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Membership of the Pernicious Anaemia Society
We are an established charity representing more than 8,000 patients who have Pernicious Anaemia or malabsorption of
vitamin
B12
. The more members we have the bigger our voice will be in getting the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed.
We are an established charity representing more than 8,000 patients who have Pernicious Anaemia or malabsorption of
vitamin
B12
. The more members we have the bigger our voice will be in getting the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed.
PAScomms
in
Pernicious Anaemia Society
8 months ago
"Subacute" "Combined" spinal cord degeneration, decoded?
The Neurotrophic Action of Cobalamin (
Vitamin
B12
) Revisited" https://academic.oup.com/jnen/article/60/2/109/2609890?
The Neurotrophic Action of Cobalamin (
Vitamin
B12
) Revisited" https://academic.oup.com/jnen/article/60/2/109/2609890?
WiscGuy
in
Pernicious Anaemia Society
10 months ago
High Folate with PA terrible GP
[/i] [i]High folate levels may also:[/i] [i]Exacerbate
vitamin
B12
deficiency[/i] [i]Worsen cognitive symptoms associated with
vitamin
B12
deficiency[/i] [i]Promote the growth of malignant or premalignant cells [/i] [i]Some hypotheses for how high folate levels may affect
vitamin
B12
deficiency include
[/i] [i]High folate levels may also:[/i] [i]Exacerbate
vitamin
B12
deficiency[/i] [i]Worsen cognitive symptoms associated with
vitamin
B12
deficiency[/i] [i]Promote the growth of malignant or premalignant cells [/i] [i]Some hypotheses for how high folate levels may affect
vitamin
B12
deficiency include
EllaNore
in
Pernicious Anaemia Society
3 months ago
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TSH level increase after total thyroidectomy(8 years ago)
Edit: Added lab results FERRİTİN 136.0 ng/mL 30 - 400 FOLATE 2.68 ng/mL 3.89 - 20
VİTAMİN
B12
479 pg/mL 197 - 771
Vitamin
D (25-hidroksi) 33 ng/mL 30 - 150 TSH 22.20 µIU/mL 0.27 - 4.2 T4 16.40 pmol/L 11 - 22 T3 3.78 pmol/L 3.1 - 6.8 TİROGLOBULİN <0.04 ng/mL 3.5 - 77 AntiTg 13.3 IU
Edit: Added lab results FERRİTİN 136.0 ng/mL 30 - 400 FOLATE 2.68 ng/mL 3.89 - 20
VİTAMİN
B12
479 pg/mL 197 - 771
Vitamin
D (25-hidroksi) 33 ng/mL 30 - 150 TSH 22.20 µIU/mL 0.27 - 4.2 T4 16.40 pmol/L 11 - 22 T3 3.78 pmol/L 3.1 - 6.8 TİROGLOBULİN <0.04 ng/mL 3.5 - 77 AntiTg 13.3 IU
Renadom
in
Thyroid UK
6 months ago
B12 deficiency
Hi, my latest blood results are showing a low level of
vitamin
B12
and
vitamin
D. I have PV and take hydroxycarbomide 500 and 1000 on alternate days. Platelets are fine but htc is 46.8. HTC has been above 45 for the last 3 months and have had 2 venesections.
Hi, my latest blood results are showing a low level of
vitamin
B12
and
vitamin
D. I have PV and take hydroxycarbomide 500 and 1000 on alternate days. Platelets are fine but htc is 46.8. HTC has been above 45 for the last 3 months and have had 2 venesections.
Ellipops
in
MPN Voice
9 months ago
Help for my 31 year old son please. First post.
Ferritin. 22ug/L 23.9-336 Folate 3.1ug/L 2.9-20.6
Vitamin
B12
439ng/L >160 RBC 4.93 10*12/L 4.5-5.5 Serum ironlevel 17umol/L 8-32.6 TSH 1.76mu/L 0.34-5.6 Free T4 10.6pmol/L 7.7-15.1 IgG 16.1gIL 6-16.0 IgM 2.7g/L 0.50-1.90 There were no other blood test results available on his online NHS
Ferritin. 22ug/L 23.9-336 Folate 3.1ug/L 2.9-20.6
Vitamin
B12
439ng/L >160 RBC 4.93 10*12/L 4.5-5.5 Serum ironlevel 17umol/L 8-32.6 TSH 1.76mu/L 0.34-5.6 Free T4 10.6pmol/L 7.7-15.1 IgG 16.1gIL 6-16.0 IgM 2.7g/L 0.50-1.90 There were no other blood test results available on his online NHS
Lexa22
in
Fibromyalgia Action UK
7 months ago
High B12 result.
(Report says Satisfactory) GP report Blood haematinic levelsSerum
vitamin
B12
level 1150 ng/L [197.0 - 771.0]; Outside reference range Serum folate level > 20.0 ug/L [2.0 - 18.7]; Outside reference range Serum ferritin level 130.0 ug/L [20.0 - 260.0] Report satisfactory - no further action. ......
(Report says Satisfactory) GP report Blood haematinic levelsSerum
vitamin
B12
level 1150 ng/L [197.0 - 771.0]; Outside reference range Serum folate level > 20.0 ug/L [2.0 - 18.7]; Outside reference range Serum ferritin level 130.0 ug/L [20.0 - 260.0] Report satisfactory - no further action. ......
Klawd
in
Thyroid UK
8 months ago
Advice on ‘normal’ test results
B12
level 121 ng/L [120.0 - 900.0]; B12 low normal/borderline (No further action needed) Serum total 25-hydroxy vitamin D level 47 nmol/L [75.0 - 250.0]; Between 25 and 50 nmol/L: Vitamin D insufficiency (Told to take supplements) Also got a text message to lower my cholesterol Do the thyroid
B12
level 121 ng/L [120.0 - 900.0]; B12 low normal/borderline (No further action needed) Serum total 25-hydroxy vitamin D level 47 nmol/L [75.0 - 250.0]; Between 25 and 50 nmol/L: Vitamin D insufficiency (Told to take supplements) Also got a text message to lower my cholesterol Do the thyroid
Bubblesgirl78
in
Thyroid UK
6 months ago
Medichecks results, please advise
Inflammation CRP HS 0.854 mg/L (Range: < 3) Iron Status Ferritin 94.60 ug/L (Range: 30 - 264) Vitamins Folate - Serum 32.2 nmol/L (Range: > 7)
Vitamin
B12
- Active 77.2 pmol/L (Range: 37.5 - 188)
Vitamin
D X 30.7 nmol/L Total 25(OH) vitamin D 50 nmol/L is sufficient in most individuals.
Inflammation CRP HS 0.854 mg/L (Range: < 3) Iron Status Ferritin 94.60 ug/L (Range: 30 - 264) Vitamins Folate - Serum 32.2 nmol/L (Range: > 7)
Vitamin
B12
- Active 77.2 pmol/L (Range: 37.5 - 188)
Vitamin
D X 30.7 nmol/L Total 25(OH) vitamin D 50 nmol/L is sufficient in most individuals.
PotatoFan
in
Thyroid UK
4 months ago
B12 Ampoules back in stock
Panpharma
Vitamin
B12
Depot 1000 µg/ml Injektionslösung, 10 St. Ampullen back in stock at apoheath. Grab them quick🤣
Panpharma
Vitamin
B12
Depot 1000 µg/ml Injektionslösung, 10 St. Ampullen back in stock at apoheath. Grab them quick🤣
Reemy
in
Pernicious Anaemia Society
1 year ago
Negative PA Test - way forward
I had a low
Vitamin
B12
(125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. I had 4 loading doses of b12, followed by a further 2 at my request. I started folate tablets after 2 jabs. I had a IF test which came back negative.
I had a low
Vitamin
B12
(125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. I had 4 loading doses of b12, followed by a further 2 at my request. I started folate tablets after 2 jabs. I had a IF test which came back negative.
Madman070578
in
Pernicious Anaemia Society
5 months ago
Vitamin B12
Should I be expecting my
Vitamin
B12
to be highers? TIA. Ellie
Should I be expecting my
Vitamin
B12
to be highers? TIA. Ellie
EllsBells591
in
Thyroid UK
10 months ago
thoughts on result update
Ferritin. 24.56. (13 to 150). 32.6 (13 to 150)
Vitamin
D. Not done. 50. (50 to 175)
Vitamin
b12
.
Ferritin. 24.56. (13 to 150). 32.6 (13 to 150)
Vitamin
D. Not done. 50. (50 to 175)
Vitamin
b12
.
Auntyp62
in
Thyroid UK
6 months ago
The Royal Society
Interestingly, just stumbled on this : “The Wonderful World of
Vitamin
B12
” https://youtu.be/J64Zl28XZuo
Interestingly, just stumbled on this : “The Wonderful World of
Vitamin
B12
” https://youtu.be/J64Zl28XZuo
Polaris
in
Pernicious Anaemia Society
1 year ago
1 or 2 time a day vit b12 1000 microgram???
Hello dear friends I read here some post that someone is injecting one or two time a day of
vitamin
b12
ampules (1000 microgram or 1 mg). Is it safe to inject such a massive b12 one or two time a day for life???
Hello dear friends I read here some post that someone is injecting one or two time a day of
vitamin
b12
ampules (1000 microgram or 1 mg). Is it safe to inject such a massive b12 one or two time a day for life???
Emiroskui
in
Pernicious Anaemia Society
8 months ago
GP says results are fine
D 63 Serum
vitamin
B12
524 Range: 220 to 700 Serum folate > 20.0 Serum ferritin 11 Range: 10 to 291 Full blood count Total white cell count: 7.9 Range: 4.0 to 11.0 Red blood cell (RBC) count: 4.89 Range: 3.90 to 5.60 Haemoglobin estimation: 147 Range: 115 to 165 Haematocrit: 0.447 Range: 0.370 to 0.470
D 63 Serum
vitamin
B12
524 Range: 220 to 700 Serum folate > 20.0 Serum ferritin 11 Range: 10 to 291 Full blood count Total white cell count: 7.9 Range: 4.0 to 11.0 Red blood cell (RBC) count: 4.89 Range: 3.90 to 5.60 Haemoglobin estimation: 147 Range: 115 to 165 Haematocrit: 0.447 Range: 0.370 to 0.470
ArinEla
in
Thyroid UK
11 days ago
Bang for your buck
B1
Vitamin
B2
Vitamin
B6
Vitamin
B12
Vitamin
C Vitamin D Vitamin E High dose thiamine Vitamin K2 Berries Stem Advanced Support (american Health Limited Focused Ultrasound Mito PQQ Mito_NR Diet Seaweed Also can someone with experience program an artificial intelligence computer to
B1
Vitamin
B2
Vitamin
B6
Vitamin
B12
Vitamin
C Vitamin D Vitamin E High dose thiamine Vitamin K2 Berries Stem Advanced Support (american Health Limited Focused Ultrasound Mito PQQ Mito_NR Diet Seaweed Also can someone with experience program an artificial intelligence computer to
heartinmotion
in
Cure Parkinson's
2 months ago
Any suggestions please.
TSH 1.86 mIU/L (0.27 - 4.2) 40.5%Free T4 (fT4) 16.8 pmol/L (12 - 22) 48.0% Free T3 (fT3) 2.7 pmol/L (3.1 - 6.8) -10.8% T4:T3 Ratio 6.222 Folate - Serum 17.4 ug/L (2 - 20) 85.6%
Vitamin
B12
763 nmol/L (197 - 771) 98.6% Ferritin 40 ug/L (10 - 150) 21.4% Thank you
TSH 1.86 mIU/L (0.27 - 4.2) 40.5%Free T4 (fT4) 16.8 pmol/L (12 - 22) 48.0% Free T3 (fT3) 2.7 pmol/L (3.1 - 6.8) -10.8% T4:T3 Ratio 6.222 Folate - Serum 17.4 ug/L (2 - 20) 85.6%
Vitamin
B12
763 nmol/L (197 - 771) 98.6% Ferritin 40 ug/L (10 - 150) 21.4% Thank you
andreab
in
Thyroid UK
3 months ago
Other blood results
So can I ask, do I just need to work on my
vitamin
D and
B12
? They didn’t test
vitamin
D since it wasn’t that long since it was tested 48 (50-200) Thank you.
So can I ask, do I just need to work on my
vitamin
D and
B12
? They didn’t test
vitamin
D since it wasn’t that long since it was tested 48 (50-200) Thank you.
Purple450
in
Thyroid UK
1 month ago
Is my TSH level at 0.43 considered low.
TSH 01/08/2023 at 13.37 value 0.43 mU/L free t4 17/01/2023 at 08.25am value 15.4 free t3 01/08/2023 at 13.37 value 4 pmol/L Thyroid peroxidase antibody level 539 iu/ml
Vitamin
b12
20/07/2023 at 14.10pm Value 1339pg/mL suspect this is indeed low though Vitamin D 20/07/2023 AT 14.10 pm Value
TSH 01/08/2023 at 13.37 value 0.43 mU/L free t4 17/01/2023 at 08.25am value 15.4 free t3 01/08/2023 at 13.37 value 4 pmol/L Thyroid peroxidase antibody level 539 iu/ml
Vitamin
b12
20/07/2023 at 14.10pm Value 1339pg/mL suspect this is indeed low though Vitamin D 20/07/2023 AT 14.10 pm Value
gerrycrilley1
in
Thyroid UK
6 months ago
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