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Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
2 months ago
Adding more T3? or keep as is?
Hello All, I am looking to see any suggestions regarding adding more T3 to my current regimen. I am on 175 Tirosint T4 and 10mcg T3; I have Hashimoto’s and have been working on my iron by adding iron bisglycinate, which has helped as I am not dizzy, lightheaded, and have more focus. I also noticed
Hello All, I am looking to see any suggestions regarding adding more T3 to my current regimen. I am on 175 Tirosint T4 and 10mcg T3; I have Hashimoto’s and have been working on my iron by adding iron bisglycinate, which has helped as I am not dizzy, lightheaded, and have more focus. I also noticed
Kava3
in
Thyroid UK
3 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
2 months ago
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Pregnant?!
So we decided to start trying for a baby. Having T1D, endometriosis and adenomyosis, I researched everything from surrogacy to IVF fully expecting this to be impossible for us. This morning I decided to take a random pregnancy test (I don’t seem to have menstrual cycles presently) and OMG it was positive
So we decided to start trying for a baby. Having T1D, endometriosis and adenomyosis, I researched everything from surrogacy to IVF fully expecting this to be impossible for us. This morning I decided to take a random pregnancy test (I don’t seem to have menstrual cycles presently) and OMG it was positive
Aardvarks
in
Endometriosis UK
5 months ago
positive test
hi everyone I have just tested positive for genetic haemochromatosis. I have 2 genes. I know nothing about this condition.my blood results was not that high. But had many symptoms. My brother tested positive so GP did genetic test. I don’t know what is ahead of me but I am glad I have a diagnosis
hi everyone I have just tested positive for genetic haemochromatosis. I have 2 genes. I know nothing about this condition.my blood results was not that high. But had many symptoms. My brother tested positive so GP did genetic test. I don’t know what is ahead of me but I am glad I have a diagnosis
Jojo5860
in
Haemochromatosis Society UK
5 months ago
Adding T3
Hi everyone, I decided to trial a little T3(which I received today) to add to my daily levo dose of 125mcg.I've been on every dose of Levo from 100 to 150 but T3 levels don't change much and though I'm greatly improved a few hypo symptoms linger about.The T3 are 25mcg and I was thinking of starting with
Hi everyone, I decided to trial a little T3(which I received today) to add to my daily levo dose of 125mcg.I've been on every dose of Levo from 100 to 150 but T3 levels don't change much and though I'm greatly improved a few hypo symptoms linger about.The T3 are 25mcg and I was thinking of starting with
SovietSong
in
Thyroid UK
5 months ago
advice please
I posted before my trial off B12 and now I’m posting recent bloods and diary of symptoms. I hope that someone can look over them to help me. I fear that they aren’t going to reinstate my b12 injections. hope it all makes sense History Diverticulitis diagnosed 2018 Hashimoto’s diagnosed 2019
I posted before my trial off B12 and now I’m posting recent bloods and diary of symptoms. I hope that someone can look over them to help me. I fear that they aren’t going to reinstate my b12 injections. hope it all makes sense History Diverticulitis diagnosed 2018 Hashimoto’s diagnosed 2019
Fluffyone
in
Pernicious Anaemia Society
5 months ago
Increasing Levo but not feeling great
hellooooo I've been having some trouble with increasing my levothyroxine lately and wondered if you could help please? I've been taking levothyroxine for about 4 years roughly and it's very slowly been increasing (as expected). I started on 25, then 50, then I was on 75 for about two and a half
hellooooo I've been having some trouble with increasing my levothyroxine lately and wondered if you could help please? I've been taking levothyroxine for about 4 years roughly and it's very slowly been increasing (as expected). I started on 25, then 50, then I was on 75 for about two and a half
Hidden
in
Thyroid UK
2 months ago
looking for answers about thyroid and adrenal
I have very low cortisol all day from four point saliva test and suffering from adrenal fatigue. I’m on thyroid medication as well. Also, on bio identical hormones , progesterone 225 mg. I feel hypothyroid and my Free T3 is low. I waited for a couple of months to treat adrenal but cortisol level
I have very low cortisol all day from four point saliva test and suffering from adrenal fatigue. I’m on thyroid medication as well. Also, on bio identical hormones , progesterone 225 mg. I feel hypothyroid and my Free T3 is low. I waited for a couple of months to treat adrenal but cortisol level
MeMe1970
in
Thyroid UK
2 months ago
Anyone struggle to get T3 particular the morning side brand??
Does anyone struggle to get T3 on the NHS particularly the morningside brand?
Does anyone struggle to get T3 on the NHS particularly the morningside brand?
ThyroidObsessed
in
Thyroid UK
5 months ago
sigmapharm T3
Has anyone had any issues with this brand? I only ask as the last few scripts have been sigmapharm 20mcg rather than Mercury, and it’s taken me a few months to work through supplies I had until I’ve been using that exclusively. Meantime I’ve had a random “high” and now feeling very low (as posted recently
Has anyone had any issues with this brand? I only ask as the last few scripts have been sigmapharm 20mcg rather than Mercury, and it’s taken me a few months to work through supplies I had until I’ve been using that exclusively. Meantime I’ve had a random “high” and now feeling very low (as posted recently
Murphysmum
in
Thyroid UK
5 months ago
Latest blood results
Hi everyone, sorry have not been here for some time , have had a lot of unresolved health issues, am fighting with NHS and have been for a long time now , am still battling Sarcoidosis and am not being listened to by doctors and gp , but as its autoimmune and not thyroid related , can't go into it here
Hi everyone, sorry have not been here for some time , have had a lot of unresolved health issues, am fighting with NHS and have been for a long time now , am still battling Sarcoidosis and am not being listened to by doctors and gp , but as its autoimmune and not thyroid related , can't go into it here
Sweetpea1157
in
Thyroid UK
2 months ago
Iron, estrogen & RLS
Just wondering if anyone is aware of any connection between iron & estrogen (from an RLS perspective)? I'm a 73 year-old male, and I've had high-ish estrogen levels for at least the last 7 years (42-49; normal level should be below 41). I think there is some correlation between high estrogen and high
Just wondering if anyone is aware of any connection between iron & estrogen (from an RLS perspective)? I'm a 73 year-old male, and I've had high-ish estrogen levels for at least the last 7 years (42-49; normal level should be below 41). I think there is some correlation between high estrogen and high
707twitcher
in
Restless Legs Syndrome
5 months ago
Advice plesse t3 trial
Can anyone add any advice please. I have been on a trial of T3 thybon henning for seven weeks 5mcg twice daily 7am and 3pm. Plus 75mcg of T4 Accord at 7am.Ive been doing ok but still struggling with sleep, constipation and lack of energy. Bloods taken as advised by private endo morning before taking
Can anyone add any advice please. I have been on a trial of T3 thybon henning for seven weeks 5mcg twice daily 7am and 3pm. Plus 75mcg of T4 Accord at 7am.Ive been doing ok but still struggling with sleep, constipation and lack of energy. Bloods taken as advised by private endo morning before taking
Soaping
in
Thyroid UK
2 months ago
ERFA vs Thyroid S
Hi Folks.Would people say that ERFA has higher percentages of T4 and T3 than in Thyroid S generally? I am presuming it's purer as there are less binders, fillers and chemicals in the ERFA. If anyone has switched from Thyroid S to ERFA, any advice on dosing levels (eg. had to increase or decrease, symptoms
Hi Folks.Would people say that ERFA has higher percentages of T4 and T3 than in Thyroid S generally? I am presuming it's purer as there are less binders, fillers and chemicals in the ERFA. If anyone has switched from Thyroid S to ERFA, any advice on dosing levels (eg. had to increase or decrease, symptoms
Hidden
in
Thyroid UK
5 months ago
Update to last post.
hi everyone I thought I would give you a update on my last post. Thank you to all that posted it really helped. I have now had an ultrasound on my neck lumps. I was told I had a very small thyroid and this happens when you have been on Levo for so long (30 years) I’ve never heard of this, has anyone
hi everyone I thought I would give you a update on my last post. Thank you to all that posted it really helped. I have now had an ultrasound on my neck lumps. I was told I had a very small thyroid and this happens when you have been on Levo for so long (30 years) I’ve never heard of this, has anyone
irishacres
in
Thyroid UK
5 months ago
Help pls! Feeling very ill !
Hi all, my previous post about liquid thyrox was failed at the first try, split doses..it hit me even harder..so scared had to stop right away!! This test was on 16 Jan 24 was on 5 days 100mg + 2 days 75mg TSH too low 0.07.. as Im losing too much weight (~10 kg) after foods poison then seen nutritionist
Hi all, my previous post about liquid thyrox was failed at the first try, split doses..it hit me even harder..so scared had to stop right away!! This test was on 16 Jan 24 was on 5 days 100mg + 2 days 75mg TSH too low 0.07.. as Im losing too much weight (~10 kg) after foods poison then seen nutritionist
Snqanq
in
Thyroid UK
2 months ago
Really struggling
I have not been able to take thyroxine when I was diagnosed in March 2021, ended up on low FODMAP and with a homeopath and naturopath but went from 9 st 5 to 7 stone 11 when doctors got concerned. Every time I tried to include a food back in diet I was worse. Started thyroxine liquid in September 2023
I have not been able to take thyroxine when I was diagnosed in March 2021, ended up on low FODMAP and with a homeopath and naturopath but went from 9 st 5 to 7 stone 11 when doctors got concerned. Every time I tried to include a food back in diet I was worse. Started thyroxine liquid in September 2023
Da52
in
Thyroid UK
5 months ago
Chronic Hashimotos and long term side effects
Hi, I was diagnosed with Hashimotos 41 years ago after 6 years of feeling awful. A locum GP spotted a goitre in my throat as I was talking to him. I have been on 100 mcg of Thyroxine ever since. Now I am 66 . I have always suffered from hypoglycaemia-type symptoms after any type of exercise (even
Hi, I was diagnosed with Hashimotos 41 years ago after 6 years of feeling awful. A locum GP spotted a goitre in my throat as I was talking to him. I have been on 100 mcg of Thyroxine ever since. Now I am 66 . I have always suffered from hypoglycaemia-type symptoms after any type of exercise (even
HeartofApple
in
Thyroid UK
5 months ago
Please enlighten me!!!
I have not had labs since 2023 and needed new RX. The following are results from 4/11 at which time I had not taken any thyroid meds for one week. I had really been concerned about the possibility of heart issues due to over 6 months of extreme fatigue, inability to do even light excercise, shortness
I have not had labs since 2023 and needed new RX. The following are results from 4/11 at which time I had not taken any thyroid meds for one week. I had really been concerned about the possibility of heart issues due to over 6 months of extreme fatigue, inability to do even light excercise, shortness
milkgoat
in
Thyroid UK
1 month ago
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