PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

Should I up my dose?

On Wednesday I’m starting a four day bike ride called the King Alfred’s Way - a 350km off road ride in Wessex. I’m currently relatively symptom free but wonder...

On Wednesday I’m starting a four day bike ride called the King Alfred’s Way - a ...

Mervetheswerve

•2 days ago

57 Replies

GCA tapering advice

Hi, I am relatively new to GCA and feeling very at sea with it. I’m very grateful for all the replies I received to my previous post. I was tapering Pred...

Hi, I am relatively new to GCA and feeling very at sea with it. I’m very gratef...

Velofan

•2 days ago

46 Replies

Is it back? 🙈

Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar...

Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. ....

Croft9232

•1 day ago

31 Replies

Stereotypes, getting older and illness

Hi, I just had a thought about the psychological effects of experiencing a chronic illness. When I experienced 3 months of undiagnosed PMR 2 years ago the...

Hi, I just had a thought about the psychological effects of experiencing a chron...

Animalover65

•4 days ago

53 Replies

To TCZ or not to TCZ??

Hi everybody,just need a bit of advice/reassurance from the forum if I may? Rheumy is having a n ENRAD meeting next week to discuss my case and if I can have...

Hi everybody,just need a bit of advice/reassurance from the forum if I may? Rheu...

Angelsmummy

•5 hours ago

12 Replies

Pred reduction and feelings of low blood sugar

'Morning everyone! I am using DL's slow taper and have reduced to the dose which has caused flares in the past - between 5mg and 7mg. I have been on 6mg for...

'Morning everyone! I am using DL's slow taper and have reduced to the dose whic...

Miserere

•8 days ago

67 Replies

Prednisone vs Acterma with steroid induced diabetes. Really terrified

Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to...

Update: April 2024 was scheduled for eye surgery for Strabismus which was cancel...

JanetGarrettN

•7 days ago

58 Replies

Heebeejeebies on low pred??

I have been down to 1mg of prednisone since January and toggling back and forth between 1 and 1/2 mg since April. But I feel mentally out of whack. Paranoid....

I have been down to 1mg of prednisone since January and toggling back and forth ...

Greytree

•8 days ago

61 Replies

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica,...

I arrived at my appointment for Covid vax this morning, and told the truth, the...

Pixix

•22 days ago

100 Replies

Coopersmummy7

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long...

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and f...

Angelsmummy

•19 days ago

82 Replies

Skin problems at low dose

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though attempts to get below this are so far not working but I am being patient. However...

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though at...

Waves2

•10 days ago

51 Replies

medical evidence/advice re. tapering at lower doses (below7mg)

Can any of you lovely people give me some references about tapering at lower doses and how symptoms not blood results should be the priority. I want something...

Can any of you lovely people give me some references about tapering at lower dos...

Mfaepink1973

•2 days ago

24 Replies

adrenal insuffiency

using dsns I’ve been at 4 mg for about 3 weeks. The last few days I felt weak, dizzy, lightheaded, and had diarrhea; couldn’t really function. Dr. Google...

using dsns I’ve been at 4 mg for about 3 weeks. The last few days I felt weak, ...

Twopies

•2 days ago

23 Replies

Another injury, wrist this time

Just the other day, for unknown reason, memory of an old acquaintance popped into my mind, specifically her frequent use of the expression, "What fresh hell is...

Just the other day, for unknown reason, memory of an old acquaintance popped int...

HeronNS

•12 days ago

52 Replies

METHOTREXATE

Hi I wrote a couple of weeks ago but I am looking for comments on the use of this drug for PMR.Saw Rhemy 2 weeks ago, he has recommended that after 7 years...

Hi I wrote a couple of weeks ago but I am looking for comments on the use of t...

SRIXON

•3 days ago

23 Replies

A&E AGAIN!!

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on...

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks...

Kendrew

•16 days ago

58 Replies

Ibuprofen gel/cream

Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck,...

Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus ...

random901

•1 day ago

17 Replies

Turmeric Drink Shots

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... I had my first one at about noon and the aching and pains have gone. Just that...

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... ...

discoballs

•17 days ago

59 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•23 days ago

66 Replies

Testosterone Replacement Therapy

Hi all, this thread is really aimed at male PMR patients who are receiving or who are considering Testosterone Replacement Therapy (that's not to say that...

Hi all, this thread is really aimed at male PMR patients who are receiving or w...

OilyWiggles

•1 day ago

16 Replies

Cortisol issues

I'm fortunate in having a good GP who is very concerned about my total exhaustion and inability to cope with everyday life. She wrote to my rheumy who...

I'm fortunate in having a good GP who is very concerned about my total exhaustio...

Sammo47

•28 days ago

71 Replies

Disappointed and worried

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year...

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went thr...

Cooper02

•24 days ago

64 Replies

Working

Is it possible to continue living normally with PMR as before? Work, light sports training? My rheumy says I can continue to work 80% as a clerk and ride my...

Is it possible to continue living normally with PMR as before? Work, light sport...

Swizzly

•14 days ago

49 Replies

Covid Vax and age

I’m in the US and have lupus and many other disqualifying illnesses 😊. I just read a thread in which folks thought their PMR began with Covid jabs. After 3...

I’m in the US and have lupus and many other disqualifying illnesses 😊. I just ...

MrsMarigold

•4 days ago

26 Replies

Adrenal Problems I Think.

Hi everyone. I am in my 2nd round of PMR and have been on Pred since last July. Doc has got me reducing by 1mg a month and now down to 2mg. The trouble is, I...

Hi everyone. I am in my 2nd round of PMR and have been on Pred since last July. ...

Attic

•5 hours ago

6 Replies

Thoughts please on dissolving Prednisolone in water to drink instead of swallowing whole.

I only spotted this yesterday on the information in the Prednisolone tablets. In "Method of administration" section it says: "The tablets can be swallowed...

I only spotted this yesterday on the information in the Prednisolone tablets. In...

Positive__

•24 days ago

57 Replies

Meniscus tear/PMR flare update

I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I had requested more 5mg pred tablets on the MyGP app and last Friday got a call...

I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I ...

Mfaepink1973

•3 days ago

21 Replies

Is it a flare or not??

In August I will have had PMR for 4 years but I still struggle knowing whether I’m flaring or not. I have trouble reducing my Prednisolone dose despite doing...

In August I will have had PMR for 4 years but I still struggle knowing whether I...

Tiggy70

•1 month ago

63 Replies

Turmeric and a Flare and Drama + Thoughts

Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges...

Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some succe...

discoballs

•10 days ago

35 Replies

Finally off Prednisolone and methotrexate

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly after was prescribed Methotrexate. I am pleased to say that finally I have been...

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly ...

Sorop

•1 month ago

64 Replies

See all posts

Write a post or ask a question

Pinned Posts

See all

Patience

A Rough Guide to PMR GCA uk history : so far May 2020 - by a...

PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/...

Message from PMRGCAuk Admin

Community Guidelines for our PMRGCAuk HealthUnlocked Forum

About us

Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide informati...

Support us!

All our services to PMR and GCA sufferers, and their families, are offered free of charge. But we are a very small charity and need all the help we can get to carry on our work.

Donate now