Search
Search
About
Log in
Join
Experiences with
Dyskinesia
Posts
Communities
908 public posts
Filter results
Moving to Spain
My wife and I, encouraged by friends, have finally decided to move to Spain This is mainly to ease my p.d as I'm up near the higher doses of Stalevo and the
dyskinesia
drives me mad. What I would like to know is:well, everything!
My wife and I, encouraged by friends, have finally decided to move to Spain This is mainly to ease my p.d as I'm up near the higher doses of Stalevo and the
dyskinesia
drives me mad. What I would like to know is:well, everything!
John3419
in
Cure Parkinson's
6 years ago
Feeling good tonight.
I have a gambling problem when i take Ropinirole. But it works so good i think it is worth the risk. I took 2 6 mg today vs 1. I have felt better today than i have in the last month. If i waste $10,000 a year it is worth it to be without pain. If a person smokes 2 packs a day that is about $5,000
I have a gambling problem when i take Ropinirole. But it works so good i think it is worth the risk. I took 2 6 mg today vs 1. I have felt better today than i have in the last month. If i waste $10,000 a year it is worth it to be without pain. If a person smokes 2 packs a day that is about $5,000
Bailey_Texas
in
Cure Parkinson's
6 years ago
Email From Dr. Costantini June 14, 2018
Dr. Costantini sent this yesterday regarding Levodopa and Thiamine and their synergy together, but it was not translated correctly so I sent it back to him and he corrected it. This is his revised version: Dear Art, The doses of levodopa taken by the patients who write to me are very low. This (I think
Dr. Costantini sent this yesterday regarding Levodopa and Thiamine and their synergy together, but it was not translated correctly so I sent it back to him and he corrected it. This is his revised version: Dear Art, The doses of levodopa taken by the patients who write to me are very low. This (I think
Hidden
in
Cure Parkinson's
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Going off requip (ropinirole)
Tonight I can’t sleep due to what I think is
dyskinesia
. It’s mainly in my left leg But it is troublesome enough to be keeping me up awake at three in the morning. Should I self diagnose and take some additional ropinirole now or gut it out and call the neurologist first thing tomorrow morning?
Tonight I can’t sleep due to what I think is
dyskinesia
. It’s mainly in my left leg But it is troublesome enough to be keeping me up awake at three in the morning. Should I self diagnose and take some additional ropinirole now or gut it out and call the neurologist first thing tomorrow morning?
Stuartep121
in
Cure Parkinson's
6 years ago
Had to fall back on Rx Sinemet for 2days&Mental focus poor
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic carbidopa/levodopa. I drove to a restaurant and place an order and then realized I didn’t have my wallet . I walked out to the car didn’t have keys in my pocket .
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic carbidopa/levodopa. I drove to a restaurant and place an order and then realized I didn’t have my wallet . I walked out to the car didn’t have keys in my pocket .
BUZZ1397
in
Cure Parkinson's
6 years ago
Trials
Since 2012 I continuously tried various approaches and gauged or judged the benefit: sinemet, coconut oil, amantadine, keto diet, Neupro patches, mucuna, plus other park drug's name I cannot recall. This list could be longer. In all I never experienced placebo effect nor notable improvement. Thiamin
Since 2012 I continuously tried various approaches and gauged or judged the benefit: sinemet, coconut oil, amantadine, keto diet, Neupro patches, mucuna, plus other park drug's name I cannot recall. This list could be longer. In all I never experienced placebo effect nor notable improvement. Thiamin
Hidden
in
Cure Parkinson's
6 years ago
Slow Developing Parkinson's Symptoms
But I'm of the mind to minimize
dyskinesia
by taking just enough Sinemet to feel very minor dyskinesias (foot clenching, teeth grinding, body movement). My doctor has been very encouraging saying, "I really thing something else will get you before Parkinson's does."
But I'm of the mind to minimize
dyskinesia
by taking just enough Sinemet to feel very minor dyskinesias (foot clenching, teeth grinding, body movement). My doctor has been very encouraging saying, "I really thing something else will get you before Parkinson's does."
sandog
in
Cure Parkinson's
6 years ago
My Sinemet CR plus IR protocol
I take one 50/200 CR plus one half of 25/100 IR every 4 hours. Also, amantadine, 100 mg twice per day. Also, 10 mg methylphenidate once per day. The CR + IR at 2,6,10 am and 2,6,10 pm. I am still in a rehab facility wherein pd meds and meals -served times are almost always in conflict. 7.45 am and 11.45
I take one 50/200 CR plus one half of 25/100 IR every 4 hours. Also, amantadine, 100 mg twice per day. Also, 10 mg methylphenidate once per day. The CR + IR at 2,6,10 am and 2,6,10 pm. I am still in a rehab facility wherein pd meds and meals -served times are almost always in conflict. 7.45 am and 11.45
aspergerian
in
Cure Parkinson's
6 years ago
Shortness of breath in PD “respiratory dyskinesia”
Shortness of breath can have many causes, but someone with Parkinson’s disease has an unusual possibility, called “respiratory
dyskinesia
” (which just means “abnormal movement of the muscles of breathing”).
Shortness of breath can have many causes, but someone with Parkinson’s disease has an unusual possibility, called “respiratory
dyskinesia
” (which just means “abnormal movement of the muscles of breathing”).
Farooqji
in
Cure Parkinson's
6 years ago
Relationship Between Levodopa and Dyskinesias and How Thiamine Can Help
Dr Costantini has told me that people who are taking Sinemet with Thiamine WILL NOT develop
Dyskinesia
even in long-term use. I very much appreciate Dr Marco Colangeli for his professional opinion and other forum members for their inputs.
Dr Costantini has told me that people who are taking Sinemet with Thiamine WILL NOT develop
Dyskinesia
even in long-term use. I very much appreciate Dr Marco Colangeli for his professional opinion and other forum members for their inputs.
Kia17
in
Cure Parkinson's
6 years ago
Mucuna Pruriens
I was on Sinemet for about 4 years and developed
dyskinesia
and had to consider other options. After trying a few other medications that also came with almost immediate side effects I started searching for natural options. I have been using this herb for the past 8 years with good results.
I was on Sinemet for about 4 years and developed
dyskinesia
and had to consider other options. After trying a few other medications that also came with almost immediate side effects I started searching for natural options. I have been using this herb for the past 8 years with good results.
DBS2018
in
Cure Parkinson's
6 years ago
Stalevo vs mucuna pruriens
Yesterday I went to my doctor with a question: Can I replace stalevo with mucuna pruriens, on the grounds that the first is a chemical drug whereas the second is a natural plant extract. She said NO, because 1) You cannot control the amount of l-dopa contained in each mucuna capsule, so there is a chance
Yesterday I went to my doctor with a question: Can I replace stalevo with mucuna pruriens, on the grounds that the first is a chemical drug whereas the second is a natural plant extract. She said NO, because 1) You cannot control the amount of l-dopa contained in each mucuna capsule, so there is a chance
christos_k
in
Cure Parkinson's
6 years ago
GOCOVRI could potentially delay the onset or reduce the progression...........
Sounds interesting: https://parkinsonsnewstoday.com/2018/04/24/gocovri-improves-
dyskinesia
-over-long-term-parkinsons-phase-3-trial/?utm_medium=desktop-push-notification&utm_source=Notifications&utm_campaign=OneSignal
Sounds interesting: https://parkinsonsnewstoday.com/2018/04/24/gocovri-improves-
dyskinesia
-over-long-term-parkinsons-phase-3-trial/?utm_medium=desktop-push-notification&utm_source=Notifications&utm_campaign=OneSignal
dadcor
in
Cure Parkinson's
6 years ago
The single biggest predictor of the rate of Parkinson's progression is if you are lonely. Finding by Dr. Laurie Mischley 4/25/18
Pretty interesting article "Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious
Pretty interesting article "Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious
MBAnderson
in
Cure Parkinson's
6 years ago
Microtablet dispenser - sounds like a good idea.
25th April 2018 - New research MICROTABLET DISPENSER FOR MORE PRECISE L-DOPA DOSAGE CLICK HERE FOR A PRINTABLE OR WHITE BACKGROUND VERSION OF THIS ARTICLE A study has assessed the effect of introducing a microtablet dose dispenser and adjusting doses based on the monitoring of motor symptoms in people
25th April 2018 - New research MICROTABLET DISPENSER FOR MORE PRECISE L-DOPA DOSAGE CLICK HERE FOR A PRINTABLE OR WHITE BACKGROUND VERSION OF THIS ARTICLE A study has assessed the effect of introducing a microtablet dose dispenser and adjusting doses based on the monitoring of motor symptoms in people
rebtar
in
Cure Parkinson's
6 years ago
Amantadine effect and parkinson!
does it last for a couples of hours or all the day and does it help for slow movment -rigidity -
dyskinesia
?any side effects ?
does it last for a couples of hours or all the day and does it help for slow movment -rigidity -
dyskinesia
?any side effects ?
jack-carpenter12
in
Cure Parkinson's
6 years ago
What Gabapentin has done for me.
I have been taking Gabapentin for the pain in my feet about a month. It has worked, i no longer nave any issues with my feet. They still tingle some but it is so light i hardly notice. Before i started taking Gabapentin my feet would at times keep me from from going to sleep and when driving more
I have been taking Gabapentin for the pain in my feet about a month. It has worked, i no longer nave any issues with my feet. They still tingle some but it is so light i hardly notice. Before i started taking Gabapentin my feet would at times keep me from from going to sleep and when driving more
Bailey_Texas
in
Cure Parkinson's
6 years ago
Amantidine. 100 mg
Dyskinesia
was awful. Finally got this. I’m still adjusting 1 tab 2 x a day still have some tremors but
dyskinesia
is all but gone. I also started probiotics & b12. About same time. Hope it keeps improving. I might try 3 x a day n cut down on CL
Dyskinesia
was awful. Finally got this. I’m still adjusting 1 tab 2 x a day still have some tremors but
dyskinesia
is all but gone. I also started probiotics & b12. About same time. Hope it keeps improving. I might try 3 x a day n cut down on CL
Idofotos
in
Cure Parkinson's
6 years ago
Ciliary dyskinesia? Allergies? Who knows?!?!
I am a mom of 20 month old twins. Focusing on Baby B. Baby B was born c section and immediately had respiratory issue and 16 days in NICU. Only needed 2 days of high flow O2. Rest of the days were spent were said because of brady/apnea or reflux. 4mos..notices alot of nasal drainage. 7 mos old 4 days
I am a mom of 20 month old twins. Focusing on Baby B. Baby B was born c section and immediately had respiratory issue and 16 days in NICU. Only needed 2 days of high flow O2. Rest of the days were spent were said because of brady/apnea or reflux. 4mos..notices alot of nasal drainage. 7 mos old 4 days
Sstevens84
in
PCD Family Support Group (UK)
6 years ago
amantadine side effects?-sinemet CR?
hello.i started taking amantadine these days but i read it have some side effects like molten skin and swollen ankles so is that happen as a side effect on kidney or liver -im suffering from
dyskinesia
which last up to 2 hours after talking my sinemet dose so is changing regular sinemet to CR can help
hello.i started taking amantadine these days but i read it have some side effects like molten skin and swollen ankles so is that happen as a side effect on kidney or liver -im suffering from
dyskinesia
which last up to 2 hours after talking my sinemet dose so is changing regular sinemet to CR can help
jack-carpenter12
in
Cure Parkinson's
6 years ago
1
...
29
30
31
...
46
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
801 results
PSP Association
29 results
PCD Family Support Group (UK)
13 results
View top 10 communities
Sort by
Most Relevant
Newest