Search
Search
About
Log in
Join
Experiences with
Peroxisomal acyl-CoA oxidase deficiency
Posts
Communities
3,121 public posts
Filter results
Malabsorption of drugs?
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
Chickens44
in
Pernicious Anaemia Society
27 days ago
Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Divinesoul
in
Fibromyalgia Action UK
2 months ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Does anybody get severe cramps; legs,pectoral and feet?
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
1horse
in
SHARE Metastatic Breast Cancer
2 months ago
Magnesium Oxide
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
dinahdough
in
Thyroid UK
2 months ago
Best magnesium dosage
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
Meramt
in
Cure Parkinson's
4 months ago
Magnesium CAUSING muscle cramps
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
SteveT3
in
Thyroid UK
5 months ago
Recent blood test – Why do I feel so tired?
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Zazbag
in
Thyroid UK
1 hour ago
Iron status, thyroid dysfunction and iron deficiency anemia: a two-sample Mendelian randomization study
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
helvella
Thyroid UK
in
Thyroid UK
3 days ago
Anyone had an iron infusion
My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for deficiency anaemia and injections for his B12 deficiency I’m ok about the B12 injections but for some reason feel a bit nervous about the infusion but
My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for deficiency anaemia and injections for his B12 deficiency I’m ok about the B12 injections but for some reason feel a bit nervous about the infusion but
Noelnoel
in
CLL Support
5 days ago
supplementary question ! Ubiquinol
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
Indigourchin
in
Thyroid UK
20 days ago
updated iron results - best next steps?
Hey everyone, I had some great advice on here a couple of weeks ago. I just had a full blood test completed (given the RLS had gotten significantly worse recently) and my iron results came back low: Iron 14.3 umol/L (Range: 10 - 30) TIBC 54.2 umol/L (Range: 45 - 81) UIBC 39.9 umol/L (Range: 12 -
Hey everyone, I had some great advice on here a couple of weeks ago. I just had a full blood test completed (given the RLS had gotten significantly worse recently) and my iron results came back low: Iron 14.3 umol/L (Range: 10 - 30) TIBC 54.2 umol/L (Range: 45 - 81) UIBC 39.9 umol/L (Range: 12 -
BOWENATOR
in
Restless Legs Syndrome
24 days ago
History of continued low and fluctuating iron levels - advice?
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
Starseed56
in
Thyroid UK
25 days ago
supplements
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
Lilymayjean
in
Thyroid UK
1 month ago
Beta blockers
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
Robert1220
in
British Liver Trust
1 month ago
Iron infusion flopped
Iron infusion flopped After my second iron infusion my serum ferritin catapulted from 55 to 588! Unfortunately, it did not stop the “bleed through”. Horizant, which is supposed to last 24 hours only controls my RLS for about 16 to 18 hours and then I get symptom bleed through. I was hoping that at
Iron infusion flopped After my second iron infusion my serum ferritin catapulted from 55 to 588! Unfortunately, it did not stop the “bleed through”. Horizant, which is supposed to last 24 hours only controls my RLS for about 16 to 18 hours and then I get symptom bleed through. I was hoping that at
tagaxel
in
Restless Legs Syndrome
1 month ago
Heme vs Non-Heme Iron Supplements
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
ReallyWondering
in
Thyroid UK
1 month ago
CRP raised. Does this affect ferritin result in iron panel?
Hello all, yesterday I had lots of bloods taken.Today, I have one result back, the Serum C Reactive Protein Level, results as follows 11mg/L 0-5mg/L abnormal When my recent iron was taken it was on the lowest number of normal. Serum Transferrin was normal. Does the abnormal CRP result affect
Hello all, yesterday I had lots of bloods taken.Today, I have one result back, the Serum C Reactive Protein Level, results as follows 11mg/L 0-5mg/L abnormal When my recent iron was taken it was on the lowest number of normal. Serum Transferrin was normal. Does the abnormal CRP result affect
DandyButch
in
Thyroid UK
1 month ago
Iron blood test results are back, please could you take a look for me?
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
Alternatively
in
Thyroid UK
1 month ago
Iron Levels
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
Brufax
in
Restless Legs Syndrome
2 months ago
1
2
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
794 results
Pernicious Anaemia Society
309 results
Endometriosis UK
270 results
View top 10 communities
Sort by
Most Relevant
Newest