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Varicose veins with scleroderma
Are there any other LSSc people out there also suffering from varicose veins? At my last check up with Royal Free I pointed out lots of new burst veins/ thread veins in my legs. They said it as early varicose veins, but they would ask my GP to refer me to vascular specialist close to me. RF implied
Are there any other LSSc people out there also suffering from varicose veins? At my last check up with Royal Free I pointed out lots of new burst veins/ thread veins in my legs. They said it as early varicose veins, but they would ask my GP to refer me to vascular specialist close to me. RF implied
LadyTrundle
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
How do you contact your Rheumatologist?
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
CecilyParsley
in
LUPUS UK
3 months ago
Hashi symptoms still or tired/dry eyes?
Hey everyone, Still on my journey to "optimal" health and lab's whilst having Hashimoto's. Diagnosed 18 month ago. I have a strange one for you, or, not so strange, right now I'm not sure. So, currently on 162.5mcg of Levo and 10 mcg of Lio. I would say symptom wise I am feeling the best I have in
Hey everyone, Still on my journey to "optimal" health and lab's whilst having Hashimoto's. Diagnosed 18 month ago. I have a strange one for you, or, not so strange, right now I'm not sure. So, currently on 162.5mcg of Levo and 10 mcg of Lio. I would say symptom wise I am feeling the best I have in
dexterholland91
in
Thyroid UK
5 months ago
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bungi61
Is there any one like me that goes to bed each night praying to "WHO EVER" that if or when you wake up in the morning that this IBS/Diverticular Disease would just CLEAR OFF (putting it mildly ) and that it would go away and leave well alone only when you wake for the 1st few moments thinking it had
Is there any one like me that goes to bed each night praying to "WHO EVER" that if or when you wake up in the morning that this IBS/Diverticular Disease would just CLEAR OFF (putting it mildly ) and that it would go away and leave well alone only when you wake for the 1st few moments thinking it had
bungi1961
in
IBS Network
10 months ago
An enquiry about the evidence base regarding anticoagulants - my reply to a post that just went missing…..
Revised and edited post. My apologies if this post caused any confusion or led down the wrong track. Top Biscuit has been in touch with me and wishes to make the following very clear: Her post wasn't about anticoagulation at all, although she understands how it could lead the mind to the question of
Revised and edited post. My apologies if this post caused any confusion or led down the wrong track. Top Biscuit has been in touch with me and wishes to make the following very clear: Her post wasn't about anticoagulation at all, although she understands how it could lead the mind to the question of
Rainfern
in
AF Association
5 months ago
Recent blood tests
Hi, can anybody offer any guidance on my blood tests. I have paid to have them done by blue horizon. My blood was done at 8.45 before taking any medication. I take levo 175 one day followed by 150 the next. B12 supplement. I have been suffering from a feeling of being on a boat with weak legs. Bad brain
Hi, can anybody offer any guidance on my blood tests. I have paid to have them done by blue horizon. My blood was done at 8.45 before taking any medication. I take levo 175 one day followed by 150 the next. B12 supplement. I have been suffering from a feeling of being on a boat with weak legs. Bad brain
Colvic
in
Thyroid UK
5 months ago
Hair Loss on Acalabrutinib
Has anyone suffered significant hair loss while taking this drug? Does the hair loss stop at some point in time. Does the hair regrow? This is the one thing the oncologist said wouldn't happen. I have been taking an iron supplement and 5,000 mcg of biotin, information that I read in other posts. My hair
Has anyone suffered significant hair loss while taking this drug? Does the hair loss stop at some point in time. Does the hair regrow? This is the one thing the oncologist said wouldn't happen. I have been taking an iron supplement and 5,000 mcg of biotin, information that I read in other posts. My hair
Vinweesel2023
in
CLL Support
5 months ago
omeprazole long term
Hello, advice please on long term use of Omeprazole, one 20mgs a day. I've been on Omeprazole for years now as I suffer from GERD. I recently asked my consultant about coming off Omeprazole but he stated as it is such a low dosage, to keep taking. There is so much on the internet about this medication
Hello, advice please on long term use of Omeprazole, one 20mgs a day. I've been on Omeprazole for years now as I suffer from GERD. I recently asked my consultant about coming off Omeprazole but he stated as it is such a low dosage, to keep taking. There is so much on the internet about this medication
Harley1020
in
IBS Network
8 months ago
Update
Hi ladies. I haven’t posted or even looked at this site for a few weeks now, as I defaulted to my usual stance of avoidance. If I don’t talk about it or read about it, it will go away. I’m in a better head space now and want to share the update, in the hope of some positive stories from anyone with
Hi ladies. I haven’t posted or even looked at this site for a few weeks now, as I defaulted to my usual stance of avoidance. If I don’t talk about it or read about it, it will go away. I’m in a better head space now and want to share the update, in the hope of some positive stories from anyone with
Beaver54
in
My Ovacome
7 months ago
Delayed injection
I have wet md and glaucoma in both eyes. I was scheduled for left eye injection 1/10. I called to confirm my appointment that was made in Nov. and was told it had been cancelled. They said something about my insurance being FFS and I need CAP to get treatment. I have been going to this facility for
I have wet md and glaucoma in both eyes. I was scheduled for left eye injection 1/10. I called to confirm my appointment that was made in Nov. and was told it had been cancelled. They said something about my insurance being FFS and I need CAP to get treatment. I have been going to this facility for
eyeseeu
in
Macular Society
5 months ago
new here, would like some tips
Hi, I have had tinnitus all my life, from when I was a child every so often, a few times a day I would hear a loud whistle that would last about a minute. My Father passed away 5 years ago and 6 months after I have 3 types of tinnitus, the one I had from a child as well as pulsatilla tinnitus and a
Hi, I have had tinnitus all my life, from when I was a child every so often, a few times a day I would hear a loud whistle that would last about a minute. My Father passed away 5 years ago and 6 months after I have 3 types of tinnitus, the one I had from a child as well as pulsatilla tinnitus and a
Jacsav
in
Tinnitus UK
5 months ago
Hi I am really confused has anyone been prescribed mesalazine? I have been recently prescribed it?
I’ve got to see a specialist soon after I had a colonoscopy and it showed up inflammation and it had to be stopped as they were unable to get to my right side due to the inflammation and it was very mucusy. I haven’t been diagnosed with IBS but I have discomfort when I have products that contain cows
I’ve got to see a specialist soon after I had a colonoscopy and it showed up inflammation and it had to be stopped as they were unable to get to my right side due to the inflammation and it was very mucusy. I haven’t been diagnosed with IBS but I have discomfort when I have products that contain cows
DonutEater
in
IBS Network
10 months ago
Abdominal distension
I was diagnosed with HGSO grade 3 in 2021. Had 4 rounds carbo/plaxi/avastin, followed by debulking. Completed further 2 rounds of chemo. Cancer recurred within 6 months. So I was denied further surgery. I am BRACA-1. Avastin and PARP wasn't effective. Completed carbo/gem in July and subsequent PET scan
I was diagnosed with HGSO grade 3 in 2021. Had 4 rounds carbo/plaxi/avastin, followed by debulking. Completed further 2 rounds of chemo. Cancer recurred within 6 months. So I was denied further surgery. I am BRACA-1. Avastin and PARP wasn't effective. Completed carbo/gem in July and subsequent PET scan
Nov5
in
My Ovacome
10 months ago
Possible Problems With Bladder Cancer Treatment
My treatment now seems to be - Flexy Cystoscopy first - If anything is found then booked for admission to have tumour(s) removed. This is done with a procedure called TURBT and rigid cystoscopy. As a BTY - I am unsure if my BCG treatment has ended, or have I one more go. I am not allowed "general
My treatment now seems to be - Flexy Cystoscopy first - If anything is found then booked for admission to have tumour(s) removed. This is done with a procedure called TURBT and rigid cystoscopy. As a BTY - I am unsure if my BCG treatment has ended, or have I one more go. I am not allowed "general
Ern007
in
Lung Conditions Community Forum
3 months ago
2 acoustic neuromas
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Operalovers
in
Acoustic Neuroma Support
3 months ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
domforr
in
Acoustic Neuroma Support
3 months ago
7 weeks and blood in stool
7 weeks of stomach discomfort which can be a little painful but consistently feels like a squeezing feeling and inflamed stool. Didn't have the bleeding but started noticing little blood in my stool. Can anyone take a look and see what they think. I have been referred to gastro but it's a long wait just
7 weeks of stomach discomfort which can be a little painful but consistently feels like a squeezing feeling and inflamed stool. Didn't have the bleeding but started noticing little blood in my stool. Can anyone take a look and see what they think. I have been referred to gastro but it's a long wait just
Aceofspace
in
Colon Cancer Connected
10 months ago
bowel obstruction
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
Anjidav
in
Bowel Disease Support
10 months ago
Has anyone found Mebeverine/Buscopan helpful?
Following a Laparoscopy, it is highly likely that I have Adenomyosis. One of the hardest symptoms is the uncomfortable bowel issues. I get bloating and constipation. I am wondering if it is worth trying Mebeverine or Buscopan. I've tried dietary and peppermint oil but neither really helped.Thank you
Following a Laparoscopy, it is highly likely that I have Adenomyosis. One of the hardest symptoms is the uncomfortable bowel issues. I get bloating and constipation. I am wondering if it is worth trying Mebeverine or Buscopan. I've tried dietary and peppermint oil but neither really helped.Thank you
Mindfullness4791
in
Endometriosis UK
10 months ago
Gallbladder issues
My partner has got polyps on his gallblader one is 8mm he seen the gastroenterologist today he thinks he could have blocked bile duct and has to go for mrcp scan and he has a lot of alkaline hp in his urnine he has been getting alot of back pain and bloated stomach, he has been put on waiting list for
My partner has got polyps on his gallblader one is 8mm he seen the gastroenterologist today he thinks he could have blocked bile duct and has to go for mrcp scan and he has a lot of alkaline hp in his urnine he has been getting alot of back pain and bloated stomach, he has been put on waiting list for
Netbet22
in
IBS Network
6 months ago
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