Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,470 members • 38,421 posts

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losing weight

Hi all, I know the usual gripe is about gaining weight on pred, and certainly the first time round I gained a huge amount which just wouldn’t shift. This time...

Hi all, I know the usual gripe is about gaining weight on pred, and certainly t...

artisam

•2 hours ago

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decrease in Pred after hospital admission

I had been admitted via A&E to hospital with a small rupture to the large intestine and diverticulitis flare, it was a rough time and on lots of meds to...

I had been admitted via A&E to hospital with a small rupture to the large intest...

Crwbin1

•2 hours ago

1 Reply

PMR flare?

Good morning ....my saga with rheumatologist and strange symptoms continue.I was succesfully tapering Pred got right down to 17.5mg, after a few attempts and...

Good morning ....my saga with rheumatologist and strange symptoms continue.I was...

Den73

•3 hours ago

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Post Moderna covid vaccination

I had my covid vaccination just over a week ago, it was Moderna, my first time for this brand. I had been feeling really great. However I now feel dreadful,...

I had my covid vaccination just over a week ago, it was Moderna, my first time ...

KASHMIRI1

•5 hours ago

2 Replies

GCA dizziness

hello , I am asking this question to help my brother who has just been diagnosed with GCA. He had the classic symptoms so was put on 50 prednisone daily. He is...

hello , I am asking this question to help my brother who has just been diagnosed...

Chopin002

•8 hours ago

4 Replies

Rheumatologist appointment

After seeing the doctor today for the first visit, I would like to get the thoughts of some of the knowledgeable people on this forum. He didn’t rule out PMR,...

After seeing the doctor today for the first visit, I would like to get the thoug...

Aqua47

•10 hours ago

2 Replies

GCA-Diagnosis

So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with...

So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went...

LRevell

•13 hours ago

1 Reply

Hello methtextrate

So another visit to eye clinic and AGAIN they are going to drop my pred...BUT due to oral thrush. and the other flipping side effects the opto lady said she...

So another visit to eye clinic and AGAIN they are going to drop my pred...BUT d...

Alliekat65

•14 hours ago

15 Replies

Hair loss

I am at 8.5 mg of prednisone after starting on 20 mg on September 2023. I have lost half the volume of my hair. (gauged by the thickness of my pony tail now...

I am at 8.5 mg of prednisone after starting on 20 mg on September 2023. I have ...

proactive

•16 hours ago

13 Replies

Flares trying to get from 9 mg to 8 mg

I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and have tapered down to 9 with just one flare. I did a 5 week taper March 1st,...

I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and h...

proactive

•16 hours ago

9 Replies

What to do

Posted lately about shoulder pain .just wondering if you could have chronic pain in upper arms only in PMR . Well slight niggles in back and knees but not...

Posted lately about shoulder pain .just wondering if you could have chronic pain...

daisylazy

•16 hours ago

4 Replies

GP has suggested an increase in prednisone

As I had requested this it seems that the GP is willing to give it a try., Am up now to 15mg from 10mg. Been on now for 6 days cannot say much improvement as...

As I had requested this it seems that the GP is willing to give it a try., Am up...

gillsky8

•16 hours ago

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withdrawal of prednisolone

Hi, I am just over a week of going down to 5 and a half mg. I have done a very slow taper over nearly 2montgs at 6mg. I have had stomach issues since the...

Hi, I am just over a week of going down to 5 and a half mg. I have done a very s...

lennysmummy

•16 hours ago

16 Replies

How soon to resume taper after cardiac ablation?

I was on 7mg prednisone, easing into 6.75, when I had my cardiac ablation on April 15. Went back to 7 mg however, upped it with cardiac inflammation, 5 mgs...

I was on 7mg prednisone, easing into 6.75, when I had my cardiac ablation on Ap...

Karenjaninaz

•16 hours ago

1 Reply

PMR tapering

Hi there, I had polymialgia for nearly 2 years, it started August 2021 and by June 2023 I was polymialgia free.I too started with 15 mgs of Prednisalone and I...

Hi there, I had polymialgia for nearly 2 years, it started August 2021 and by Ju...

Smilie67

•16 hours ago

10 Replies

Basal cortisol test

I am currently on 1mg Prednisolone and have been for the past 12 weeks. I have always reduced this drug very slowly on the recommendation of this extremely...

I am currently on 1mg Prednisolone and have been for the past 12 weeks. I have ...

Billswife

•18 hours ago

10 Replies

Omeprazole

Greetings all, my first post here after recently discovering this excellent resource. A question about omeprazole please. I have been on a typical taper from...

Greetings all, my first post here after recently discovering this excellent reso...

BlueKiwi

•18 hours ago

8 Replies

PMR and severe neck spasms

Has anyone had experience of severe neck spasms with PMR? I was a long time being diagnosed PMR approx 3.5 yrs ago.-- usual high dose prednisolone etc which I...

Has anyone had experience of severe neck spasms with PMR? I was a long time bei...

attempttocycycle

•19 hours ago

5 Replies

GCA relapse ?

I have been on prednisolone for the last two years for PMR i was on 4mg ,in March diagnosed with GCA had a temporal biopsy and ultrasound both with negative...

I have been on prednisolone for the last two years for PMR i was on 4mg ,in Marc...

Buster1610

•19 hours ago

5 Replies

What is the best time to take Pred and how long does it work?

I have been looking for a link to find an answer myself, but could not see a timetable set out. There are various comments like take at 4 a.m. or 2 a.m. with...

I have been looking for a link to find an answer myself, but could not see a tim...

Motida

•19 hours ago

4 Replies

Help with steroid induced hyperglycaemia

My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6...

My story is in my bio as it’s rather long! Is there anyone out there managing S...

AmberGamble

•20 hours ago

14 Replies

When the headlines tell us eating something means we will die "early" - or will we?

More reading - lots of big strange words and some statistics, but read slowly and carefully it does explain to us how valuable - or otherwise - those...

More reading - lots of big strange words and some statistics, but read slowly an...

PMRpro

Ambassador•20 hours ago

5 Replies

Balance is back-what now?

A year ago I fell twice and feared navigating the stands at basketball games. Now I have been symptom free for almost two weeks and I am moving up and down...

A year ago I fell twice and feared navigating the stands at basketball games. No...

papadapadoo

•21 hours ago

2 Replies

Who is confused? My surgery or me?

I was asked by the GP to remind him, when I reached 3mg in my tapering, that I should have a synacthen test. I have now done so. However, I am being sent for...

I was asked by the GP to remind him, when I reached 3mg in my tapering, that I ...

ChinaWuntoo

•22 hours ago

8 Replies

I'm busy doing nothing - could PMR/GCA be telling us we need to let ourselves do less?

This is a link to an article in the Guardian...

PMRpro

Ambassador•23 hours ago

8 Replies

Statins in older patients and their benefits

There is, not surprisingly, a lot of discussion here about us taking statins and one of the points often made is that there has been little evidence of benefit...

There is, not surprisingly, a lot of discussion here about us taking statins and...

PMRpro

Ambassador•1 day ago

59 Replies

Cortisol test before or after Prednisolone

Been taking Prednisolone for 18months or so and am currently working my way down from 3mg to 2mg . So far apart from a couple of mini flea . I am doing OK....

Been taking Prednisolone for 18months or so and am currently working my way down...

Amerloque

•1 day ago

9 Replies

Struggling with flare..if it is flare

Hi all.Had PMR since Feb. 2020. All in all not been too bad and able to cope most of the time. Usually aching knees and occasionally in wrists. 2 weeks ago was...

Hi all.Had PMR since Feb. 2020. All in all not been too bad and able to cope mos...

Poll8

•2 days ago

3 Replies

1 mg after 4 years

I have emailed my doc but, I am consulting with the experts here! So, four years and I reduced to 1 mg about 1 1/2 months ago. Did well before that , so I...

I have emailed my doc but, I am consulting with the experts here! So, four year...

paleolady

•2 days ago

13 Replies

not pmr again

Well much to my surprise my pmr symptoms appear to have been caused by the Covid vaccination that I had last week. As I posted, my GP suggested that I hold off...

Well much to my surprise my pmr symptoms appear to have been caused by the Covid...

Crowsfeet

•2 days ago

7 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

losing weight

decrease in Pred after hospital admission

PMR flare?

Post Moderna covid vaccination

GCA dizziness

Rheumatologist appointment

GCA-Diagnosis

Hello methtextrate

Hair loss

Flares trying to get from 9 mg to 8 mg

What to do

GP has suggested an increase in prednisone

withdrawal of prednisolone

How soon to resume taper after cardiac ablation?

PMR tapering

Basal cortisol test

Omeprazole

PMR and severe neck spasms

GCA relapse ?

What is the best time to take Pred and how long does it work?

Help with steroid induced hyperglycaemia

When the headlines tell us eating something means we will die "early" - or will we?

Balance is back-what now?

Who is confused? My surgery or me?

I'm busy doing nothing - could PMR/GCA be telling us we need to let ourselves do less?

Statins in older patients and their benefits

Cortisol test before or after Prednisolone

Struggling with flare..if it is flare

1 mg after 4 years

not pmr again

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