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NUREX - 2127 ONE YEAR ANNIVERSARY STARTING CYCLE 14
Here's an update of my second clinical trial. I started this BTK degraeder November 11, 2021, now here I am, over a year later and doing really well. Other than neutropenia, and having to get a monthly neulasta injection, my blood counts have continued trending to normal levels. Here are my starting
Here's an update of my second clinical trial. I started this BTK degraeder November 11, 2021, now here I am, over a year later and doing really well. Other than neutropenia, and having to get a monthly neulasta injection, my blood counts have continued trending to normal levels. Here are my starting
steve5441
in
CLL Support
1 year ago
Guilty or not ???
Today, after a few days of increasing pain in my neck, started on left side on Wednesday this morning also right side, I have taken extra 5mg Pred without consulting my GP who has previously indicated he was happy for me to manage my medication. For about 4 weeks now I have managed with 6mg Pred, so
Today, after a few days of increasing pain in my neck, started on left side on Wednesday this morning also right side, I have taken extra 5mg Pred without consulting my GP who has previously indicated he was happy for me to manage my medication. For about 4 weeks now I have managed with 6mg Pred, so
Golf-1
in
PMRGCAuk
11 months ago
Post Ablation Diagnosis
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
Nakesero
in
Atrial Fibrillation Support
11 months ago
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Tough Questions
He has also been considered for two
clinical
trials
, but with insurance dragging their feet, and now low platelets, he has lost both of those spots.
He has also been considered for two
clinical
trials
, but with insurance dragging their feet, and now low platelets, he has lost both of those spots.
Sipj
in
Advanced Prostate Cancer
2 years ago
Israeli Device Offers Solution to Baby’s Stuck Shoulder at Birth
Starting
trials
FetalEase was granted approval by the US Food and Drug Administration (FDA) to initiate a US clinical study to begin this fall. If all goes well, the Yaari Extractor could be FDA-cleared and ready for market in late 2025.
Starting
trials
FetalEase was granted approval by the US Food and Drug Administration (FDA) to initiate a US clinical study to begin this fall. If all goes well, the Yaari Extractor could be FDA-cleared and ready for market in late 2025.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
Afraid about the hyperthyroid results
I’m a very health anxious person and read it cause afib and lead to a stroke. I’m so scared.
I’m a very health anxious person and read it cause afib and lead to a stroke. I’m so scared.
Dshadzz07
in
Thyroid UK
11 months ago
Sleep and Afib
As predicted my occasional episodes of A Fib which began in 2007 has recently become more of a problem. They are now presenting differently tho. My resting heart beat is about 60bpm and whilst in Afib they are now usually 60 to 75, only rising further when I am moving about. My question is can anyone
As predicted my occasional episodes of A Fib which began in 2007 has recently become more of a problem. They are now presenting differently tho. My resting heart beat is about 60bpm and whilst in Afib they are now usually 60 to 75, only rising further when I am moving about. My question is can anyone
Hidden
in
AF Association
11 months ago
AF - Sudden Increase To Every Night
I occasionally get a very slight twinge or spasm in my heart during some mild exertion - a gentle bike ride or lifting the hoover for example. This often kicks off an AF bout the following night. I had the twinge thing on a ride a couple of weeks ago which caused an 11 hour bout of AF, and since then
I occasionally get a very slight twinge or spasm in my heart during some mild exertion - a gentle bike ride or lifting the hoover for example. This often kicks off an AF bout the following night. I had the twinge thing on a ride a couple of weeks ago which caused an 11 hour bout of AF, and since then
Barny12
in
AF Association
11 months ago
Latest Fish test results??
I just had another Fish test completed due to the fact that the Ibrutinib that I have been on for almost 5 years is not working as well anymore. In my first Fish test many many years ago I was Trisomy 12 .The new report now shows that I have acquired both deletions of 13q and 17p and still have Trisomy
I just had another Fish test completed due to the fact that the Ibrutinib that I have been on for almost 5 years is not working as well anymore. In my first Fish test many many years ago I was Trisomy 12 .The new report now shows that I have acquired both deletions of 13q and 17p and still have Trisomy
rcusher
in
CLL Support
1 year ago
Kainos Med announces that their US Phase 2 clinical trials for their FAF inhibitor KM-819
Kainos Med announces that their US Phase 2
clinical
trials
for their FAF inhibitor KM-819 in #Parkinsons will begin in August; After optimal dose finding, 288 participants will be randomly assigned http://www.koreabiomed.com/news/articleView.html?idxno=14116
Kainos Med announces that their US Phase 2
clinical
trials
for their FAF inhibitor KM-819 in #Parkinsons will begin in August; After optimal dose finding, 288 participants will be randomly assigned http://www.koreabiomed.com/news/articleView.html?idxno=14116
Hidden
in
Cure Parkinson's
2 years ago
T-CELLs Collected
Firstly, may I thank everyone for their good wishes and interest in my first post concerning my CAR-T journey.Well, after a rocky start searching for suitable veins, I am happy to report that my day of T-Cell collection (Apheresis) went well with approximately 250ml collected. Photo of my little bag
Firstly, may I thank everyone for their good wishes and interest in my first post concerning my CAR-T journey.Well, after a rocky start searching for suitable veins, I am happy to report that my day of T-Cell collection (Apheresis) went well with approximately 250ml collected. Photo of my little bag
casanova
in
CLL Support
1 year ago
Amiodarone experience of??
I am a 57 year old lady and I was diagnosed with Persistent AF in October of last year (A&E admittance at 190 BPM), was prescribed Edoxaban & Bisoprolol. Note - I have no underlying health issues of any kind and my AF is described as "cryptogenic". Cardioversion Nov 22, went into NSM for only 10
I am a 57 year old lady and I was diagnosed with Persistent AF in October of last year (A&E admittance at 190 BPM), was prescribed Edoxaban & Bisoprolol. Note - I have no underlying health issues of any kind and my AF is described as "cryptogenic". Cardioversion Nov 22, went into NSM for only 10
Tplongy
in
AF Association
11 months ago
Blood pressure warning
More fun and frolics. Before I went to pamper myself in Montenegro (swimming in the sea, lounging on the Cabana) I checked my blood pressure which I do regularly and noticed a little warning sign like a heart next to my diastolic. The literature said to seek advice so I asked him in doors and he casually
More fun and frolics. Before I went to pamper myself in Montenegro (swimming in the sea, lounging on the Cabana) I checked my blood pressure which I do regularly and noticed a little warning sign like a heart next to my diastolic. The literature said to seek advice so I asked him in doors and he casually
EdithWales
in
PMRGCAuk
11 months ago
Pregnant and just had 2nd pyschosis
Dear All, Firstly I want to say how sorry I am for some of my posts a few weeks ago, I had another psychotic episode in which I found out I was pregnant and thought the baby was from God and I was helping save the world. Anyway, I feel like I am living in a nightmare. I have three children and I now
Dear All, Firstly I want to say how sorry I am for some of my posts a few weeks ago, I had another psychotic episode in which I found out I was pregnant and thought the baby was from God and I was helping save the world. Anyway, I feel like I am living in a nightmare. I have three children and I now
Control1234
in
Action on Postpartum Psychosis
1 year ago
Smart watch blood pressure function
I love the ECG function on my Galaxy watch and the blood pressure until I noticed the instruction not to use if on meds etc. I don't understand why it's safe for Afib but not for BP. Can anyone explain please?
I love the ECG function on my Galaxy watch and the blood pressure until I noticed the instruction not to use if on meds etc. I don't understand why it's safe for Afib but not for BP. Can anyone explain please?
Countrydweller2
in
AF Association
11 months ago
rant to feel better?
I have been thinking a lot lately about the different path my life could have taken. I’m 32 and I have a 16 year old son. A 21 year old adult man got me pregnant when I was 15. My religious parents never spoke a single word to me about safe sex, and decided without me that I would have this baby.
I have been thinking a lot lately about the different path my life could have taken. I’m 32 and I have a 16 year old son. A 21 year old adult man got me pregnant when I was 15. My religious parents never spoke a single word to me about safe sex, and decided without me that I would have this baby.
Cuprea
in
Anxiety and Depression Support
1 year ago
afib related to drop in blood pressure
last week I had an extreme drop in blood pressure 87/50 and was unable to stand up or even sit up. Was taken to the hospital. Diagnosed with pneumonia and told that infection can sometimes cause drop in blood pressure particularly because of my a fib. It seems that because the lungs are so closely
last week I had an extreme drop in blood pressure 87/50 and was unable to stand up or even sit up. Was taken to the hospital. Diagnosed with pneumonia and told that infection can sometimes cause drop in blood pressure particularly because of my a fib. It seems that because the lungs are so closely
Tux18
in
AF Association
11 months ago
first time here-First post
Hi everyone. I have been on my health journey for many years through counseling for things like anger and depression. I have been fairly successful in my life and have overcome much. I raised a family and was able to cope with anxiety. But after my divorce, anxiety took root and intensified. It’s been
Hi everyone. I have been on my health journey for many years through counseling for things like anger and depression. I have been fairly successful in my life and have overcome much. I raised a family and was able to cope with anxiety. But after my divorce, anxiety took root and intensified. It’s been
JustRide
in
Anxiety and Depression Support
1 year ago
Clinical trials invitation
Clinical
trials
invitation :Study title :IMID BIOResource(Immune mediated Inflammatory Diseases) I have been sent this invitation to participate via my Rheumatology Department. It comes from The National Institute for Health Research. Only too pleased to help after 50 years of RA.
Clinical
trials
invitation :Study title :IMID BIOResource(Immune mediated Inflammatory Diseases) I have been sent this invitation to participate via my Rheumatology Department. It comes from The National Institute for Health Research. Only too pleased to help after 50 years of RA.
tinlizzie
in
NRAS
2 years ago
CLEVELAND CLINIC invites you to attend this webinar: "The Genetics of Parkinson's Disease"
He is also working on developing mentoring programs at CCLCM for under-represented population REGISTER HERE: https://pcla.org/event/genetics-of-pd/ --------------------------------------------------------------- There are over 130 international
clinical
trials
... RIGHT NO!
He is also working on developing mentoring programs at CCLCM for under-represented population REGISTER HERE: https://pcla.org/event/genetics-of-pd/ --------------------------------------------------------------- There are over 130 international
clinical
trials
... RIGHT NO!
PDWarrior1900
in
Cure Parkinson's
2 years ago
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