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Upcoming Clinical Trial Will Test Immunosuppressant in Slowing Parkinson’s
An upcoming clinical trial, known as the AZA-PD study, will test whether limiting the activity of the immune system through the use of an immunosuppressant can slow the progression of Parkinson’s disease. The Phase 2 trial (ISRCTN14616801) — officially Azathioprine immunosuppression and disease modification
An upcoming clinical trial, known as the AZA-PD study, will test whether limiting the activity of the immune system through the use of an immunosuppressant can slow the progression of Parkinson’s disease. The Phase 2 trial (ISRCTN14616801) — officially Azathioprine immunosuppression and disease modification
JayPwP
in
Cure Parkinson's
4 years ago
Montelukast/immunosuppresent
Hi can anyone tell me please is montelukast an immunosuppressant ? And will we be able to have the vaccine if we r on them
Hi can anyone tell me please is montelukast an immunosuppressant ? And will we be able to have the vaccine if we r on them
Hometeam2016
in
Asthma Community Forum
4 years ago
Dr. Fauci shares his recommendation that immunosuppressed patients with blood cancers, like us, get the vaccine, because some immunity is be
ASH 2020 Day 1 Update: ASH 2020 officially started early Saturday Dec. 5th with a fireside chat between ASH president, Dr. Stephanie Lee and Dr. Anthony Fauci. Dr. Fauci shares his recommendation that immunosuppressed patients with blood cancers, like us, get the vaccine, because some immunity is better
ASH 2020 Day 1 Update: ASH 2020 officially started early Saturday Dec. 5th with a fireside chat between ASH president, Dr. Stephanie Lee and Dr. Anthony Fauci. Dr. Fauci shares his recommendation that immunosuppressed patients with blood cancers, like us, get the vaccine, because some immunity is better
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
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How to pee in a pot!
I’m really sorry if this sounds like a rant. It is a rant 😊. Please don’t feel you have to read or comment I’m just feeling better writing it all down! I have to do regular urine tests as I developed class 4 lupus nephritis during lockdown. But my tests have gone missing / not worked 4 times out of
I’m really sorry if this sounds like a rant. It is a rant 😊. Please don’t feel you have to read or comment I’m just feeling better writing it all down! I have to do regular urine tests as I developed class 4 lupus nephritis during lockdown. But my tests have gone missing / not worked 4 times out of
Andfiona
in
LUPUS UK
4 years ago
Covid 19 vaccine for KT recipients
Here is an article dated September 2020 - that I came across today: https://khi.asn-online.org/uploads/KHI_Vaccine_Statement_Follow-up_Final.9.14.pdf Key statement in this url: "In the United States, two of the phase 3 trials currently enrolling participants do not exclude people with CKD or kidney
Here is an article dated September 2020 - that I came across today: https://khi.asn-online.org/uploads/KHI_Vaccine_Statement_Follow-up_Final.9.14.pdf Key statement in this url: "In the United States, two of the phase 3 trials currently enrolling participants do not exclude people with CKD or kidney
Lionkin
in
Kidney Transplant
4 years ago
Government advice for the shielding group on the vaccine - including the immunocompromised
This is the link to the JCVI document issued this week: https://www.gov.uk/government/publications/priority-groups-for-coronavirus-covid-19-vaccination-advice-from-the-jcvi-2-december-2020/priority-groups-for-coronavirus-covid-19-vaccination-advice-from-the-jcvi-2-december-2020 They obviously feel that
This is the link to the JCVI document issued this week: https://www.gov.uk/government/publications/priority-groups-for-coronavirus-covid-19-vaccination-advice-from-the-jcvi-2-december-2020/priority-groups-for-coronavirus-covid-19-vaccination-advice-from-the-jcvi-2-december-2020 They obviously feel that
PMRpro
Ambassador
in
PMRGCAuk
4 years ago
Not allowed to do a FET due to Covid
This one then also got cancelled due to COVID again and I’m being told it can’t go ahead due to them using
immunosuppressants
during the treatment and it being against HFEA guidelines to do that during a pandemic.
This one then also got cancelled due to COVID again and I’m being told it can’t go ahead due to them using
immunosuppressants
during the treatment and it being against HFEA guidelines to do that during a pandemic.
Spottydog444
in
Fertility Network UK
4 years ago
How Is COVID-19 Affecting the Mental Health of Rheumatic Disease Patients? 6 Surprising Insights from New Research
While most studies have concluded — not surprisingly — that it's common for people with rheumatic disease to be depressed or anxious, there were a few interesting glimmers of positivity worth noting too.
Mental Health Rheumatic Disease COVID-19
You don’t need to conduct a scientific study to
While most studies have concluded — not surprisingly — that it's common for people with rheumatic disease to be depressed or anxious, there were a few interesting glimmers of positivity worth noting too.
Mental Health Rheumatic Disease COVID-19
You don’t need to conduct a scientific study to
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Covid vaccination
Hi all, Interesting to note that the Pfizer vaccine may be rolled out shortly. Does anyone know if it's OK to take it if you have APS and compromised immune system? I have Primary APS (on Clopidogrel and Fondaparinux) but am also immunosuppressed following a transplant (on steroids and Mycophenolate
Hi all, Interesting to note that the Pfizer vaccine may be rolled out shortly. Does anyone know if it's OK to take it if you have APS and compromised immune system? I have Primary APS (on Clopidogrel and Fondaparinux) but am also immunosuppressed following a transplant (on steroids and Mycophenolate
Womanfriday
in
Hughes Syndrome APS Forum
4 years ago
? Live Vaccine
I have heard that the Oxford COVID 19 vaccine is partly made up of a live attenuated vaccine. Does this mean that it cannot be given to immunosuppressed patients?
I have heard that the Oxford COVID 19 vaccine is partly made up of a live attenuated vaccine. Does this mean that it cannot be given to immunosuppressed patients?
Treebar
in
Vasculitis UK
4 years ago
Jak2 test
Hello everyone, I am 24 years of age with a kidney disease called nephrotic syndrome. My GP called me last week to say she was concerned of how high my RBC count was. So she sent an urgent referral to haematologist and ordered my renal team to do a jak2 test which I had yesterday. I am so tired but
Hello everyone, I am 24 years of age with a kidney disease called nephrotic syndrome. My GP called me last week to say she was concerned of how high my RBC count was. So she sent an urgent referral to haematologist and ordered my renal team to do a jak2 test which I had yesterday. I am so tired but
Phoebe776
in
MPN Voice
4 years ago
Vaccine for immunosuppressed?
Will those who take biologic immunosuppressant medications be able to take the vaccine when it becomes available?
Will those who take biologic immunosuppressant medications be able to take the vaccine when it becomes available?
john_p
in
NRAS
4 years ago
UK first to trial AstraZeneca 'antibody cocktail' aimed at non-vaccine patients
I'm not recruiting for Astrazeneca, but news broke this morning that they are to start phase 3 clinical trials of a long-acting antibody combination AZD7442. This will be aimed at helping clinically vulnerable groups, including immunosuppressed, for whom the COVID vaccines may not be effective https:
I'm not recruiting for Astrazeneca, but news broke this morning that they are to start phase 3 clinical trials of a long-acting antibody combination AZD7442. This will be aimed at helping clinically vulnerable groups, including immunosuppressed, for whom the COVID vaccines may not be effective https:
bennevisplace
in
CLL Support
4 years ago
New diagnosis
I’ve just stumbled across a new diagnosis of Bronchiectasis on my Patient Access record. I have UCTD /lupus and bronchiolitis already. Will anything need to change for me ? I take Trelegy and immunosuppression (Mycophenolate and pred) and keep as active as I can. Feeling a bit scared of this new label
I’ve just stumbled across a new diagnosis of Bronchiectasis on my Patient Access record. I have UCTD /lupus and bronchiolitis already. Will anything need to change for me ? I take Trelegy and immunosuppression (Mycophenolate and pred) and keep as active as I can. Feeling a bit scared of this new label
Fennella02
in
Lung Conditions Community Forum
4 years ago
Almost 2 year-long cold
At first I thought maybe i am just catching different colds being on
immunosuppressants
and all but obviously this year there was a significant drop of going outside and i still had this cold!
At first I thought maybe i am just catching different colds being on
immunosuppressants
and all but obviously this year there was a significant drop of going outside and i still had this cold!
Sandy1212
in
LUPUS UK
4 years ago
Update for people with liver disease on the Covid-19 vaccine
Update for people with liver disease on the Covid-19 vaccine The recent news that a Covid-19 vaccine has been effective in trials will bring hope to liver patients, many of whom are clinically extremely vulnerable and might experience more severe symptoms if they were to catch the virus. Although
Update for people with liver disease on the Covid-19 vaccine The recent news that a Covid-19 vaccine has been effective in trials will bring hope to liver patients, many of whom are clinically extremely vulnerable and might experience more severe symptoms if they were to catch the virus. Although
Hidden
British Liver Trust
in
British Liver Trust
4 years ago
NRAS statement on the breaking news regarding the Pfizer Vaccine
The Pfizer vaccine is not a live vaccine but there are many other vaccines in the pipeline – some live, but most not. Most vaccine trials have excluded people with rheumatic disease on immune modulation from participation, so we currently do not have data to base decisions upon if they will be safe
The Pfizer vaccine is not a live vaccine but there are many other vaccines in the pipeline – some live, but most not. Most vaccine trials have excluded people with rheumatic disease on immune modulation from participation, so we currently do not have data to base decisions upon if they will be safe
Hidden
in
NRAS
4 years ago
thanks for your help
thanks to all of you My thyroid issues are due to MS and being treated with an immunosuppressant some years ago. I was told to decrease from 100 to 125 before lockdown in March because my thyroid seemed to be recovering, and so I decided to go down to 100 instead. This was too low apparently because
thanks to all of you My thyroid issues are due to MS and being treated with an immunosuppressant some years ago. I was told to decrease from 100 to 125 before lockdown in March because my thyroid seemed to be recovering, and so I decided to go down to 100 instead. This was too low apparently because
fastandslow
in
Thyroid UK
4 years ago
Methotrexate or Not?
I have PMR and have been tapering prednisone for the past year. I amcurrently at 6mg. My rheumy is pushy and insists I decrease by 1mg each month. I am not so compliant due to pain, so I am choosing to decrease at 1/2mg per month. We butt heads often because he wants to add Methotrexate. Today he called
I have PMR and have been tapering prednisone for the past year. I amcurrently at 6mg. My rheumy is pushy and insists I decrease by 1mg each month. I am not so compliant due to pain, so I am choosing to decrease at 1/2mg per month. We butt heads often because he wants to add Methotrexate. Today he called
Zareda
in
PMRGCAuk
4 years ago
Low Lymphocyte Count - does it matter?
My gp surgery just sent me a record of my last twelve months of DMARD monitoring test results. My White Blood Count and Neutrophil Count are always just inside the normal range (on the low end), but my Lymphocyte count has been dropping and is now down to 1.13 (normal range is 1.5 to 4.5). This hasn't
My gp surgery just sent me a record of my last twelve months of DMARD monitoring test results. My White Blood Count and Neutrophil Count are always just inside the normal range (on the low end), but my Lymphocyte count has been dropping and is now down to 1.13 (normal range is 1.5 to 4.5). This hasn't
mjrminor
in
NRAS
4 years ago
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