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Dyskinesia
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Stripping off at Tommys
Hi all, Please accept my apologies in advance ( I really am very shallow) ! The thing is my GP is refering me back to Tommys and I appreciate how lucky I am ,But the last time I had an appointment ( 8yrs ago ) well you had to strip off down to your underwear, as I recall, No gown etc,Is it still the
Hi all, Please accept my apologies in advance ( I really am very shallow) ! The thing is my GP is refering me back to Tommys and I appreciate how lucky I am ,But the last time I had an appointment ( 8yrs ago ) well you had to strip off down to your underwear, as I recall, No gown etc,Is it still the
mully
in
Hughes Syndrome APS Forum
12 years ago
Self managing PD - Are we serious or not?
Potentially this shortens the patient’s effective life on the drug as
dyskinesia
could be more likely the longer the patient is on sinemet. I also know of two people that have been put on Stalevo (Sinemet with Entacapone) as a first drug.
Potentially this shortens the patient’s effective life on the drug as
dyskinesia
could be more likely the longer the patient is on sinemet. I also know of two people that have been put on Stalevo (Sinemet with Entacapone) as a first drug.
Leyther
in
Cure Parkinson's
12 years ago
I'm on Sinemet 25/100 (1 1/2 tablet) 4 times a day. I can honestly say it doesn't seem like my symptoms ever change, I don't feel like I
have on/off periods. My Neuro is going to have me go off my meds for 48 hours then have me come into the office and run me through the usual tests. Then he is going to medicate me and then check me again to see what changes, if anything. I was diagnosed with Parkinson's in July 2010 and initially
have on/off periods. My Neuro is going to have me go off my meds for 48 hours then have me come into the office and run me through the usual tests. Then he is going to medicate me and then check me again to see what changes, if anything. I was diagnosed with Parkinson's in July 2010 and initially
tlongmire
in
Cure Parkinson's
12 years ago
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DBS??
Hi need ur input on this.... my family thinks I shud consider DBS and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it.... I was diagnosed in 2004 when I was 36...will turn 44 at the end of this month... was on requip, withdrew from
Hi need ur input on this.... my family thinks I shud consider DBS and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it.... I was diagnosed in 2004 when I was 36...will turn 44 at the end of this month... was on requip, withdrew from
SuKas
in
Cure Parkinson's
12 years ago
Sticking and falling
Can anyone help me?I'm fed up with sticking and falling over. I broke my humerus (upper arm) last September when I fell over in the hall, then last week I fell in the kitchen and I broke the same arm just above the wrist. Then this week to crown it all whilst getting into the car I fell and broke my
Can anyone help me?I'm fed up with sticking and falling over. I broke my humerus (upper arm) last September when I fell over in the hall, then last week I fell in the kitchen and I broke the same arm just above the wrist. Then this week to crown it all whilst getting into the car I fell and broke my
camper
in
PSP Association
12 years ago
Sinemet best practice - take a tablet when you feel you need it or stick to 3 times a day and be uncomfortable.
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
Yogibear
in
Cure Parkinson's
12 years ago
Adjusting medication
Sent me wappy -
dyskinesia
and dystonia off the scale. Spoke to doctor who agreed for me to go back to 0.088mg. It took me 8 days to get back to the point where I am sleeping again through the night. On reflection I should have argued the case for me to remain on the 0.088mg x 2.
Sent me wappy -
dyskinesia
and dystonia off the scale. Spoke to doctor who agreed for me to go back to 0.088mg. It took me 8 days to get back to the point where I am sleeping again through the night. On reflection I should have argued the case for me to remain on the 0.088mg x 2.
drew410
in
Cure Parkinson's
12 years ago
I am 39 and taking 2 to 4 Madopar tablets a day do you think I will end up with dyskinesia?
I am worried that I will end up with
dyskinesia
due to my age and how early I am taking Levodopa. On Requip XL I was having sleep problems, eating in the night and sewing a lot.
I am worried that I will end up with
dyskinesia
due to my age and how early I am taking Levodopa. On Requip XL I was having sleep problems, eating in the night and sewing a lot.
Yogibear
in
Cure Parkinson's
12 years ago
How do you deal with gastroparesis?
I have been diagnosed with bile reflux disease and erosive gastritis which the doctor states is being aggravated by my gastroparesis. According to the GI gastroparesis is rather common in PD and I know that I have been diagnosed with it for at least 2 years longer than I have with PD. Anyway, if I
I have been diagnosed with bile reflux disease and erosive gastritis which the doctor states is being aggravated by my gastroparesis. According to the GI gastroparesis is rather common in PD and I know that I have been diagnosed with it for at least 2 years longer than I have with PD. Anyway, if I
Aharris2006
in
Cure Parkinson's
12 years ago
Pramipexole
I noticed that my tremors were getting worse and
dyskinesia
playing up as well but tried to keep going as per instructions. The program was to increase the tablets by 2 every 2 weeks until I ws taking a maximum of 6. Well, after only 2 nights of 1 x .52mg my life turned into a nightmare.
I noticed that my tremors were getting worse and
dyskinesia
playing up as well but tried to keep going as per instructions. The program was to increase the tablets by 2 every 2 weeks until I ws taking a maximum of 6. Well, after only 2 nights of 1 x .52mg my life turned into a nightmare.
drew410
in
Cure Parkinson's
12 years ago
This Time Last Year …
I’m taking a lot more meds now and have a little
dyskinesia
, but even that is mild at this point. Two: I exercise 4-6 times a week in a health club with a trainer who is familiar with PD. I do aerobic (walking on treadmills mostly), machine and free weights, and balance exercises.
I’m taking a lot more meds now and have a little
dyskinesia
, but even that is mild at this point. Two: I exercise 4-6 times a week in a health club with a trainer who is familiar with PD. I do aerobic (walking on treadmills mostly), machine and free weights, and balance exercises.
MichaelOM
in
Cure Parkinson's
12 years ago
An accident that changed my whole outlook on life as a PWP
The peak day was a Thursday when
dyskinesia
and dystonia hit me big time. I had a few diazepam and eventually things relaxed. The next morning I phoned the hospital where the neuro was based but the ward was shut for the day. I then contacted my GP who asked me what i wanted to do about the meds.
The peak day was a Thursday when
dyskinesia
and dystonia hit me big time. I had a few diazepam and eventually things relaxed. The next morning I phoned the hospital where the neuro was based but the ward was shut for the day. I then contacted my GP who asked me what i wanted to do about the meds.
drew410
in
Cure Parkinson's
12 years ago
New therapies
ABSTRACT Our current wish list for the treatment of Parkinson's disease (PD) includes therapies that will provide robust and sustained antiparkinsonian benefit through the day, ameliorate or prevent
dyskinesia
, and slow or prevent the progression of the disease.
ABSTRACT Our current wish list for the treatment of Parkinson's disease (PD) includes therapies that will provide robust and sustained antiparkinsonian benefit through the day, ameliorate or prevent
dyskinesia
, and slow or prevent the progression of the disease.
Hidden
in
Cure Parkinson's
12 years ago
Anyone else get tardive dyskinesia when taking Lomotil and Phenergan?
This time I had severe episodes of tardive
dyskinesia
which I found rather disturbing. I also take 1.5mg Mirapex 3 times daily and 150mg Topamax 2 times daily, in case their addition to the mix had something to do with the reaction.
This time I had severe episodes of tardive
dyskinesia
which I found rather disturbing. I also take 1.5mg Mirapex 3 times daily and 150mg Topamax 2 times daily, in case their addition to the mix had something to do with the reaction.
Aharris2006
in
Cure Parkinson's
12 years ago
2012
My sincerest,warmest wishes of good luck and happiness to you all for 2012... May your days be less painfull May your memory be bettered stored May you all live a little happiness where hospitals leave us bored Let your limbs be more nimble And hurt less than the month before May the tia's
My sincerest,warmest wishes of good luck and happiness to you all for 2012... May your days be less painfull May your memory be bettered stored May you all live a little happiness where hospitals leave us bored Let your limbs be more nimble And hurt less than the month before May the tia's
Andrewl
in
Hughes Syndrome APS Forum
12 years ago
AZILECT & DYSKINESIAS
Began Azilect last of 2011, I think, and dyskinesas starts and continues for several hours and/or throughout the day. 1 hour ago I took my one Azilect for the day and I have tremors, legs jumping, stiff and my emotions are "shot." Any commens or suggestions or help would be appreciated. Thank you!
Began Azilect last of 2011, I think, and dyskinesas starts and continues for several hours and/or throughout the day. 1 hour ago I took my one Azilect for the day and I have tremors, legs jumping, stiff and my emotions are "shot." Any commens or suggestions or help would be appreciated. Thank you!
Dennis
in
Cure Parkinson's
12 years ago
Mirapex ER......
Mirapex is 1 of the 3 meds i take daily. I have found it is the Mirapex that's causing me to have a bad sore gut all the time. I live on crackers and tums to keep the acids in check and not feel sick to my stomach. I am new to this, is this something that will fade or what.... Also, the Sudden Sleep
Mirapex is 1 of the 3 meds i take daily. I have found it is the Mirapex that's causing me to have a bad sore gut all the time. I live on crackers and tums to keep the acids in check and not feel sick to my stomach. I am new to this, is this something that will fade or what.... Also, the Sudden Sleep
sbtexas
in
Cure Parkinson's
13 years ago
Needing to get involved...
I have a blog on word press, it helps me get my feelings out. I really love to write and do not get much time anymore to do so. I am 35 (almost 36) dx with Parkinson's in July. For the last few months I had been doing really well. The amatadine was working really well for me especially for the fatigue
I have a blog on word press, it helps me get my feelings out. I really love to write and do not get much time anymore to do so. I am 35 (almost 36) dx with Parkinson's in July. For the last few months I had been doing really well. The amatadine was working really well for me especially for the fatigue
Parkie35
in
Cure Parkinson's
13 years ago
Has anyone else had swollen ankles and skin rashes from amantadine? And do the good effects of amantadine disappear over time?
dottie
in
Cure Parkinson's
13 years ago
As of late (during off times) I have been experiencing facial dyskinesia. I am 6 yrs from onset. Anyone had this same experience?
Timodopa
in
Cure Parkinson's
12 years ago
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