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6 weeks post lung transplant.
Home now and what a relief. 22 days in ICU resulting in muscle waste in legs so starting all over again with stairs etc. Wound pain 8/10 especially when bending or reaching out. 30% loss of vision due to minor stroke at bottom of brain. The docs seem quite happy with results which is brilliant but
Home now and what a relief. 22 days in ICU resulting in muscle waste in legs so starting all over again with stairs etc. Wound pain 8/10 especially when bending or reaching out. 30% loss of vision due to minor stroke at bottom of brain. The docs seem quite happy with results which is brilliant but
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
Adenocarcinoma lung cancer
Hi All thanks so much for the kind people who responded to my mothers diagnosis of Adenocarcinoma of the lungs. We’ve now had the oncology appointment and Mums PDL1 is 100% and immunotherapy is the recommended treatment. We are due to start pembroluzumab (keytruda) to start every 3 weeks in the next
Hi All thanks so much for the kind people who responded to my mothers diagnosis of Adenocarcinoma of the lungs. We’ve now had the oncology appointment and Mums PDL1 is 100% and immunotherapy is the recommended treatment. We are due to start pembroluzumab (keytruda) to start every 3 weeks in the next
SharonTan
in
The Roy Castle Lung Cancer Foundation
1 year ago
Emphysema
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Zand60
in
Lung Conditions Community Forum
1 year ago
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Bereavement and loss.
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Biofreak
in
Lung Conditions Community Forum
1 year ago
transplant with no social support?
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
bundelino
in
Lung Conditions Community Forum
1 year ago
Scared I might have lung cancer
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Loosygoosey7
in
The Roy Castle Lung Cancer Foundation
1 year ago
Join Us! Tomorrow, April 11th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, April 11th, at 5pm PT/8pm ET. At this
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, April 11th, at 5pm PT/8pm ET. At this
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Life insurance ??
Good afternoon, lovely sunny Sunday here in Norfolk? 🌞So my partner and I have finally moved, but I'm struggling with getting anyone to accept me for life insurance to cover my mortgage as I have RA and have had lung surgery?.... Has anyone else had this happen, or know of any companies that would provide
Good afternoon, lovely sunny Sunday here in Norfolk? 🌞So my partner and I have finally moved, but I'm struggling with getting anyone to accept me for life insurance to cover my mortgage as I have RA and have had lung surgery?.... Has anyone else had this happen, or know of any companies that would provide
Dave74
in
NRAS
1 year ago
Prognosis Stage
My husband had throat cancer and was cleared in 2017. Then lung cancer last year, was cleared but its now returned.He is currently receiving Immunotherapy as chemotherapy wasn't helping. My question is why when we ask the consultant or her Registrar for a prognosis they don't know, we haven't been told
My husband had throat cancer and was cleared in 2017. Then lung cancer last year, was cleared but its now returned.He is currently receiving Immunotherapy as chemotherapy wasn't helping. My question is why when we ask the consultant or her Registrar for a prognosis they don't know, we haven't been told
Hidden
in
The Roy Castle Lung Cancer Foundation
1 year ago
Adenocarcinoma lung cancer
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
SharonTan
in
Lung Cancer Support
1 year ago
Adenocarcinoma lung cancer
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
SharonTan
in
The Roy Castle Lung Cancer Foundation
1 year ago
Genetic Mutation Driven lung Cancer Support
As our last online support group for genetically mutated lung cancer was so succesful we are starting up a new group. We provide a safe space for peer support and a chance to make true connections with others who understand. Our groups are hosted by trained facilitators and this group will run weekly
As our last online support group for genetically mutated lung cancer was so succesful we are starting up a new group. We provide a safe space for peer support and a chance to make true connections with others who understand. Our groups are hosted by trained facilitators and this group will run weekly
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
immuno stopped due to inflammation
morning everyone , I’m currently on immunotherapy ( only had two so far) but this month I’ve developed a cough , chest infection, the hospital checked and say there is inflammation and infection in my lungs , either as a result of immunotherapy or previous radiotherapy… they’ve stopped my immunotherapy
morning everyone , I’m currently on immunotherapy ( only had two so far) but this month I’ve developed a cough , chest infection, the hospital checked and say there is inflammation and infection in my lungs , either as a result of immunotherapy or previous radiotherapy… they’ve stopped my immunotherapy
mishamilo53
in
The Roy Castle Lung Cancer Foundation
1 year ago
Diagnosed with Adenosquamous lung cancer
hi all First of all just wanted to say a big thank you to all that have posted on here and those that have replied - it's been a great help and a great resource ... I've been diagnosed with T4 N3 M1b Adenosquamous lung cancer ("predominantly adenocarcinoma with some squamous features" according
hi all First of all just wanted to say a big thank you to all that have posted on here and those that have replied - it's been a great help and a great resource ... I've been diagnosed with T4 N3 M1b Adenosquamous lung cancer ("predominantly adenocarcinoma with some squamous features" according
beesgood
in
The Roy Castle Lung Cancer Foundation
1 year ago
Never rains just pours….😡😡
Now being tested for rheumatoid arthritis due to extremely painful ankles, knee and wrists. Hopefully if positive this new addition to the family will get on well with my IPF but as long as the lung transplant can proceed I’m cool. 🤪🤪 Stay safe xx
Now being tested for rheumatoid arthritis due to extremely painful ankles, knee and wrists. Hopefully if positive this new addition to the family will get on well with my IPF but as long as the lung transplant can proceed I’m cool. 🤪🤪 Stay safe xx
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
lungwort
I was recently diagnosed with lung cancer and I’m having radiotherapy at this time. My daughter saw a supplement called Lungwort which she thought might help me. I bought it but I’m now a bit worried about taking it in case it does me harm. My question is - has anyone with a lung condition tried it
I was recently diagnosed with lung cancer and I’m having radiotherapy at this time. My daughter saw a supplement called Lungwort which she thought might help me. I bought it but I’m now a bit worried about taking it in case it does me harm. My question is - has anyone with a lung condition tried it
deni-123red_
in
Lung Conditions Community Forum
1 year ago
Lung cancer concern
Please help following a chest infection that wouldn't clear I've had s CT scan the area has grown its 4cm biopsy will be in the following days. I'm terrified I can't eat, sleep I'm convinced its cancer and I won't survive. I already have copd. Im 48 I'm just in dispair. Any advice would be appreciated
Please help following a chest infection that wouldn't clear I've had s CT scan the area has grown its 4cm biopsy will be in the following days. I'm terrified I can't eat, sleep I'm convinced its cancer and I won't survive. I already have copd. Im 48 I'm just in dispair. Any advice would be appreciated
tracyball1
in
Lung Cancer Support
1 year ago
First timer. Anyone taking Mychophenolate
Hello all. Have been getting the benefit reading all the posts from all you lovely fellow sufferers but have been reluctant for no real reason to posts my own. So here goes. Is anyone taking or any experience of Mychophenolate as a steroid sparing medication for GCA. I've been prescribed it as I need
Hello all. Have been getting the benefit reading all the posts from all you lovely fellow sufferers but have been reluctant for no real reason to posts my own. So here goes. Is anyone taking or any experience of Mychophenolate as a steroid sparing medication for GCA. I've been prescribed it as I need
Puffin3
in
PMRGCAuk
1 year ago
Transplant delays and oxygen referrals
First things first, huge apologies for not getting back to those that left a comment on my last post which was now more than 2 months ago. It's safe to say that a lot has happened since then so hold on to your hats! After getting over the disappointment of a third transplant call not working out and
First things first, huge apologies for not getting back to those that left a comment on my last post which was now more than 2 months ago. It's safe to say that a lot has happened since then so hold on to your hats! After getting over the disappointment of a third transplant call not working out and
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
Kras g12c
i was diagnosed with stage IIIA nsclc Nov 2023. Im currently doing carboplatin/paclitaxel 7 rounds 1x weekly and 37 daily radiation treatment. I have been fortunate to not have any side effects other than severe acid reflux and fatigue. This past week found out i have BRCA2, and Kras g12c and STK11
i was diagnosed with stage IIIA nsclc Nov 2023. Im currently doing carboplatin/paclitaxel 7 rounds 1x weekly and 37 daily radiation treatment. I have been fortunate to not have any side effects other than severe acid reflux and fatigue. This past week found out i have BRCA2, and Kras g12c and STK11
DJL10
in
Lung Cancer Support
1 year ago
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