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Sjogrens - eye pain/migraine
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
Texgirl
in
NRAS
6 months ago
central sensitivity syndrome
Has anyone heard of CSS. My dr said this can cause restless legs and stems from childhood trauma. Sort of crappy to think that yes, my childhood was super traumatic and potentially from that I still need to suffer.
Has anyone heard of CSS. My dr said this can cause restless legs and stems from childhood trauma. Sort of crappy to think that yes, my childhood was super traumatic and potentially from that I still need to suffer.
Jenevewill
in
Restless Legs Syndrome
6 months ago
Hi all. I have had concussion since August, after a fall when I banged my head. Although improving, I have a problem with bright light/glare
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
Braininfo
in
Headway
6 months ago
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Interesting info
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
wilsond
in
AF Association
6 months ago
PA COVID vaccine and atherosclerosis
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
Sissiotto
in
Pernicious Anaemia Society
6 months ago
I have some questions that maybe someone can help me with.
Hi! I have recently had some bloodwork and some new things popped up - and I was wondering if it is lupus related, or something entirely on its own. I am currently on Coumadin (Warfarin) for several pulmonary embolisms, and now my hemoglobin is high and my erythrocytes are high. Also, I am now
Hi! I have recently had some bloodwork and some new things popped up - and I was wondering if it is lupus related, or something entirely on its own. I am currently on Coumadin (Warfarin) for several pulmonary embolisms, and now my hemoglobin is high and my erythrocytes are high. Also, I am now
Willow7733
in
LUPUS UK
6 months ago
GCA and Vision update
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
Lenore58
in
PMRGCAuk
6 months ago
Cataract surgery advice please.
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
Quiet_Lin
in
Glaucoma UK
6 months ago
Possible lung metastasis
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
Bettyxxx
in
My Ovacome
4 months ago
Hair loss while tapering Prednisone
Hi. Yet another issue. My hair has started falling out in clumps. I am devastated. I had some loss when I was on Pred at different times over the last 5 years especially in the beginning. I began tapering to 2 mg then 1 in late spring and maintaining that except with some flares when I took more. This
Hi. Yet another issue. My hair has started falling out in clumps. I am devastated. I had some loss when I was on Pred at different times over the last 5 years especially in the beginning. I began tapering to 2 mg then 1 in late spring and maintaining that except with some flares when I took more. This
bluegirl7
in
PMRGCAuk
6 months ago
Indomethacin - resenisitize to Enza
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
Hidden
in
Fight Prostate Cancer
10 months ago
Post Pacemaker
Hi Everyone need some information please. Going into week 6 of recovering from Pace Maker operation on 27th October. Its no picnic is it! Anyway still lots of bruising from being on warfarin I believe. Prior to op I had fallen over several times broke my wrist etc. Hence decision by cardiologist to
Hi Everyone need some information please. Going into week 6 of recovering from Pace Maker operation on 27th October. Its no picnic is it! Anyway still lots of bruising from being on warfarin I believe. Prior to op I had fallen over several times broke my wrist etc. Hence decision by cardiologist to
CHRISAF18
in
AF Association
6 months ago
Bronchiectasis.. just had an ear operation.. finding pressure of using aerobika and chest clearance difficult .. any advice ??
Any advice for chest clearance after a lengthy operation out there please . Am home but Ear still bleeding a little I’ve not missed a days chest clearance in nearly 3 years and finding it difficult / worrying to put pressure into my aerobika & doing autogenic drainage for fear it may cause my ear
Any advice for chest clearance after a lengthy operation out there please . Am home but Ear still bleeding a little I’ve not missed a days chest clearance in nearly 3 years and finding it difficult / worrying to put pressure into my aerobika & doing autogenic drainage for fear it may cause my ear
Phill1
in
Lung Conditions Community Forum
6 months ago
Starbursts from new glasses driving me insane. Can anyone help?
Hi, I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the Transitions because I didn't like the frames, but right at the outset I noticed I was suddenly getting these epic starbursts on lights (with both pairs), particularly in the distance
Hi, I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the Transitions because I didn't like the frames, but right at the outset I noticed I was suddenly getting these epic starbursts on lights (with both pairs), particularly in the distance
Chancery
in
Anxiety Support
6 months ago
Starburst problem with new specs
Hi, I don't have glaucoma, but I'm hoping someone might be able to help me here as I have been Googling my issue all night. So, sorry if this is completely off-topic for you guys! I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the
Hi, I don't have glaucoma, but I'm hoping someone might be able to help me here as I have been Googling my issue all night. So, sorry if this is completely off-topic for you guys! I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the
Chancery
in
Glaucoma UK
6 months ago
What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
4 months ago
Surgery and immuno suppressants
Hi everyone. I am due to have minor surgery on my wrist and have been asked by my surgeon to cease taking mycophenolate for a week before and a week after my operation (I presumed because of possible risk of infection?). I spoke to my rheumatologist about this and she considered it unnecessary to stop
Hi everyone. I am due to have minor surgery on my wrist and have been asked by my surgeon to cease taking mycophenolate for a week before and a week after my operation (I presumed because of possible risk of infection?). I spoke to my rheumatologist about this and she considered it unnecessary to stop
cheeselover342
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Cimetidine
Hi, my doctor prescribed Cimetidine for my painful bladder, I have the impression that it exacerbates restless leg syndrome. I'd like to know your opinion before taking this medication. Thanks in advance.
Hi, my doctor prescribed Cimetidine for my painful bladder, I have the impression that it exacerbates restless leg syndrome. I'd like to know your opinion before taking this medication. Thanks in advance.
halperinchen
in
Restless Legs Syndrome
6 months ago
Using ChatGPT to help us understand tinnitus. Thoughts? Here's an AI Assistant I've created for understanding Tinnitus
Just a topic for debate but I'm interested in your thoughts and maybe your direct experiences with AI to understand tinnitus. I'm assuming everyone has heard about AI and ChatGPT and other Generative AI tools. GPT is short for Generative Predictive Text. It is what it states (a convincing) prediction
Just a topic for debate but I'm interested in your thoughts and maybe your direct experiences with AI to understand tinnitus. I'm assuming everyone has heard about AI and ChatGPT and other Generative AI tools. GPT is short for Generative Predictive Text. It is what it states (a convincing) prediction
daverussell
in
Tinnitus UK
6 months ago
Lipoid pneumonia
Earlier this year I had serious nose bleeds resulting in hospital admissions and cautery. Subsequently seen by ENT consultant who advised daily insertion of Vaseline into nostrils to prevent them drying out and possible further bleeds. Since then I found on the internet (various reputable sites)
Earlier this year I had serious nose bleeds resulting in hospital admissions and cautery. Subsequently seen by ENT consultant who advised daily insertion of Vaseline into nostrils to prevent them drying out and possible further bleeds. Since then I found on the internet (various reputable sites)
FormerT
in
Lung Conditions Community Forum
6 months ago
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