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Qmiiz ODT
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Experiences of NDT v Levo and Lio
Hello again, I have been trialling NDT (2 grains since mid March 2024. I was previously on 75mcg Levo and 10mcg Lio (from NHS Endo) but still had symptoms. Both T4 and T3 levels are better on NDT yet I’m not feeling improvement. The private GP I saw increased my dose to 2.25 grains and I felt jittery
Hello again, I have been trialling NDT (2 grains since mid March 2024. I was previously on 75mcg Levo and 10mcg Lio (from NHS Endo) but still had symptoms. Both T4 and T3 levels are better on NDT yet I’m not feeling improvement. The private GP I saw increased my dose to 2.25 grains and I felt jittery
Piglet1956
in
Thyroid UK
4 hours ago
Best alternative PET for PSMA negative PCa
Asking for a friend. He was diagnosed 3 years ago with high risk high volume (Gleason 3+5) PCa. Treated with EBRT + LDRBT + ADT (18 months). His PSA was undetectable but is now rising (3+) but PSMA-PET was negative, even in the prostate - implying PSMA non-avid cancer. What would be the best non-PSMA
Asking for a friend. He was diagnosed 3 years ago with high risk high volume (Gleason 3+5) PCa. Treated with EBRT + LDRBT + ADT (18 months). His PSA was undetectable but is now rising (3+) but PSMA-PET was negative, even in the prostate - implying PSMA non-avid cancer. What would be the best non-PSMA
Vynbal
in
Advanced Prostate Cancer
9 hours ago
Anyone above 80 years -on triple therapy ?
Anyone over 80 years who has taken triple therapy - first and second generation ADT as well as chemo ? Could you please share how your experience of it was.
Anyone over 80 years who has taken triple therapy - first and second generation ADT as well as chemo ? Could you please share how your experience of it was.
Tinkudi
in
Advanced Prostate Cancer
15 hours ago
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Why is my TSH so low when my T4 T3 are so low?
Hi all can some please explain why my TSH is low despite my T4 T3 being low. Correct me if i have got it wrong but i have come to understand that TSH is released by the pituitary gland to stimulate release of more thyroid hormones if levlels are too low. Since 1993 i dont have a thyroid so i am on
Hi all can some please explain why my TSH is low despite my T4 T3 being low. Correct me if i have got it wrong but i have come to understand that TSH is released by the pituitary gland to stimulate release of more thyroid hormones if levlels are too low. Since 1993 i dont have a thyroid so i am on
DizzyD
in
Thyroid UK
22 hours ago
Understanding the Threat of Micrometastases (also known as Minimal Residual Disease) in Prostate Cancer or Don't sweat the small stuff
Greetings followers of FPC; It is time to set things straight in regards to the oligometastatic state in prostate caner. Posters will tell you that it does not exist because of micrometastases. So let's take a look at micrometastases first. The dreaded micrometastases.....the ultimate death sentence
Greetings followers of FPC; It is time to set things straight in regards to the oligometastatic state in prostate caner. Posters will tell you that it does not exist because of micrometastases. So let's take a look at micrometastases first. The dreaded micrometastases.....the ultimate death sentence
NPfisherman
in
Fight Prostate Cancer
23 hours ago
ADT failure
We saw my Dad's MO on 5/23. Over the course of 4 weeks my dad's PSA moved from 1.46 to 2.14, He said we need to be on Zytiga for three months before we can deem it a failure, but just like Xtandi, it appears my dad had limited help with it. We have talked about the next steps, chemo and pluvicto. My
We saw my Dad's MO on 5/23. Over the course of 4 weeks my dad's PSA moved from 1.46 to 2.14, He said we need to be on Zytiga for three months before we can deem it a failure, but just like Xtandi, it appears my dad had limited help with it. We have talked about the next steps, chemo and pluvicto. My
lgutman
in
Advanced Prostate Cancer
1 day ago
I want to give up. I have no energy to keep going.
Hi all, I've been suffering for the past many years. Since 2022 everything went downhill and I had to quit my job as I can't function. I'm 40 years old. I was tested for everything under the sun and everything is down to thyroid. I have Hashis. I have tried many med combos, everything fails on me. Recently
Hi all, I've been suffering for the past many years. Since 2022 everything went downhill and I had to quit my job as I can't function. I'm 40 years old. I was tested for everything under the sun and everything is down to thyroid. I have Hashis. I have tried many med combos, everything fails on me. Recently
Incoguto
in
Thyroid UK
1 day ago
Side effect of Lupron
We have a quesiton about swelling foot and ankle after Lupron injection and wonder if anyone has had a similar experience. My husband was just diagnosed with PC back in April, and he is on ADT while waiting for his CK treatment this month. After three-weeks of Lupron injection, he now has a swollen
We have a quesiton about swelling foot and ankle after Lupron injection and wonder if anyone has had a similar experience. My husband was just diagnosed with PC back in April, and he is on ADT while waiting for his CK treatment this month. After three-weeks of Lupron injection, he now has a swollen
kiyo
in
Prostate Cancer Network
2 days ago
Hypogonadism, heat flushing, and testosterone replacement
Hi all, It is almost a year since I had my external beam radiation for Gleason 7 (3+4) PCa (see my profile). So far so good: 4 PSA tests were reassuringly low. I am now almost 82 and I am hoping to deal with my strange heat-flushing problem, which I have had for several years. It predates my cancer
Hi all, It is almost a year since I had my external beam radiation for Gleason 7 (3+4) PCa (see my profile). So far so good: 4 PSA tests were reassuringly low. I am now almost 82 and I am hoping to deal with my strange heat-flushing problem, which I have had for several years. It predates my cancer
Smarks42
in
Prostate Cancer Network
2 days ago
Ultrahypofractional RT and ADT for Int. Risk PC
I am a 60 year old recently diagnosed PC with a PSA of 11.3 and ultra sound biopsy grade cT1c Gleason 3+4 = 7 Right basal and 3+3 on Right medial only 2 of 12 cores contain cancer. MRI showed PI Rads 5 lesion in right basal peripheral zone and extension into right seminal vesicle. Chose to go with
I am a 60 year old recently diagnosed PC with a PSA of 11.3 and ultra sound biopsy grade cT1c Gleason 3+4 = 7 Right basal and 3+3 on Right medial only 2 of 12 cores contain cancer. MRI showed PI Rads 5 lesion in right basal peripheral zone and extension into right seminal vesicle. Chose to go with
Hidden
in
Prostate Cancer Network
2 days ago
Hot Flashes
Centrum is advertising a number of products that reduce hot flashes in post menopausal women. Are any of these effective for those of us on ADT ?
Centrum is advertising a number of products that reduce hot flashes in post menopausal women. Are any of these effective for those of us on ADT ?
alperk
in
Advanced Prostate Cancer
2 days ago
How is the second generation ADT like xtandi , zytiga etc decided ?
What determines which second line ADT will be given to whom ? I see there is zytiga , xtandi , nubeqa and others. Is it just left to the MO to decide ?
What determines which second line ADT will be given to whom ? I see there is zytiga , xtandi , nubeqa and others. Is it just left to the MO to decide ?
Tinkudi
in
Advanced Prostate Cancer
2 days ago
How do I gradually run faster, what’s best?
I need to go to go out & do Wk 8 Run 2 this morning & prevaricating (but will do it) …. I’m an exceptionally slow runner and run 1 on Wednesday felt rubbish, so was good to read about Toxic 10 & Tomato Ten in someone else’s post as I do have these! (And in swimming too!) I want to run gradually faster
I need to go to go out & do Wk 8 Run 2 this morning & prevaricating (but will do it) …. I’m an exceptionally slow runner and run 1 on Wednesday felt rubbish, so was good to read about Toxic 10 & Tomato Ten in someone else’s post as I do have these! (And in swimming too!) I want to run gradually faster
Snippit
Graduate
in
Couch to 5K
3 days ago
New Labs
Sorry it has been years since able to get on my technology. Finally feeling better. These are my latest results any suggestions. Currently taking Tirosint 75mcg. May 15,2024 TSH 3rd generation 1.710 (.4-4.5 uIU/ML) T3 Reverse. 16.5 (9.0-27.0mg/dl) T3 Free 2.40 (2.40-6.80 pg/ml) T3
Sorry it has been years since able to get on my technology. Finally feeling better. These are my latest results any suggestions. Currently taking Tirosint 75mcg. May 15,2024 TSH 3rd generation 1.710 (.4-4.5 uIU/ML) T3 Reverse. 16.5 (9.0-27.0mg/dl) T3 Free 2.40 (2.40-6.80 pg/ml) T3
Thyroid66
in
Thyroid UK
4 days ago
Scary PSA results
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
7OaksTom
in
Advanced Prostate Cancer
4 days ago
apalutamide vs. abiraterone
My husband has been recommended ADT + abiraterone + prednisone for two years. My friend who is an oncologist suggested apalutamide instead as it doesn't need to be supplements with prednisone and has less side effects. Wanted your opinion.
My husband has been recommended ADT + abiraterone + prednisone for two years. My friend who is an oncologist suggested apalutamide instead as it doesn't need to be supplements with prednisone and has less side effects. Wanted your opinion.
SherryKahn
in
Advanced Prostate Cancer
5 days ago
Test results
My latest blood tests have just come back. I’d be grateful for comments from the amazing admins please. At the moment I’m not feeling great, my last tests about 8 months ago showed my B12 to be low so I started taking a liquid B12 supplement sublingually. I’m not taking any iron supplements. I take vit
My latest blood tests have just come back. I’d be grateful for comments from the amazing admins please. At the moment I’m not feeling great, my last tests about 8 months ago showed my B12 to be low so I started taking a liquid B12 supplement sublingually. I’m not taking any iron supplements. I take vit
Fox123
in
Thyroid UK
5 days ago
SUV-Max
Hello , Ive been on Eligard , Zytiga , predizone 26 months . Im oligo with 1 tumor in pelvic lymph node that was radiated , then 25 fractions across the pelvic region . The tumor they radiated was at SUV-MAX 24 . All labs are good , not much of side effects . I thought about stopping the meds after
Hello , Ive been on Eligard , Zytiga , predizone 26 months . Im oligo with 1 tumor in pelvic lymph node that was radiated , then 25 fractions across the pelvic region . The tumor they radiated was at SUV-MAX 24 . All labs are good , not much of side effects . I thought about stopping the meds after
reconjj
in
Advanced Prostate Cancer
6 days ago
Dad 2nd BCR. Advice needed...
After a very late salvage radiation + 1 year Lupron. He has been off ADT for 1 year when PSA began to rise again. From 0.01 to 0.03 in less than 2 months then 0.05 after another 3 months. Is this indicative of an aggressive progression and metastasis? The oncologist said that the doubling time is not
After a very late salvage radiation + 1 year Lupron. He has been off ADT for 1 year when PSA began to rise again. From 0.01 to 0.03 in less than 2 months then 0.05 after another 3 months. Is this indicative of an aggressive progression and metastasis? The oncologist said that the doubling time is not
MsBoBo
in
Advanced Prostate Cancer
6 days ago
5 aRIs and PCa and recurrence.
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
LowT
in
Advanced Prostate Cancer
7 days ago
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