some information that has been available for over 17 years wolfminimaze.com/the-wolf-m...
This AF forum has virtually taught me all about the condition and has been an invaluable friend. Thank you.
Here is some information that has been available for over 17 years wolfminimaze.com/the-wolf-m...
My main source of information is our practice nurse. Gillian
Here is some information that has been available for over 17 years wolfminimaze.com/the-wolf-m...
