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Notes for upcoming GP appointment
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Wispymisty
in
LUPUS UK
1 month ago
Levo Brands/NICE guidelines
TT two years’ ago from being hypER with goitre. Now on 125mgs Accord Levo. Various ‘symptoms’ but apart from weight gain my main concerns are breathlessness/balance issues/food sensitivities. An interesting consult with my gp this morning and I would like to see what comments the forum might
TT two years’ ago from being hypER with goitre. Now on 125mgs Accord Levo. Various ‘symptoms’ but apart from weight gain my main concerns are breathlessness/balance issues/food sensitivities. An interesting consult with my gp this morning and I would like to see what comments the forum might
C1949K
in
Thyroid UK
1 month ago
Another cause of Pernicious Anaemia?
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
wedgewood
in
Pernicious Anaemia Society
1 month ago
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Hashimotos for Sixteen Years, Realizing I Know Next to Nothing
This is a long story, and as with so much in this "we have too much info" age, I'm probably over-responding, but, I was recently blindsided by a new health condition, and I don't fancy having it happen again if there are cues available. I've had hypothyroidism/Hashimotos for 16-17 years, at least based
This is a long story, and as with so much in this "we have too much info" age, I'm probably over-responding, but, I was recently blindsided by a new health condition, and I don't fancy having it happen again if there are cues available. I've had hypothyroidism/Hashimotos for 16-17 years, at least based
josephinius1
in
Thyroid UK
1 month ago
B12 - shots v pills
Hi Please could someone confirm the benefits of a B12 injection v taking a supplement? Are we just talking about larger doses and / or ability to avoid the stomach and increase absorption? Is availability of B12 injection really restricted on the NHS? If I decide to go down the chemist route, do
Hi Please could someone confirm the benefits of a B12 injection v taking a supplement? Are we just talking about larger doses and / or ability to avoid the stomach and increase absorption? Is availability of B12 injection really restricted on the NHS? If I decide to go down the chemist route, do
N5girl
in
Thyroid UK
1 month ago
b12 keeps dropping ferritin
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
MuppDog
in
Pernicious Anaemia Society
1 month ago
Latest thyroid test results
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Gecko22
in
Thyroid UK
1 month ago
Which B Complex for Hashi's
I have been on the same B complex for a few years now which was recommended by my then FD https://www.seekinghealth.com/products/b-complex-plus-100-capsules Because I have the mthfr gene I have the methylated ones but wondering whether to change due to constant high B12 readings on blood tests. The
I have been on the same B complex for a few years now which was recommended by my then FD https://www.seekinghealth.com/products/b-complex-plus-100-capsules Because I have the mthfr gene I have the methylated ones but wondering whether to change due to constant high B12 readings on blood tests. The
Jefner
in
Thyroid UK
1 month ago
Vit B amounts,please
Hi A-Team ,advice as usual please got my Mum a Quality B complex 408 mg today ,also vit B12 500ug, should I start Ma on the B-complex ,only first & for how long ?or one of each daily.. best time of day also please..glad to lose her nhs cyanide tainted vit b..! Thanks Gazdad (Gareth)
Hi A-Team ,advice as usual please got my Mum a Quality B complex 408 mg today ,also vit B12 500ug, should I start Ma on the B-complex ,only first & for how long ?or one of each daily.. best time of day also please..glad to lose her nhs cyanide tainted vit b..! Thanks Gazdad (Gareth)
Gazdad
in
Thyroid UK
1 month ago
B12 supplied at GP Surgery
Hello, for the last 6 months or so my GP has been supplying the B12 vials for injecting at the surgery. Previously I picked up a script and got the vials myself from the pharmacy. Co-incidentally since then I have not really felt the benefit of the b12 jab as well as I am having skin outbreaks on my
Hello, for the last 6 months or so my GP has been supplying the B12 vials for injecting at the surgery. Previously I picked up a script and got the vials myself from the pharmacy. Co-incidentally since then I have not really felt the benefit of the b12 jab as well as I am having skin outbreaks on my
Meggymoo63
in
Pernicious Anaemia Society
1 month ago
Versandapo B12 Panpharma now in stock !
Wed 24 April 2024 I’ve been waiting for Panpharma to be back in stock since Dec 2023. I just received an email that they are in stock. I thought I’ll check as I’ve had 3 emails before but out of stock when checked. (previously) I placed an order for 5 packs of 10 and it went through. They are currently
Wed 24 April 2024 I’ve been waiting for Panpharma to be back in stock since Dec 2023. I just received an email that they are in stock. I thought I’ll check as I’ve had 3 emails before but out of stock when checked. (previously) I placed an order for 5 packs of 10 and it went through. They are currently
Ryaan
in
Pernicious Anaemia Society
1 month ago
Repost with more info: peripheral neuropathy
Thanks to Marion and Esperanto for helping me to provide more information. All questions answered here... (Original post question: my Movement Disorders Specialist (MDS) says foot numbness is not Pripheral Neuropathy, but rather a non motor symptom of Parkinson's??? ) I'm in my 10th year with PD symptoms
Thanks to Marion and Esperanto for helping me to provide more information. All questions answered here... (Original post question: my Movement Disorders Specialist (MDS) says foot numbness is not Pripheral Neuropathy, but rather a non motor symptom of Parkinson's??? ) I'm in my 10th year with PD symptoms
rebtar
in
Cure Parkinson's
1 month ago
needle size
The needle My husband injects me with b12 is 23G x 1 1/4” Is this the right size as painful injecting plus when the liquid goes in.
The needle My husband injects me with b12 is 23G x 1 1/4” Is this the right size as painful injecting plus when the liquid goes in.
Rayburn
in
Pernicious Anaemia Society
1 month ago
B12 is a cofactor to the energy I get from the sun.
This is from 68 years of experience and observation 3 of them under supplementing B12. It is assumed that diet is the reason that those in the mediterranean climate may live longer. Pseudo Science that pays well.
This is from 68 years of experience and observation 3 of them under supplementing B12. It is assumed that diet is the reason that those in the mediterranean climate may live longer. Pseudo Science that pays well.
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Poor converter?
Hello all, I currently have another post up about private endo recommendations. I’m wondering if I need to consider T3 therapy as I’m running out of options. Thyroid result February 125 Levo dose TSH 0.076 (0.27-4.2) Free T3 4.6 (3.1-6.8) Free Thyroxine 22.2 (12-22) B12 35.7 (37.5-188) GP repeated
Hello all, I currently have another post up about private endo recommendations. I’m wondering if I need to consider T3 therapy as I’m running out of options. Thyroid result February 125 Levo dose TSH 0.076 (0.27-4.2) Free T3 4.6 (3.1-6.8) Free Thyroxine 22.2 (12-22) B12 35.7 (37.5-188) GP repeated
Vizslaaddict
in
Thyroid UK
1 month ago
Borderline ana
Hi 😊 Not sure if this is the right bit. For last 3 years I have extreme tiredness, rash on cheeks a lot of ulcers in mouth. Unsure if lupus was sent to consultant he only said borderline ana we can't help you 🙈 Has anyone had lupus with a borderline ana. Recently had blood test. Vitamin d 48
Hi 😊 Not sure if this is the right bit. For last 3 years I have extreme tiredness, rash on cheeks a lot of ulcers in mouth. Unsure if lupus was sent to consultant he only said borderline ana we can't help you 🙈 Has anyone had lupus with a borderline ana. Recently had blood test. Vitamin d 48
Beeekind22
in
LUPUS UK
1 month ago
RLS & Pramipexole
I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Prescribed .088mg Pramipexole by my GP n just told to increase when I complain! I went to 5 at night but am weaning off myself with the help of 50mg Tramadol around 6pm. Down to alternating 2 or 3 at night slowly. Had bloods
I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Prescribed .088mg Pramipexole by my GP n just told to increase when I complain! I went to 5 at night but am weaning off myself with the help of 50mg Tramadol around 6pm. Down to alternating 2 or 3 at night slowly. Had bloods
Maymount
in
Restless Legs Syndrome
1 month ago
Apotheke. B12
apologies to all re Apotheke. and Panpharma They accepted the order, the payment, and confirmation. Now advised this morning that the order has been cancelled. Wedgewood correct, they only deliver to certain countries in Europe.
apologies to all re Apotheke. and Panpharma They accepted the order, the payment, and confirmation. Now advised this morning that the order has been cancelled. Wedgewood correct, they only deliver to certain countries in Europe.
Carlosdoug
in
Pernicious Anaemia Society
1 month ago
A victory with my NHS GP! 🥳
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
ClaireWF1346
in
Pernicious Anaemia Society
1 month ago
Yet another mess...
I am coming to the end of my B12 pills and being on the lower pension and every penny counts, wondered if I needed to reorder. So I phoned the surgery to request a blood test, and was told the GP would phone me back. So far, so good. A GP phoned, introduced herself as the new GP at the surgery. I
I am coming to the end of my B12 pills and being on the lower pension and every penny counts, wondered if I needed to reorder. So I phoned the surgery to request a blood test, and was told the GP would phone me back. So far, so good. A GP phoned, introduced herself as the new GP at the surgery. I
serenfach
in
Thyroid UK
1 month ago
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