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Acalabrutinib/COVID/swollen lymph nodes under arm
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Tofa80
in
CLL Support
9 months ago
feeling cold
got af and am always cold is this a symptom of it . Also pain in left arm when I lay on that side in bed . It usually happens in middle of arm .advice welcome
got af and am always cold is this a symptom of it . Also pain in left arm when I lay on that side in bed . It usually happens in middle of arm .advice welcome
Jarvo977
in
AF Association
6 months ago
Heart problems and the Covid autumn booster
Just had an interesting thought I'm below the 65 age limit for the covid autumn booster but I automatically get the flu jab each year as I have other problems. After having a heart attack last year would this qualify me for the autumn booster or not I had it last autumn but the goal post for age has
Just had an interesting thought I'm below the 65 age limit for the covid autumn booster but I automatically get the flu jab each year as I have other problems. After having a heart attack last year would this qualify me for the autumn booster or not I had it last autumn but the goal post for age has
Coopergirl52
in
British Heart Foundation
9 months ago
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If it’s not one thing, it's another! Update
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Gulfstream_Maggie
in
Fibromyalgia Action UK
9 months ago
Tortuous colon
At my last colonoscopy (at age 60) the doc told me, upon awakening, that I had a "tortuous" colon. This was a surprise to me as I've had 3 or 4 previous colonoscopies in my life and have never been told that before. I have suffered with bloat, discomfort, gas, and other issues throughout my life, though
At my last colonoscopy (at age 60) the doc told me, upon awakening, that I had a "tortuous" colon. This was a surprise to me as I've had 3 or 4 previous colonoscopies in my life and have never been told that before. I have suffered with bloat, discomfort, gas, and other issues throughout my life, though
Best_me
in
IBS Network
1 year ago
Rise in CA125
I’ve recently have had Pneumonia and Pleurisy. My CA125 was checked yesterday and my CNS has just called me to say that it has risen to 64. She also said that it can rise due to the pneumonia and they will discuss it at next weeks MDT meeting. There is a possibility they may repeat my bloods in 4 weeks
I’ve recently have had Pneumonia and Pleurisy. My CA125 was checked yesterday and my CNS has just called me to say that it has risen to 64. She also said that it can rise due to the pneumonia and they will discuss it at next weeks MDT meeting. There is a possibility they may repeat my bloods in 4 weeks
Hota
in
My Ovacome
6 months ago
post Covid setback
Does anyone have experience with b12d recovery setbacks after Covid? I am 2 months into weekly injections, and had really started so see improvements. Then Covid struck. I am 18 days post-positive test…and my leg tremors have become far more noticeable, along with a resurgence of nerve pains in my hands
Does anyone have experience with b12d recovery setbacks after Covid? I am 2 months into weekly injections, and had really started so see improvements. Then Covid struck. I am 18 days post-positive test…and my leg tremors have become far more noticeable, along with a resurgence of nerve pains in my hands
MuppDog
in
Pernicious Anaemia Society
9 months ago
Your top 7 questions about fall vaccines answered by Your Local Epidemiologist KATELYN JETELINA AUG 29, 2023
Your top 7 questions about fall vaccines answered KATELYN JETELINA AUG 29, 2023 https://yourlocalepidemiologist.substack.com/p/your-top-7-questions-about-fall-vaccines?utm_source=substack&utm_medium=email Thank you for all of your questions! You’re keeping us busy here at YLE. Here are answers to the
Your top 7 questions about fall vaccines answered KATELYN JETELINA AUG 29, 2023 https://yourlocalepidemiologist.substack.com/p/your-top-7-questions-about-fall-vaccines?utm_source=substack&utm_medium=email Thank you for all of your questions! You’re keeping us busy here at YLE. Here are answers to the
lankisterguy
Volunteer
in
CLL Support
9 months ago
Inflammatory Pain and T
I have had T for over two years now following an attack of vertigo with varying diagnoses of labyrinthitis, bppv or vestibular neuritis, none of which have ever been confirmed.. and after all this time I feel stuck with no sign of reaching habituation.. I had months of complaining of a dullness in my
I have had T for over two years now following an attack of vertigo with varying diagnoses of labyrinthitis, bppv or vestibular neuritis, none of which have ever been confirmed.. and after all this time I feel stuck with no sign of reaching habituation.. I had months of complaining of a dullness in my
Shozza1
in
Tinnitus UK
10 months ago
Head Pains
Hi, today am experiencing intermittent dull head pain on right hand side at top of head and down towards behind of ear. Not excruciating by any means and (touch wood) no jaw pain etc but it's new and obviously worried re GCA! Any ideas/advice/similar experiences please. I've just (last Weds) reduced
Hi, today am experiencing intermittent dull head pain on right hand side at top of head and down towards behind of ear. Not excruciating by any means and (touch wood) no jaw pain etc but it's new and obviously worried re GCA! Any ideas/advice/similar experiences please. I've just (last Weds) reduced
Pusph
in
PMRGCAuk
10 months ago
new hear
Hi everyone. I’m a survivor of a traumatic childhood. And over the years, have been in private and group therapy(typical). With a little success . I’m reading the book the body keeps the score. In it, the author talks about emdr and neurofeedback and some other things I have not tried. But I don’
Hi everyone. I’m a survivor of a traumatic childhood. And over the years, have been in private and group therapy(typical). With a little success . I’m reading the book the body keeps the score. In it, the author talks about emdr and neurofeedback and some other things I have not tried. But I don’
Notmuch
in
Anxiety and Depression Support
5 months ago
Reynaud's Problems
Hi there, I'm wondering if anyone has any help or suggestions for me keeping my fingers warm at my work, I'm a postman and my Reynaud's is causing me big problems when the weather is cold my fingers go so cold and numb, I've tried different kind of gloves but nothing works.
Hi there, I'm wondering if anyone has any help or suggestions for me keeping my fingers warm at my work, I'm a postman and my Reynaud's is causing me big problems when the weather is cold my fingers go so cold and numb, I've tried different kind of gloves but nothing works.
Craig_
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Greater susceptibility???
Read this, posted in another group: “BA.2.86 may be more capable of causing infection in people who have previously had COVID-19 or who have received COVID-19 vaccines.” Approved COVID vaccine that may make us more susceptible to the new COVID variant? Good grief!
Read this, posted in another group: “BA.2.86 may be more capable of causing infection in people who have previously had COVID-19 or who have received COVID-19 vaccines.” Approved COVID vaccine that may make us more susceptible to the new COVID variant? Good grief!
Hisue
in
NRAS
9 months ago
no help at all :(
okay here I go I quit alcohol and during the first week the anxiety and depression went off the charts. Crying everyday, staring at floor couldn’t move. It was really bad. Third week started to date I say get a little better and then 5 days ago I got Covid-19. Can you even believe it? So I’ve been getting
okay here I go I quit alcohol and during the first week the anxiety and depression went off the charts. Crying everyday, staring at floor couldn’t move. It was really bad. Third week started to date I say get a little better and then 5 days ago I got Covid-19. Can you even believe it? So I’ve been getting
Overthis1
in
Anxiety and Depression Support
9 months ago
A Fib and Covid.
Hi everyone, I am in the middle of a Covid Infection at the moment and feeling quite poorly. I haven't had an A Fib attack for ages, but am now in the middle of one that has gone on for four hours so far. My question is, have any other members found that Covid has affected their A Fib. Thank you, Jenny
Hi everyone, I am in the middle of a Covid Infection at the moment and feeling quite poorly. I haven't had an A Fib attack for ages, but am now in the middle of one that has gone on for four hours so far. My question is, have any other members found that Covid has affected their A Fib. Thank you, Jenny
Attic
in
AF Association
9 months ago
last tablet
hi today ( Monday ) was my last Venetoclax tablets . It has been a 12 month journey with thank goodness not too much drama . I won’t miss the nausea in the morning that’s for sure and am looking forward to having marmalade again . I just hope I can taste it as after 3 and 1/2 years of escaping covid
hi today ( Monday ) was my last Venetoclax tablets . It has been a 12 month journey with thank goodness not too much drama . I won’t miss the nausea in the morning that’s for sure and am looking forward to having marmalade again . I just hope I can taste it as after 3 and 1/2 years of escaping covid
Hilo13
in
CLL Support
9 months ago
Time for booster
I’m wondering is it worthwhile getting a booster jab this autumn. I understand covid is still around and my understanding is it’s now milder then previous strains. I have mild asthma(do take a preventer daily), I am 51 and am sitting on the fence on booster number 5. Any thoughts, experiences, those
I’m wondering is it worthwhile getting a booster jab this autumn. I understand covid is still around and my understanding is it’s now milder then previous strains. I have mild asthma(do take a preventer daily), I am 51 and am sitting on the fence on booster number 5. Any thoughts, experiences, those
Saj123456
in
Asthma Community Forum
9 months ago
eosinophilia and nasty chest cold
everything has been good for a year now. I have been prescribed another bio - Tezzy which has been life savingly wonderful. I have reduced steroids and consultant is hopeful of elimination soon. Energy levels have really improved too. So, in the last two days I have nosedived. I put this down to cold
everything has been good for a year now. I have been prescribed another bio - Tezzy which has been life savingly wonderful. I have reduced steroids and consultant is hopeful of elimination soon. Energy levels have really improved too. So, in the last two days I have nosedived. I put this down to cold
Villager2
in
Asthma Community Forum
6 months ago
Got the Covid
I got Fibro after have Lymes for 10 years undiagnosed. I got the lymes treated in the end but was told to keep well away from Covid. Now I've got the Covid. If I do get through all this (I'm in the first week) tell the truth, is it likely to make the fibro worse, cause if so, I need to plan ahead for
I got Fibro after have Lymes for 10 years undiagnosed. I got the lymes treated in the end but was told to keep well away from Covid. Now I've got the Covid. If I do get through all this (I'm in the first week) tell the truth, is it likely to make the fibro worse, cause if so, I need to plan ahead for
dinahdabble
in
Fibromyalgia Action UK
9 months ago
succumbed with guilt and what if….
Hello friends I don’t know why I am posting, maybe to get advice from people who understand but my dear father lost his battle 2 weeks ago due to sepsis and pneumonia. I took him A&E 4 days before and they completed tests and discharged him saying he just had a cough infection and provided him with
Hello friends I don’t know why I am posting, maybe to get advice from people who understand but my dear father lost his battle 2 weeks ago due to sepsis and pneumonia. I took him A&E 4 days before and they completed tests and discharged him saying he just had a cough infection and provided him with
Khalissi
in
PSP Association
6 months ago
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