2 of 2: With Covid as your only consi... - Advanced Prostate...

Advanced Prostate Cancer

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2 of 2: With Covid as your only consideration, what kind of prostate cancer patient conference would you prefer to attend through 2022?

Darryl profile imageDarrylPartner176 Voters

Please select one:

7 Replies
Originalsnds profile image
Originalsnds

A virtual conference would be interesting. I personally went through a serious bout with Covid and Pneumonia at same time. Rough time in Hospital almost not making it after kidneys were also shutting down and Heart went into afib. Pulled through after being out for a couple days with 4 I V sets feeding so many bags of medicine.

I am still on clinical trials fighting this advanced prostate metastatic cancer for 6 years now.

That is constant treatments, full body scans, injections, and many meds. All because of the many spreads of cancer thru out my body. I have to say the clinical trials are helping me stay alive. I am being treated at a research hospital every 28 days. Grateful for what they do.

Since my bad covid experience I really go nowhere in travel. Too scared now after 5 weeks of home nursing care and also physical therapy Nurse care .

I know there are many other choice views that are different. Just wanted to express mine.

Thank You for letting me put input on Virtual Conference choices.

Barry Miller

John438 profile image
John438 in reply to Originalsnds

Sounds like the experience I had last June and January. I had to go to the emergency room and be admitted for the second time in 6 months. Because of radiation cystitis I was passing blood when I urinated, then blood clots started passing to. The clots kept getting bigger and it finally became impossible to urinate and increasing pressure became unbearable, so off to the hospital in an ambulance. The first in the ER I almost bleed out fortunately and alert doctor ran my blood work and it came back that my platelet count was 1000, compared to a normal count of 350,000. 6 days of icu 5 transfusions of whole blood and 6 transfusions of platelets. Fast forward 6 months later to January same problems plus COVID Pneumonia led to a 8 day stay in an isolation room multiple IV antibiotics and whole blood. Thy labeled me a fall risk a would not let out of bed or stand up, resulting in a ambulance ride home and 6 weeks of OT and PT and round the clock attendant care until I was able to walk up the stars to my bedroom. I have become self isolation pro and rarely go out except for DR visits, so after a long winded story I would definitely favor a virtual meeting.

GeorgeGlass profile image
GeorgeGlass

Any idea what month the in-person would be Darryl? I suppose you could have in-person plus a live feed for people to watch it from home.

Darryl profile image
DarrylPartner in reply to GeorgeGlass

No in-person conferences until 2023

Shorehousejam profile image
Shorehousejam in reply to Darryl

Do you think May through Early September, like maybe the weekend after Labor Day would be ideal? Just Not the flu season months, for us it’s October through March. As a newbie I would think men seeing each other in person could be very inspiring. Btw Hello, I am Shorehouse JaM, Jeff’s wife Michele, I suffer from multiple auto immune disorders and I already have my first upper respiratory infection of the season and that’s a first, so early into Fall. Praying my husband’s doesn’t get it. Thank you

Darryl profile image
DarrylPartner in reply to Shorehousejam

the 2022 conference will be virtual

Wings-of-Eagles profile image
Wings-of-Eagles

In Person