Search
Search
About
Log in
Join
Experiences with
Mast cell activation syndrome (MCAS)
Posts
Communities
4,433 public posts
Filter results
Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
After months of pain and inconclusive diagnosis by various doctors, I have discovered that those with MCAS (
Mast
Cell
Activation
Syndrome
) as well as those with Hypermobility, get hugely affected by covid infections.
After months of pain and inconclusive diagnosis by various doctors, I have discovered that those with MCAS (
Mast
Cell
Activation
Syndrome
) as well as those with Hypermobility, get hugely affected by covid infections.
Divinesoul
in
Fibromyalgia Action UK
2 months ago
FLARE at 5.25mg??
My
Mast
Cell
Activation
Syndrome
/ Histamine Intolerance / Multiple Chemical Sensitivity issues have been my struggle. And of course trying to get off of the Cortisone. I was convinced that the PMR was in total remission.
My
Mast
Cell
Activation
Syndrome
/ Histamine Intolerance / Multiple Chemical Sensitivity issues have been my struggle. And of course trying to get off of the Cortisone. I was convinced that the PMR was in total remission.
Slosh
in
PMRGCAuk
8 months ago
TSH v low but T4/T3 in range - doc wants to reduce T4
I have Hashimoto’s and another immune-related condition called
Mast
Cell
Activation
Syndrome
, which is quite rare but super involved - the short version is that I’m allergic to many things and have to be super careful to manage food, sleep, stress, exercise, work, avoid perfumes/chemicals etc.
I have Hashimoto’s and another immune-related condition called
Mast
Cell
Activation
Syndrome
, which is quite rare but super involved - the short version is that I’m allergic to many things and have to be super careful to manage food, sleep, stress, exercise, work, avoid perfumes/chemicals etc.
ironchica
in
Thyroid UK
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
*MCAS
LDN is used in
Mast
Cell
Activation
Syndrome
(MCAS) treatment plans. The documentary aims to help educate medical professionals and the public on MCAS, postural orthostatic tachycardia (POTS), and Ehlers-Danlos syndrome. Diagnosis and a multi-prong approach to treatment will be discussed.
LDN is used in
Mast
Cell
Activation
Syndrome
(MCAS) treatment plans. The documentary aims to help educate medical professionals and the public on MCAS, postural orthostatic tachycardia (POTS), and Ehlers-Danlos syndrome. Diagnosis and a multi-prong approach to treatment will be discussed.
Shewulf
Administrator
in
LDN Research Trust
1 year ago
Levothyroxine for Underactive thyroid
I also have Ehlers-Danlos
Syndrome
and
Mast
Cell
Activation
Syndrome
. I am confused what symptoms are connected with Hypothyroidism and what can be attributed to other conditions. Thank you
I also have Ehlers-Danlos
Syndrome
and
Mast
Cell
Activation
Syndrome
. I am confused what symptoms are connected with Hypothyroidism and what can be attributed to other conditions. Thank you
Vallinkinpark
in
Thyroid UK
1 year ago
Low folate struggling to walk
Good evening my folate vit d is low I am struggling to walk 😪 I have horrific joint muscles pain shake weakness I have pin needle type pain in my legs all over my body I am struggling to walk to toilet been stuck in bed for weeks i also have pots
mast
cell
activation
syndrome
.
Good evening my folate vit d is low I am struggling to walk 😪 I have horrific joint muscles pain shake weakness I have pin needle type pain in my legs all over my body I am struggling to walk to toilet been stuck in bed for weeks i also have pots
mast
cell
activation
syndrome
.
Merkat90
in
Pernicious Anaemia Society
1 year ago
Low folate vitamin d
cell
activation
syndrome
and pots also just quick question anyone else has had low folate had these symptoms I can't walk on my feet it agony.
cell
activation
syndrome
and pots also just quick question anyone else has had low folate had these symptoms I can't walk on my feet it agony.
Merkat90
in
The UK Mastocytosis Support Group
1 year ago
diagnosis finally
Apparently I have Pelvic Congestion Syndrome !!!! I’ll take it, if I can get some help 🙄 Anyone else have this? Shceduled for a Caudal epidural anytime soon.
Apparently I have Pelvic Congestion Syndrome !!!! I’ll take it, if I can get some help 🙄 Anyone else have this? Shceduled for a Caudal epidural anytime soon.
Aprilbaby24
in
Pelvic Pain Support Network
2 days ago
Interesting research
Just saw this interesting research on DNA cause of inflammatory bowel disease, but they say it might also apply to autoimmune liver diseases. https://amp.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway They hope treatments will be in use within 5
Just saw this interesting research on DNA cause of inflammatory bowel disease, but they say it might also apply to autoimmune liver diseases. https://amp.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway They hope treatments will be in use within 5
Readlots
in
British Liver Trust
11 days ago
Aside from easing motor symptoms of Parkinson’s disease, deep brain stimulation (DBS) may also slow disease progression
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
Farooqji
in
Cure Parkinson's
16 days ago
COVID between cycles and impact on egg quality ... Any knowledge/ experience?
Hey all - so I was meant to start my next cycle of IVF in 3 weeks time. I have been so healthy; haven't caught a cold or even a sniffle for the past 12 months but have somehow managed to pick up COVID from somewhere. I've had 3 vaccines and COVID once before but am still testing very positive 6 days
Hey all - so I was meant to start my next cycle of IVF in 3 weeks time. I have been so healthy; haven't caught a cold or even a sniffle for the past 12 months but have somehow managed to pick up COVID from somewhere. I've had 3 vaccines and COVID once before but am still testing very positive 6 days
Rubylou01
in
Fertility Network UK
16 days ago
Lixisenatide as a treatment for early Parkinson’s disease progression
In this randomized controlled trial, lixisenatide reduced motor disability progression in Parkinson’s patients. 2. Individuals in the lixisenatide group experienced greater gastrointestinal side effects rates than individuals in the placebo group. Evidence Rating Level: 1 (Excellent) https:/
In this randomized controlled trial, lixisenatide reduced motor disability progression in Parkinson’s patients. 2. Individuals in the lixisenatide group experienced greater gastrointestinal side effects rates than individuals in the placebo group. Evidence Rating Level: 1 (Excellent) https:/
Farooqji
in
Cure Parkinson's
24 days ago
Stimulation period and exercise
Hello everyone,I am doing IVF through the NHS and I am now waiting for the next stage which is ovarian stimulation. The doctor told me in the first appointment that during stimulation I won't be able to do any exercise because of the ovarian torsion. I understood this was for two weeks but I have been
Hello everyone,I am doing IVF through the NHS and I am now waiting for the next stage which is ovarian stimulation. The doctor told me in the first appointment that during stimulation I won't be able to do any exercise because of the ovarian torsion. I understood this was for two weeks but I have been
Amarillo-
in
Fertility Network UK
26 days ago
Thyroid Dysfunction and PD
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
Dabaa
in
Cure Parkinson's
27 days ago
MTHFR and Lupus
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
DogHospiceMom
in
LUPUS UK
1 month ago
Nafarelin/Synarel down reg - when did you get period?
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Prettypenny1
in
Fertility Network UK
1 month ago
Heartburn
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
Whippetmama
in
Restless Legs Syndrome
1 month ago
Can you help regarding symptoms?
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
FreeWolf
in
PMRGCAuk
1 month ago
Light compression gloves
Hi everyone, does anyone have any recommendations for light compression gloves? Not the type with splint inserted. I have a swelling in my right hand (at the outer side below my wrist joint) which is very painful, am waiting to see my RA specialist but haven't received the appointment yet. I take 20mg
Hi everyone, does anyone have any recommendations for light compression gloves? Not the type with splint inserted. I have a swelling in my right hand (at the outer side below my wrist joint) which is very painful, am waiting to see my RA specialist but haven't received the appointment yet. I take 20mg
Manzana1
in
NRAS
2 months ago
Update
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
Numptybrain
in
PMRGCAuk
2 months ago
1
2
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1415 results
Fertility Network UK
360 results
Thyroid UK
348 results
View top 10 communities
Sort by
Most Relevant
Newest