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Jak2/tet2 mutation
Hello this is Ben from VA! I was diagnosed with MPN last year and use Besremi every 2 weeks. I have jak2/tet2 mutations which makes me feel confused and scared since the majority of PVs only have jak2(or other so-called driver mutations). I read a lot online and it seems tet2 is not the worst thing
Hello this is Ben from VA! I was diagnosed with MPN last year and use Besremi every 2 weeks. I have jak2/tet2 mutations which makes me feel confused and scared since the majority of PVs only have jak2(or other so-called driver mutations). I read a lot online and it seems tet2 is not the worst thing
Ben2022
in
MPN Voice
10 months ago
PSA Ultrasensitive 0.015 six months after prostatectomy
3 month PSA was <0.1, but that was not ultra sensitive. How worried should I be? Next steps? Urologist wants to see what the 9-month PSA test looks like, and to get a second Decipher genetic test. (I had one prior to surgery.) Pathology from surgery showed margins were positive, but Gleason score
3 month PSA was <0.1, but that was not ultra sensitive. How worried should I be? Next steps? Urologist wants to see what the 9-month PSA test looks like, and to get a second Decipher genetic test. (I had one prior to surgery.) Pathology from surgery showed margins were positive, but Gleason score
SmasherOfAjumma
in
Prostate Cancer Network
10 months ago
More Waiting
Me with a urological oncologist yesterday. He asked questions and when I told him that. My mother had breast cancer at 36 he said that he wanted germline testing and Decipher done on biopsy cores before moving further. In his opinion is BRCA is present, removal is the only option. Otherwise radiation
Me with a urological oncologist yesterday. He asked questions and when I told him that. My mother had breast cancer at 36 he said that he wanted germline testing and Decipher done on biopsy cores before moving further. In his opinion is BRCA is present, removal is the only option. Otherwise radiation
Chasbearcat999
in
Prostate Cancer Network
10 months ago
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Parathyroid identification by autofluorescence – preliminary report on five cases of surgery for primary hyperparathyroidism
Sounds a pretty good idea! [i] Case report[/i] [i] Open Access[/i] [i] Published: 28 August 2019[/i] [i]
Parathyroid identification by autofluorescence – preliminary report on five cases of surgery for primary hyperparathyroidism
[/i] [i]Abstract[/i] [i]Background[/i] [i]Intra-operative
Sounds a pretty good idea! [i] Case report[/i] [i] Open Access[/i] [i] Published: 28 August 2019[/i] [i]
Parathyroid identification by autofluorescence – preliminary report on five cases of surgery for primary hyperparathyroidism
[/i] [i]Abstract[/i] [i]Background[/i] [i]Intra-operative
helvella
Thyroid UK
in
Thyroid UK
10 months ago
Breast pain on prednisolone
This might be a bit of a strange one, but have you experienced twinges in the breast on pred? I get these quite sharp twinges every now and again and I wondered if it might be the pred? A very quick google suggests it might be. I mentioned it to the radiographer last week when I had a routine mammogram
This might be a bit of a strange one, but have you experienced twinges in the breast on pred? I get these quite sharp twinges every now and again and I wondered if it might be the pred? A very quick google suggests it might be. I mentioned it to the radiographer last week when I had a routine mammogram
Gimme
in
PMRGCAuk
10 months ago
Immunotherapies for MBC?
When I search for “immunotherapy” on this site I mostly see posts related to other types of cancers, but not MBC. I believe there are a few immunotherapies approved for MBC and there are several in clinical trials, but unless I’m missing it they don’t seem to get much discussion on this board. Immunotherapies
When I search for “immunotherapy” on this site I mostly see posts related to other types of cancers, but not MBC. I believe there are a few immunotherapies approved for MBC and there are several in clinical trials, but unless I’m missing it they don’t seem to get much discussion on this board. Immunotherapies
Half-Full
in
SHARE Metastatic Breast Cancer
10 months ago
Chemo question
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I can’t have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I can’t have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Buster98
in
My Ovacome
4 months ago
Final diagnosis uncertain - either cured or stage 4
Hello all, I hope you are as well as you can be. I am wondering if anyone has ever been in my situation. This is quite long - sorry. I have metastatic breast cancer in my bones (9 years) which have been stable for quite a few years. Routine CT picked up lung nodule - PET confirmed most likely lung
Hello all, I hope you are as well as you can be. I am wondering if anyone has ever been in my situation. This is quite long - sorry. I have metastatic breast cancer in my bones (9 years) which have been stable for quite a few years. Routine CT picked up lung nodule - PET confirmed most likely lung
Surfinsafari
in
The Roy Castle Lung Cancer Foundation
10 months ago
Trying To Hold Onto Hope
Hi all, I last wrote on here back in the fall because my dad was deteriorating quickly after ending 2nd round of chemo and his PSA went to the 300s (see my bio for his medical history). He was a candidate for Pluvicto, and was also put on Zytgea and a steroid before starting treatment which helped
Hi all, I last wrote on here back in the fall because my dad was deteriorating quickly after ending 2nd round of chemo and his PSA went to the 300s (see my bio for his medical history). He was a candidate for Pluvicto, and was also put on Zytgea and a steroid before starting treatment which helped
Sunnyday1122
in
Advanced Prostate Cancer
10 months ago
Blood in cather
Hello everyone, I am posting today for my father who was diagnosed with advanced prosate cancer in March of 2020 with a PSA of 6700 .. He is been taking eligard every 6 months and this PSA has been stable to 0.5. He has a very enlarged prostrate but is refusing to do the TURP so he is been using the
Hello everyone, I am posting today for my father who was diagnosed with advanced prosate cancer in March of 2020 with a PSA of 6700 .. He is been taking eligard every 6 months and this PSA has been stable to 0.5. He has a very enlarged prostrate but is refusing to do the TURP so he is been using the
naples2021
in
Advanced Prostate Cancer
10 months ago
First Trodelvy Infusion
I was diagnosed with MBC in December of 2019 de novo. After 2 years of Verzenio, cancer started to affect the bone marrow. Dr. started Enhertu which cleared the bone marrow and I had no major issues (I had pnemonitis which was cleared) I was on Enhertu for 1 year.Now after PET scan last week I have
I was diagnosed with MBC in December of 2019 de novo. After 2 years of Verzenio, cancer started to affect the bone marrow. Dr. started Enhertu which cleared the bone marrow and I had no major issues (I had pnemonitis which was cleared) I was on Enhertu for 1 year.Now after PET scan last week I have
DorothyR
in
SHARE Metastatic Breast Cancer
10 months ago
rux plus epo: any info as to effects on skin cancers?
Hi I have MF, and tho Ive been a member of this group for about 6 yrs haven’t posted for a while. I’m now being treated at the Marsden in Sutton ( BTW, anyone else seen there?) and as I had sarcomatoid sccs triggered by the rux (excised, radiotherapy) I’m reluctant to take any meds that might make
Hi I have MF, and tho Ive been a member of this group for about 6 yrs haven’t posted for a while. I’m now being treated at the Marsden in Sutton ( BTW, anyone else seen there?) and as I had sarcomatoid sccs triggered by the rux (excised, radiotherapy) I’m reluctant to take any meds that might make
Rachelthepotter
in
MPN Voice
10 months ago
Feeling hopeless
I’ve posted on here a couple times but have been radio silent for a bit. More details in my bio. Dad has completed 11 cycles of docetaxel as part of a Lu-177 clinical trial but now has new mets and cancer progression. Radiation oncologist just told us today that they will administer 5 radiations (this
I’ve posted on here a couple times but have been radio silent for a bit. More details in my bio. Dad has completed 11 cycles of docetaxel as part of a Lu-177 clinical trial but now has new mets and cancer progression. Radiation oncologist just told us today that they will administer 5 radiations (this
PHnerd
in
Advanced Prostate Cancer
10 months ago
Feeling scared
My husband was diagnosed with pancreatic cancer 2/11after a CT scan.Seen by the consultant on 20/11, requested an MRI which he Is having on the 7/12.The only assistance I have had is by contacting pancreatic cancer UK, they helped me get Creon after I looked up online.Just some back ground history my
My husband was diagnosed with pancreatic cancer 2/11after a CT scan.Seen by the consultant on 20/11, requested an MRI which he Is having on the 7/12.The only assistance I have had is by contacting pancreatic cancer UK, they helped me get Creon after I looked up online.Just some back ground history my
very
in
Pancreatic Cancer Action
6 months ago
Another Pluvicto failure
I know many people have a positive experience with Pluvicto. My dad was fortunate enough to get a go, but after two infusions his PSA did a gigantic jump from 42 to 119, over only two weeks. His doctors are puzzled, and so are we. His condition has deteriorated rapidly over the last few weeks, and now
I know many people have a positive experience with Pluvicto. My dad was fortunate enough to get a go, but after two infusions his PSA did a gigantic jump from 42 to 119, over only two weeks. His doctors are puzzled, and so are we. His condition has deteriorated rapidly over the last few weeks, and now
Marit85
in
Advanced Prostate Cancer
10 months ago
lupus and cancer
hello to all of you warriors, I haven’t posted in a long time but do read daily posts. I have had lupus for over 30 years but the last few have been particularly difficult. I’ve recently been diagnosed with lung cancer and won’t be able to have radiotherapy or chemotherapy due to the lupus. Has anyone
hello to all of you warriors, I haven’t posted in a long time but do read daily posts. I have had lupus for over 30 years but the last few have been particularly difficult. I’ve recently been diagnosed with lung cancer and won’t be able to have radiotherapy or chemotherapy due to the lupus. Has anyone
sally10
in
LUPUS UK
10 months ago
Failed on Piqray... off to xeloda I go....
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
DianaSav
in
SHARE Metastatic Breast Cancer
5 months ago
Johns Hopkins Upgraded Biopsy Results
Here is what they sent me today. Diagnosis UROLOGIC PATHOLOGY CONSULTATION SERVICE 1. Prostate (Biopsy, S23-1681, 5/24/2023): 1-6) Benign prostatic tissue. 7) Prostatic adenocarcinoma, Gleason score 3+4=7 (Grade Group 2), discontinuously involving 100% of one (1) core, 20%
Here is what they sent me today. Diagnosis UROLOGIC PATHOLOGY CONSULTATION SERVICE 1. Prostate (Biopsy, S23-1681, 5/24/2023): 1-6) Benign prostatic tissue. 7) Prostatic adenocarcinoma, Gleason score 3+4=7 (Grade Group 2), discontinuously involving 100% of one (1) core, 20%
Chasbearcat999
in
Prostate Cancer Network
10 months ago
Recurrence with shockingly high CA-125
I am beyond despondent. I am in Canada and I feel so down right now. I need a lot of support because I need someone who can encourage me or who has examples of success. I have a few other posts but I didn't update them yet. Don't have much energy to do so. I am having a recurrence. It has returned
I am beyond despondent. I am in Canada and I feel so down right now. I need a lot of support because I need someone who can encourage me or who has examples of success. I have a few other posts but I didn't update them yet. Don't have much energy to do so. I am having a recurrence. It has returned
Chanterelle
in
My Ovacome
10 months ago
Latest appt with new doctor
When I saw my onc two weeks ago, she had great news for me! I am stable, on Xeloda since cancer cells changed from E+ to TN. But she thought I should see a gastroenterologist as there appears to be some thickening in the lini ng of my stomach. i didn't like or trust the gastro dr who was part of my
When I saw my onc two weeks ago, she had great news for me! I am stable, on Xeloda since cancer cells changed from E+ to TN. But she thought I should see a gastroenterologist as there appears to be some thickening in the lini ng of my stomach. i didn't like or trust the gastro dr who was part of my
PJBinMI
in
SHARE Metastatic Breast Cancer
10 months ago
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