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I was advised to ring if not heard about Allele burden results in 2 weeks. just had a call a week after test . Allele burden 5. Which is good… We discussed my concern. About elevated. LDH . Seems the my chart lay out causes alarm with lots of patients as it appears to be highest result (yellow
I was advised to ring if not heard about Allele burden results in 2 weeks. just had a call a week after test . Allele burden 5. Which is good… We discussed my concern. About elevated. LDH . Seems the my chart lay out causes alarm with lots of patients as it appears to be highest result (yellow
Mostew
in
MPN Voice
3 months ago
Not at the patients demand!
I have to share this anecdote. It makes me laugh, cry and despair in equal measure. After 8 crappy years with thyroid symptoms getting worse I put myself on T3 in November. On day 5 I woke up and said the words "I feel better" before my conscious had even engaged my brain. 4/5 months later I can sit
I have to share this anecdote. It makes me laugh, cry and despair in equal measure. After 8 crappy years with thyroid symptoms getting worse I put myself on T3 in November. On day 5 I woke up and said the words "I feel better" before my conscious had even engaged my brain. 4/5 months later I can sit
CapnM
in
Thyroid UK
3 months ago
A good day today
Wanted to share some good news, having asked for help and advice so much over the last 5 years. Dad had initial PSA of 17 and it was believed localised (2c) and received surgery in June 2018. Failed with a low score of 0.08, upgrade to 3a and subsequently received radiation in January 2019. 37 sessions
Wanted to share some good news, having asked for help and advice so much over the last 5 years. Dad had initial PSA of 17 and it was believed localised (2c) and received surgery in June 2018. Failed with a low score of 0.08, upgrade to 3a and subsequently received radiation in January 2019. 37 sessions
k538
in
Prostate Cancer Network
10 months ago
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Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
6 months ago
Daughter, still really not great and cannot get through to medics
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Polo22
in
Pernicious Anaemia Society
3 months ago
Intermittent fasting affecting thyroid values
For the last few months (around 4), I’ve been doing intermittent fasting, because I’ve read about the benefits of taking a break from eating. I eat for about 8 hours and fast for around 16 hours. My latest thyroid test results have shown a slight decrease in both FT4 and FT3. I’ve read somewhere that
For the last few months (around 4), I’ve been doing intermittent fasting, because I’ve read about the benefits of taking a break from eating. I eat for about 8 hours and fast for around 16 hours. My latest thyroid test results have shown a slight decrease in both FT4 and FT3. I’ve read somewhere that
Alex_p
in
Thyroid UK
3 months ago
Hillcross thyroxine
I have a note on the chemists file not to dispense Teva thyroxine. I recently got a prescription filled and I have started feeling extremely unwell with headaches, stomach upsets and feeling lightheaded. The only difference has been this change, when I have checked the box the underside of the pill
I have a note on the chemists file not to dispense Teva thyroxine. I recently got a prescription filled and I have started feeling extremely unwell with headaches, stomach upsets and feeling lightheaded. The only difference has been this change, when I have checked the box the underside of the pill
TVOReason
in
Thyroid UK
3 months ago
thyroid glandulars
Does anyone use thyroid glandulars for optimal effects instead of levothyroxin and T3?
Does anyone use thyroid glandulars for optimal effects instead of levothyroxin and T3?
Miss81
in
Thyroid UK
3 months ago
Just been told I have two years to live.
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
ChristopherM123
in
Advanced Prostate Cancer
10 months ago
New Rheumatology Referral - hope it comes through quickly!
Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recently been diagnosed with fibromyalgia due to ongoing raised glands, pain & fatigue without infection/ inflammation. This was after seeing a rheumatologist who did a thorough examination, in-depth interview and blood/urine tests
Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recently been diagnosed with fibromyalgia due to ongoing raised glands, pain & fatigue without infection/ inflammation. This was after seeing a rheumatologist who did a thorough examination, in-depth interview and blood/urine tests
Purple_Badgers
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
T3 medication lowering FT4 - causing worsening of symptoms
When taking T3 medication (plus T4) it drops your FT4. Has anyone found that this drop in FT4 made them feel worse ie feeling more depressed and fatigue/energy even worse (or have you read about this happening to anyone)? Did you have to increase your T4 medication to get your FT4 up higher in the
When taking T3 medication (plus T4) it drops your FT4. Has anyone found that this drop in FT4 made them feel worse ie feeling more depressed and fatigue/energy even worse (or have you read about this happening to anyone)? Did you have to increase your T4 medication to get your FT4 up higher in the
PinkSkittles
in
Thyroid UK
3 months ago
Ten Months After All Treatments Ended
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
TottenhamMan
in
Advanced Prostate Cancer
10 months ago
T3 and taking supplements
Hello you clever people! I'm sure this question has been answered before but since started taking combo of T4/T3 in Dec 23 just wondering when best to take my supplements. I used D3/K2 better You spray+also take B complex, magnesium, selenium, zinc+cod Liver oil. I take T3 with Levo@7am then T3 at 2pm
Hello you clever people! I'm sure this question has been answered before but since started taking combo of T4/T3 in Dec 23 just wondering when best to take my supplements. I used D3/K2 better You spray+also take B complex, magnesium, selenium, zinc+cod Liver oil. I take T3 with Levo@7am then T3 at 2pm
Lottyplum
in
Thyroid UK
3 months ago
I have my GP appt to discuss getting a diagnosis..... But do I ask for ANA tedt or referral to specialist???
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Gingernat20
in
LUPUS UK
3 months ago
Ferritin
Please can you remind me of lowest Ferritin levels acceptable for RLS sufferers. My last reading was 60, having gradually come down from 400 following an infusion. I had to fight for that infusion(level was then in the 20s.) I only managed to get it because the mother of a locum I saw was high up
Please can you remind me of lowest Ferritin levels acceptable for RLS sufferers. My last reading was 60, having gradually come down from 400 following an infusion. I had to fight for that infusion(level was then in the 20s.) I only managed to get it because the mother of a locum I saw was high up
NonnieJ
in
Restless Legs Syndrome
3 months ago
Endo declined request to up T3
Results 14/02/24 Free T4 (fT4) 16.7 pmol/L (12 - 22) 47.0% Free T3 (fT3) 4.9 pmol/L (3.1 - 6.8) 48.6% I took slowDragon advice, told Endo some improvment but still symptoms & asked for slight increase of 5mg T3, Endo replied Thyroid function normal continue on 10mg Liothyronine. I plan to reply
Results 14/02/24 Free T4 (fT4) 16.7 pmol/L (12 - 22) 47.0% Free T3 (fT3) 4.9 pmol/L (3.1 - 6.8) 48.6% I took slowDragon advice, told Endo some improvment but still symptoms & asked for slight increase of 5mg T3, Endo replied Thyroid function normal continue on 10mg Liothyronine. I plan to reply
Klawd
in
Thyroid UK
3 months ago
endocrinologist
hello Does anyone know of a good endocrinologist in the UK who’s open to prescribing NDT please? Reasonably priced with a holistic understanding of health. I’ve always had the thought that I might feel better on something else than levothyroxine only. Took NDT years ago and felt much better, also
hello Does anyone know of a good endocrinologist in the UK who’s open to prescribing NDT please? Reasonably priced with a holistic understanding of health. I’ve always had the thought that I might feel better on something else than levothyroxine only. Took NDT years ago and felt much better, also
Sonicfairydust
in
Thyroid UK
3 months ago
nubequa
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
JolleySprings
in
Advanced Prostate Cancer
10 months ago
Please can someone pm me reliable T3 sources
I’m coming to the end of a supply of T3 I bought on holiday a couple of years ago. Please can someone PM me with where I can purchase T3 online. Thank you in advance
I’m coming to the end of a supply of T3 I bought on holiday a couple of years ago. Please can someone PM me with where I can purchase T3 online. Thank you in advance
Lulu_65
in
Thyroid UK
3 months ago
negative test but confusing clinic advice.
We had our 6th cycle this month. A FET with grade A embryo. I tested 11 days post transfer it was BFN. I continued to test 12 days and 13 days post transfer and it was BFN on a home urine test. I contacted the clinic to explain that we were negative and they said because I haven’t seen any period
We had our 6th cycle this month. A FET with grade A embryo. I tested 11 days post transfer it was BFN. I continued to test 12 days and 13 days post transfer and it was BFN on a home urine test. I contacted the clinic to explain that we were negative and they said because I haven’t seen any period
BethanyDavey
in
Fertility Network UK
3 months ago
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