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German tara
HI EVERYONE went docter or could be inhalers s bout dry mouth told her it's like sandpaper my tongue abit sore doesn't stop me eating but my taste not good docter says there's nothing I can give you only thing we have is for peaple wh on end life care so was waste off time just have to
HI EVERYONE went docter or could be inhalers s bout dry mouth told her it's like sandpaper my tongue abit sore doesn't stop me eating but my taste not good docter says there's nothing I can give you only thing we have is for peaple wh on end life care so was waste off time just have to
Germantara
in
Lung Conditions Community Forum
6 months ago
Possible relapse, trouble seeing Rheumatologist.
Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to conversation. I was diagnosed with GPA in 2015. Put on pred and mycophenolate initially, then two rounds of rituximab. I have been med free since 2016
Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to conversation. I was diagnosed with GPA in 2015. Put on pred and mycophenolate initially, then two rounds of rituximab. I have been med free since 2016
lollypocket
in
Vasculitis UK
6 months ago
Fostair & dry mouth
Just started Fostair nextinhaler this week whilst in hospital for acute severe asthma. Have a very dry mouth & angular stomatitis (cracks in corner of mouth). Does anyone else have the same issues?
Just started Fostair nextinhaler this week whilst in hospital for acute severe asthma. Have a very dry mouth & angular stomatitis (cracks in corner of mouth). Does anyone else have the same issues?
Easybreath
in
Asthma Community Forum
6 months ago
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Migraine and visual hallucinations
I’ve suffered with migraines for many years since I was about 11 (I’m 35 now). Anyway as I’ve gotten older they’ve thankfully become less frequent and severe (though I take propranalol to prevent). I had an attack begin late last night with my usual blind spots and visual disturbance. It was bed time
I’ve suffered with migraines for many years since I was about 11 (I’m 35 now). Anyway as I’ve gotten older they’ve thankfully become less frequent and severe (though I take propranalol to prevent). I had an attack begin late last night with my usual blind spots and visual disturbance. It was bed time
PTNewbie
in
National Migraine Centre
6 months ago
Just diagnosed this week
Hi Glaucoma community,I have been diagnosed with early stage glaucoma this week, in one eye. I'm 46 years old, female. My eye pressures in both eyes were 21 - so borderline from what I understand. I had a central retinal vein occlusion in my right eye in 2016 and saw a consultant for18 months until it
Hi Glaucoma community,I have been diagnosed with early stage glaucoma this week, in one eye. I'm 46 years old, female. My eye pressures in both eyes were 21 - so borderline from what I understand. I had a central retinal vein occlusion in my right eye in 2016 and saw a consultant for18 months until it
Eyespy1
in
Glaucoma UK
6 months ago
Can’t sleep
I was diagnosed in May of this year.. Started with double vision. I also have seizures, mostly controlled. I can’t sleep hardly at all. Tried several meds, nothing. Very frustrating. I get maybe 3, maybe 4 hours if lucky. There have been some nights I haven’t slept at all? Anyone else have
I was diagnosed in May of this year.. Started with double vision. I also have seizures, mostly controlled. I can’t sleep hardly at all. Tried several meds, nothing. Very frustrating. I get maybe 3, maybe 4 hours if lucky. There have been some nights I haven’t slept at all? Anyone else have
Cinjav
in
PSP Association
6 months ago
Simbrinza shortage?
Over the years my opthamologist and I have settled on Simbrinza eye drops as the best for my glaucoma. Yesterday my pharmacist tells me he can't find the drops anywhere and he's going to keep looking. We're in SE London area. Any suggestions? Thanks
Over the years my opthamologist and I have settled on Simbrinza eye drops as the best for my glaucoma. Yesterday my pharmacist tells me he can't find the drops anywhere and he's going to keep looking. We're in SE London area. Any suggestions? Thanks
meandpd
in
Glaucoma UK
4 months ago
Appointment Update
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Mitziecat
in
Glaucoma UK
1 month ago
Blepharitis
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
Golden87
in
Glaucoma UK
6 months ago
GCA flares and eyesight
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Gladys911
in
PMRGCAuk
6 months ago
Anyone opted for private Cataract surgery?
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Chann
in
NRAS
6 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
4 months ago
Sjogrens - eye pain/migraine
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
Texgirl
in
NRAS
6 months ago
Hi all. I have had concussion since August, after a fall when I banged my head. Although improving, I have a problem with bright light/glare
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
Braininfo
in
Headway
6 months ago
Cataract surgery advice please.
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
Quiet_Lin
in
Glaucoma UK
6 months ago
Starbursts from new glasses driving me insane. Can anyone help?
Hi, I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the Transitions because I didn't like the frames, but right at the outset I noticed I was suddenly getting these epic starbursts on lights (with both pairs), particularly in the distance
Hi, I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the Transitions because I didn't like the frames, but right at the outset I noticed I was suddenly getting these epic starbursts on lights (with both pairs), particularly in the distance
Chancery
in
Anxiety Support
6 months ago
Starburst problem with new specs
Hi, I don't have glaucoma, but I'm hoping someone might be able to help me here as I have been Googling my issue all night. So, sorry if this is completely off-topic for you guys! I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the
Hi, I don't have glaucoma, but I'm hoping someone might be able to help me here as I have been Googling my issue all night. So, sorry if this is completely off-topic for you guys! I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the
Chancery
in
Glaucoma UK
6 months ago
Surgery and immuno suppressants
Hi everyone. I am due to have minor surgery on my wrist and have been asked by my surgeon to cease taking mycophenolate for a week before and a week after my operation (I presumed because of possible risk of infection?). I spoke to my rheumatologist about this and she considered it unnecessary to stop
Hi everyone. I am due to have minor surgery on my wrist and have been asked by my surgeon to cease taking mycophenolate for a week before and a week after my operation (I presumed because of possible risk of infection?). I spoke to my rheumatologist about this and she considered it unnecessary to stop
cheeselover342
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
New to Peginterferon - Any suggestions to help with bowel cramps?
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
Lyndjs
in
MPN Voice
6 months ago
Drugs.com FDA Investigating Serious Risk of T-cell Malignancy Following BCMA-Directed (CAR) T cell Immunotherapies
https://newsletters.drugs.com/l/HXdBAPWpNu8924jmwPHb3VvA/LQCEtlvhvlnyLNQoIP4Gfw/jLVV3dtGc2BI8hLRqrMq892g [i]"Although the overall benefits of these products continue to outweigh their potential risks for their approved uses, FDA is investigating the identified risk of T cell malignancy with serious
https://newsletters.drugs.com/l/HXdBAPWpNu8924jmwPHb3VvA/LQCEtlvhvlnyLNQoIP4Gfw/jLVV3dtGc2BI8hLRqrMq892g [i]"Although the overall benefits of these products continue to outweigh their potential risks for their approved uses, FDA is investigating the identified risk of T cell malignancy with serious
JerrysGirl3
in
CLL Support
6 months ago
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