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Pain all over
Hello everyone hope you all had a good holiday. As some might know I had a brain tumor removed in 2019. I've had some problems but I'm wounded if it could have triggered fibromyalgia. With all the pain and problems but I'm afraid that I'll sound like a nut job if I ask my doctor.????
Hello everyone hope you all had a good holiday. As some might know I had a brain tumor removed in 2019. I've had some problems but I'm wounded if it could have triggered fibromyalgia. With all the pain and problems but I'm afraid that I'll sound like a nut job if I ask my doctor.????
Duchess39
in
Headway
5 months ago
Is there hope? I’m dreading asking the question of “how long”…
My father was diagnosed in September ‘23 with a PSA in the 900s. It had already metastasized throughout his body in several parts of his bones (ribs, spine, hips, femur and a spot at the base of his skull) but no organs had been affected other than his prostate. We were hopeful when it began to climb
My father was diagnosed in September ‘23 with a PSA in the 900s. It had already metastasized throughout his body in several parts of his bones (ribs, spine, hips, femur and a spot at the base of his skull) but no organs had been affected other than his prostate. We were hopeful when it began to climb
cookingwithdad58
in
Advanced Prostate Cancer
1 year ago
Gemzar was tough
I spent many years on Avastin since 2008 diagnosis. When I came out of remission from it. I was put on carbo/Gemzar. I had a bad reaction to the Carbo, so I had 10 treatments of Gemzar. I finally had to ask Onco to stop because I was losing my quality of life. Now that I’m off Gemzar, I’m hoping
I spent many years on Avastin since 2008 diagnosis. When I came out of remission from it. I was put on carbo/Gemzar. I had a bad reaction to the Carbo, so I had 10 treatments of Gemzar. I finally had to ask Onco to stop because I was losing my quality of life. Now that I’m off Gemzar, I’m hoping
Leniko
in
My Ovacome
1 year ago
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Adenoma query
Hi, I have had further consultation and one of the three liver tumours is an adenoma. They've told me that there is a risk of malignancy but it's small, however I should not take hormonal contraceptives as it causes an increase in risk. I am due to have another MRI to check the tumours next month. Something
Hi, I have had further consultation and one of the three liver tumours is an adenoma. They've told me that there is a risk of malignancy but it's small, however I should not take hormonal contraceptives as it causes an increase in risk. I am due to have another MRI to check the tumours next month. Something
Elverra30
in
British Liver Trust
1 year ago
SUV Max numbers in PET scan
I’m currently in triple therapy with metastatic PC after RP 6 months ago. Gleason 10. At time of RP all 12 lymph nodes and bladder neck biopsied tested negative but clearly the cancer escaped and was fast moving. I was re-reading the report on my PSMA PET scan (also had bone scan) and saw repeated
I’m currently in triple therapy with metastatic PC after RP 6 months ago. Gleason 10. At time of RP all 12 lymph nodes and bladder neck biopsied tested negative but clearly the cancer escaped and was fast moving. I was re-reading the report on my PSMA PET scan (also had bone scan) and saw repeated
Bret5
in
Advanced Prostate Cancer
10 months ago
18 years ago today!
🧡 18 years ago today we said our final farewell to our beautiful mother, best friend, devoted wife and grandmother Karen Clifford (represented by the KC in SKCIN) following her courageous battle to melanoma. The devastation caused by her loss, made us determined to ensure her untimely death was not
🧡 18 years ago today we said our final farewell to our beautiful mother, best friend, devoted wife and grandmother Karen Clifford (represented by the KC in SKCIN) following her courageous battle to melanoma. The devastation caused by her loss, made us determined to ensure her untimely death was not
SkcinHQ
Partner
in
Skin Cancer UK
5 months ago
LGSOC located in pleura
HiIs there anyone whose lgsoc is located in the pleura? I was diagnosed in June 2020. My ovaries were removed as part of a hysterectomy in 2008 hence the migration to the pleura. Debulking was to take place but surgeon said there was too much cancer. I have had chemo for secondaries. So it's incurable
HiIs there anyone whose lgsoc is located in the pleura? I was diagnosed in June 2020. My ovaries were removed as part of a hysterectomy in 2008 hence the migration to the pleura. Debulking was to take place but surgeon said there was too much cancer. I have had chemo for secondaries. So it's incurable
Pinks2020
in
My Ovacome
1 year ago
can you refuse hysterectomy and just have large cyst removed instead???
Hi All, just wondering if anyone has had any experience with turning down a hysterectomy and just getting a large cyst removed instead on the nhs? There is pressure on me to have a hysterectomy but I don’t want this and instead just want the large cyst I have removing and to then manage my symptoms with
Hi All, just wondering if anyone has had any experience with turning down a hysterectomy and just getting a large cyst removed instead on the nhs? There is pressure on me to have a hysterectomy but I don’t want this and instead just want the large cyst I have removing and to then manage my symptoms with
Cocolil20
in
Endometriosis UK
1 year ago
Expression of TCL1A gene is found to drive onset of blood cancer
[i]One of the causes of blood cancer is non-inherited mutations in blood stem cells that can lead to the cancerous growth of abnormal cells. Reporting in Nature, scientists now suggest that targeting a gene called TCL1A may be able to suppress such growth and decrease the risk of blood cancer....[/i]
[i]One of the causes of blood cancer is non-inherited mutations in blood stem cells that can lead to the cancerous growth of abnormal cells. Reporting in Nature, scientists now suggest that targeting a gene called TCL1A may be able to suppress such growth and decrease the risk of blood cancer....[/i]
bennevisplace
in
CLL Support
1 year ago
About my CT examintion
Hello Good people After the removal of 1.6cm tissue(cancer) from the right of my kidney. The Dr. decided after 6 months to make CT scan and the result which i got it yesterday . I had obviously nothing on the right kidney and every thing in the pelvis too clear even the thorax is ok. continuation
Hello Good people After the removal of 1.6cm tissue(cancer) from the right of my kidney. The Dr. decided after 6 months to make CT scan and the result which i got it yesterday . I had obviously nothing on the right kidney and every thing in the pelvis too clear even the thorax is ok. continuation
NOCanceros
in
Advanced Prostate Cancer
1 year ago
New biopsy: now G4+3
I have been on AS followed by Behfar Ehdaie at MSK since 2020. PSA has been trending up with most recent being 6.1 Prior biopsy (2021) was G7 (3+4) with 3 positive cores out of ten. Two G6 and 1 G7 3+4 (with G4 in 2% of the core). MRI in January 2023 showed two lesions with PIRADS 3 (no EPE, no
I have been on AS followed by Behfar Ehdaie at MSK since 2020. PSA has been trending up with most recent being 6.1 Prior biopsy (2021) was G7 (3+4) with 3 positive cores out of ten. Two G6 and 1 G7 3+4 (with G4 in 2% of the core). MRI in January 2023 showed two lesions with PIRADS 3 (no EPE, no
rosenjpj
in
Prostate Cancer Network
1 year ago
Elizabeth Norrie
I’ve been unsure of what was wrong with me, just knew something wasn’t right. Had a CAT scan late 2021 which didn’t reveal anything and had an MRI Summer 2022 again didn’t show any major anomalies. Finally diagnosed in November 2022 by consultant neurologist at Perth Infirmary who confirmed I
I’ve been unsure of what was wrong with me, just knew something wasn’t right. Had a CAT scan late 2021 which didn’t reveal anything and had an MRI Summer 2022 again didn’t show any major anomalies. Finally diagnosed in November 2022 by consultant neurologist at Perth Infirmary who confirmed I
Brown1957
in
PSP Association
1 year ago
Iodine and Povidone - A Chemistry Lesson
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
helvella
Thyroid UK
in
Thyroid UK
1 month ago
Have you been on Gemcitabine (Gemzar)?
Hello, I am starting Gemcitabine tomorrow and am wondering if anyone has advice on this chemo? Is it well tolerated? A nurse told me today I should get a port, my Oncologist said I should be fine without one. I had a terrible time with Enhertu and extreme nausea, I’m hoping this drug won’t be as hard
Hello, I am starting Gemcitabine tomorrow and am wondering if anyone has advice on this chemo? Is it well tolerated? A nurse told me today I should get a port, my Oncologist said I should be fine without one. I had a terrible time with Enhertu and extreme nausea, I’m hoping this drug won’t be as hard
atoth17
in
SHARE Metastatic Breast Cancer
1 year ago
QOL post: a reminder that tomorrow is the annual 4:20 day and a quick review of Delta-8 thc for serious mood elevation.
all you brothers out there , a quick reminder that tomorrow is national 4:20 day for all of us that use / enjoy cannabis for helping with out cancer and especially mood elevation and nausea control. also: I wanted to mention , for those that aren’t aware of it yet … I want to mention Delta-8 gummies
all you brothers out there , a quick reminder that tomorrow is national 4:20 day for all of us that use / enjoy cannabis for helping with out cancer and especially mood elevation and nausea control. also: I wanted to mention , for those that aren’t aware of it yet … I want to mention Delta-8 gummies
Kaliber
in
Advanced Prostate Cancer
1 year ago
ca125 up from last reading
I’m 49 and in 2019 was diagnosed with stage 1c2. It was found in pathology after having ovaries removed prophylactically due to finding out I was BRCA1 positive. I had 3 rounds of taxol and carboplatin. I might mention that my ca125 was 8 so never indicated cancer. During chemo my number rose to 9.
I’m 49 and in 2019 was diagnosed with stage 1c2. It was found in pathology after having ovaries removed prophylactically due to finding out I was BRCA1 positive. I had 3 rounds of taxol and carboplatin. I might mention that my ca125 was 8 so never indicated cancer. During chemo my number rose to 9.
Southernsas
in
My Ovacome
1 year ago
SBRT to C2 and hilar lymph node
We’ve met with the radiation oncologist and have had multiple MRIs, Ct scans. The doctor wants to SBRT the bone Mets on the C2 in 5 treatments. Yesterday, a head and shoulders cage was made which my husband will be wearing as he is strapped to the table during radiation. The doctor has cautioned my husband
We’ve met with the radiation oncologist and have had multiple MRIs, Ct scans. The doctor wants to SBRT the bone Mets on the C2 in 5 treatments. Yesterday, a head and shoulders cage was made which my husband will be wearing as he is strapped to the table during radiation. The doctor has cautioned my husband
Drandma
in
Advanced Prostate Cancer
1 year ago
IBrance Vacation?
I’ve been on IBrance 100 and Anastrozole for three years and my scans so far have shown stable disease. I’ve tried to stay active with golf and walking. We took a trip to Texas and it was go go go for a week, one can say I have nothing to complain about…however, my tumor markers have been rising for
I’ve been on IBrance 100 and Anastrozole for three years and my scans so far have shown stable disease. I’ve tried to stay active with golf and walking. We took a trip to Texas and it was go go go for a week, one can say I have nothing to complain about…however, my tumor markers have been rising for
Dragonfly2
in
SHARE Metastatic Breast Cancer
10 months ago
What are your symptoms of regenerative nodular hyperplasia and is it worth doing a CT scan?
Wanted to ask of those who were diagnonsed with RNH what you symptoms were and how it was eventually diagnosed (and whether you went through a battery of tests, all showing normal liver function)? It appears this has a lot of cirrhosis symptoms but is very difficult to diagnose (only a specialised form
Wanted to ask of those who were diagnonsed with RNH what you symptoms were and how it was eventually diagnosed (and whether you went through a battery of tests, all showing normal liver function)? It appears this has a lot of cirrhosis symptoms but is very difficult to diagnose (only a specialised form
Vkusnyatina
in
British Liver Trust
1 year ago
Update, tumor in lymph node
I had a meeting with my oncologist yesterday about the findings from the PSMA Pet Scan. This is the reply I got. Any comments? "PSMA-PET shows a PSMA-positive lymph node medially for the iliac externa vessels on the left side. This is located in the mesentery. The urologist states that surgery is
I had a meeting with my oncologist yesterday about the findings from the PSMA Pet Scan. This is the reply I got. Any comments? "PSMA-PET shows a PSMA-positive lymph node medially for the iliac externa vessels on the left side. This is located in the mesentery. The urologist states that surgery is
Jansverr
in
Advanced Prostate Cancer
1 year ago
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