Supplier update needed

[DandyThyro]

I'm so upset: I've been benefitting greatly from adding liothyronine (T3) to my meds, as per instructions from an endocrinologist. My CCG, and GP, refused to prescribe it so I got it privately online. That supply has dried up. I got a few boxes when in Greece recently, but I appear to be allergic to that brand as I've been getting rashes. I therefore need someone to pm me p details of an online supplier, preferably of Tiromel, the Turkish brand, but I would try any other than the Greek one. I can only assume it's got a filler which bothers me. Please pm me, as I know it's important to protect suppliers.

[Marz]

If you have been following this forum you will know that T3 prescribed by an Endo need not be stopped. Read relevant posts using the SEARCH box and the 10 similar posts further down - if you are on a phone. 😊

[DandyThyro in reply to Marz]

I'm sure you're right, in general. My CCG, and then my GP, refused to honour the endo's instructions and told me I could go back to her and get a private prescription, and PAY £180 a month. I need details of a supplier.

[Marz in reply to DandyThyro]

OK - I understand. However it is well reported on this forum that T3 can be retained if prescribed by an Endo. Click onto Clutter

[Marz in reply to Marz]

.... and read her responses on this matter - including references to show your GP. Members are unlikely to respond with so little information.

[DandyThyro in reply to Marz]

OK, thank you. I didn't want to go into details about my situation as it's frankly too upsetting and include my being removed from my preferred GP, who'd referred me to the endo in the first place, and then removed from the endo's list. I just don't think this is a battle I can currently win.

[Marz in reply to DandyThyro]

Stick with advice on this forum and you will find a way ....

[DandyThyro in reply to Marz]

I will come back and take up the fight again when I feel better. I know it's important for us to stick together on it. By going private for a year, I have at least proven to the GP that my health has improved, which will give me more evidence when I do ask him again. Thank you.

[Marz in reply to DandyThyro]

Wishing you loads more improvement. How are your levels of B12 - Folate - Ferritin - VitD ?

[DandyThyro in reply to Marz]

Cheers! B12 last checked about a year ago and was excellent according to GP, folate is always above range, vit D was low in the range the last time it was checked. Iron seems to always be at least mid range. I've had a few saliva cortisol checks done and that has steadily worsened over time so now I'm consistently low in cortisol. I stopped work due to burn out and hope to recover but it's a slow process.

[Marz in reply to DandyThyro]

Always obtain copies of all your blood tests with ranges - they are legally yours ! Often what Docs think are excellent - rarely are - unless he/she is an exception ! So how are you treating the Low VitD ?

You could try supporting your Adrenals with LOTS of VitC - they love it

[SlowDragon Administrator in reply to DandyThyro]

Your endo can give you private prescription that would enable French T3 (£25 for 100 25mcg tablets) or German T3 at £31 per 100 tablets 20mcg

Sandoz German 25mcg

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Private prescription £1 a tablet

healthunlocked.com/thyroidu...

NHS can and does use cheaper alternatives

dailymail.co.uk/health/arti...

[DandyThyro in reply to SlowDragon]

Thank you, I'll keep this info for when I'm up to another showdown with my GP!

[SlowDragon Administrator]

Hopefully you will get some supplier links

Here's links about fighting to keep your T3. Don't let them get away with it

healthunlocked.com/thyroidu...

Why T3 should not be stopped

healthunlocked.com/thyroidu...

What CCG area is this?

Swale Area CCG in Kent has apparently just set up new project called Thyroid Care. Recognises DIO2 gene variation issue, offering testing on NHS and that gut biome can be badly affected. prescribing T3 to relevant patients.

We need to get other CCG's to adopt this good practice.