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My Story for private endocrinologist - what Qs to ask? 🤔
(GP letter. ) Relevant background -1st Birth 2011, traumatic EMCS and 1litre
blood
loss,
blood
transfusion
, 8lb 10oz baby -2nd birth 2013, low iron in pregnancy, 9lb baby -In a GP appt in 2016 I mentioned possible perimenopause symptoms, hot feet in bed, GP thought not.
(GP letter. ) Relevant background -1st Birth 2011, traumatic EMCS and 1litre
blood
loss,
blood
transfusion
, 8lb 10oz baby -2nd birth 2013, low iron in pregnancy, 9lb baby -In a GP appt in 2016 I mentioned possible perimenopause symptoms, hot feet in bed, GP thought not.
Insomania
in
Thyroid UK
1 year ago
Stage 4 ~ Now Losing Blood Somewhere
Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the past 5 years. His PSA increased quickly starting in October 2022 and by December it was 27. Hormone therapy isn’t working as before, it appears
Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the past 5 years. His PSA increased quickly starting in October 2022 and by December it was 27. Hormone therapy isn’t working as before, it appears
drb1966
in
Advanced Prostate Cancer
1 year ago
New treatment after being dropped from Pluvicto.
I was dropped from LU177 treatment in late January and started my first round of Docetaxel/Carboplatin on 01/30. Lab results on 02/17 showed my platelet count to be very low so was denied the second round of chemo. We did see a significant drop in PSA from 758 to 611 on that lab. My next lab 03/17 showed
I was dropped from LU177 treatment in late January and started my first round of Docetaxel/Carboplatin on 01/30. Lab results on 02/17 showed my platelet count to be very low so was denied the second round of chemo. We did see a significant drop in PSA from 758 to 611 on that lab. My next lab 03/17 showed
docbulldog
in
Advanced Prostate Cancer
1 year ago
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Endometriosis?
Hi everyone My journey is quite a lengthy one so I’ll attempt to shorten it by containing the most important info… when I was a teenager I had awfully painful, extremely heavy periods at times they would bring me to tears, this improved after having children but was still far from “normal” whatever
Hi everyone My journey is quite a lengthy one so I’ll attempt to shorten it by containing the most important info… when I was a teenager I had awfully painful, extremely heavy periods at times they would bring me to tears, this improved after having children but was still far from “normal” whatever
Channy3
in
Endometriosis UK
11 months ago
Living with Cll
transfusion
and then they changed me to the fantastic medicine called Venetoclax , I have been on it 18 months no side effects and everything now back to normal just had a recent blood test end of December and blood work was WBC 4.44, HGB 17,4 , platelets 135, neut 2.67 , all I want to say is thanks
transfusion
and then they changed me to the fantastic medicine called Venetoclax , I have been on it 18 months no side effects and everything now back to normal just had a recent blood test end of December and blood work was WBC 4.44, HGB 17,4 , platelets 135, neut 2.67 , all I want to say is thanks
starlifter
in
CLL Support
1 year ago
Advice re recovery - please!
He is very breathless still but had a
blood
& short iron
transfusion
a few days ago because his
blood
count was very low (he looked terribly pale). He isn't sleeping & keeps having bad dreams. Is any of this familiar with you?? Thanks so much. ❤️
He is very breathless still but had a
blood
& short iron
transfusion
a few days ago because his
blood
count was very low (he looked terribly pale). He isn't sleeping & keeps having bad dreams. Is any of this familiar with you?? Thanks so much. ❤️
Heartsal88
in
British Heart Foundation
2 years ago
Double Pneumonia followed by double empyema - still in pain
Hi, in November last year I was diagnosed with double pneumonia that quickly turned into double empyema. I was in hospital for 3 weeks, needed 2 blood transfusions, chest drains in both lungs and ended up with VATs washout of 1 lung. Im almost 3 months after discharge and still get out of breath/tight
Hi, in November last year I was diagnosed with double pneumonia that quickly turned into double empyema. I was in hospital for 3 weeks, needed 2 blood transfusions, chest drains in both lungs and ended up with VATs washout of 1 lung. Im almost 3 months after discharge and still get out of breath/tight
Yoshi1606
in
Lung Conditions Community Forum
1 year ago
Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?
Cross matched and
Blood
transfusion
booked. Further tests showed (unsurprisingly I guess) that I was haemolyzing.
Blood
transfusion
cancelled. Venetoclax ramp up put on hold. High dose corticosteroid, folic acid anticoagulants prescribed. Back next week to assess blood changes.
Cross matched and
Blood
transfusion
booked. Further tests showed (unsurprisingly I guess) that I was haemolyzing.
Blood
transfusion
cancelled. Venetoclax ramp up put on hold. High dose corticosteroid, folic acid anticoagulants prescribed. Back next week to assess blood changes.
jibs60
in
CLL Support
2 years ago
Low Haemoglobin- at what level might a transfusion be necessary- any thoughts?
Blood Tests show my haemoglobin to be 89-- does anyone know if it is likely they might want to give me a
blood
transfusion
? I just want to be prepared if that might be the case.... Any thought gratefully received. Thanks all Taar
Blood Tests show my haemoglobin to be 89-- does anyone know if it is likely they might want to give me a
blood
transfusion
? I just want to be prepared if that might be the case.... Any thought gratefully received. Thanks all Taar
taar
in
British Liver Trust
2 years ago
Fatigue and me.
After a year of proper supplementation I became all but pain free and and only had slight numbness in my toes. I turned my focus to fatigue. This is the understanding and solution that I came up with. Acknowledging it may just be the supplementation taking effect. I surmised that I had become very
After a year of proper supplementation I became all but pain free and and only had slight numbness in my toes. I turned my focus to fatigue. This is the understanding and solution that I came up with. Acknowledging it may just be the supplementation taking effect. I surmised that I had become very
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Saline Solution Drip
I know it is unlikely. Can I get a saline solution transfusion in the UK with out a prescription? I can get one in some states in the USA. In Ecuador you can have a RPN come to your house and administer a saline solution once a month for $20.00 Note: As far as I know this may be the end of my rash
I know it is unlikely. Can I get a saline solution transfusion in the UK with out a prescription? I can get one in some states in the USA. In Ecuador you can have a RPN come to your house and administer a saline solution once a month for $20.00 Note: As far as I know this may be the end of my rash
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
First post.
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
TiaPasha
in
PMRGCAuk
1 hour ago
Blood results advice please.
Blood test Latest results today from my first Blue Horizon Thyroid Gold test. Any help in understanding these would be very much appreciated.
Blood test Latest results today from my first Blue Horizon Thyroid Gold test. Any help in understanding these would be very much appreciated.
Totoro25
in
Thyroid UK
9 hours ago
Blood Results- advice please
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Robinface
in
Thyroid UK
10 hours ago
GCA. Pulsatile tinnitus
May I ask what any of you good people know about pulsatile tinnitus. Do you consider my GP should see me, or at least write to me or speak to me on telephone. When I recently started hearing my heartbeat in same ear that GCA symptoms started I called my rheumatology dept & was seen. Had blood tests
May I ask what any of you good people know about pulsatile tinnitus. Do you consider my GP should see me, or at least write to me or speak to me on telephone. When I recently started hearing my heartbeat in same ear that GCA symptoms started I called my rheumatology dept & was seen. Had blood tests
CavalierKC3
in
PMRGCAuk
10 hours ago
Anyone else with Jak2 PV have difficulty walking and leg pain?
I'm new here and really happy I found this forum. I've been diagonsed with Jak2 positive PV a year ago, after feeling unwell for a couple of years, and after my blood tests have been abnormal for quite a while. For the past year, I've been on aspirin and Phlebotomies, which have kept my Hematocrit under
I'm new here and really happy I found this forum. I've been diagonsed with Jak2 positive PV a year ago, after feeling unwell for a couple of years, and after my blood tests have been abnormal for quite a while. For the past year, I've been on aspirin and Phlebotomies, which have kept my Hematocrit under
Panda2014
in
MPN Voice
10 hours ago
Results help needed!
Hello I was diagnosed with hashimotos hypothyroidism end of Feb, started on levothyroxine 50mcg, just had repeat blood test after 10 weeks TSH has gone up from 5.77 Free T4 from 12.6 to 12.7 Ferritin down to 14 from 19 (have been taken ferroglobin capsules) Vitamin has gone up from 39 to 65 (been
Hello I was diagnosed with hashimotos hypothyroidism end of Feb, started on levothyroxine 50mcg, just had repeat blood test after 10 weeks TSH has gone up from 5.77 Free T4 from 12.6 to 12.7 Ferritin down to 14 from 19 (have been taken ferroglobin capsules) Vitamin has gone up from 39 to 65 (been
Nattycake
in
Thyroid UK
11 hours ago
help with results
Hi, These are my resent blood results, can anyone help deciphering please. These are copied from my not yet fully completed bio, with the addition of a date for the vitamin D test. Blood tests results were: This result was received in April 2024 vitamin D 35 - range insufficient These bloods
Hi, These are my resent blood results, can anyone help deciphering please. These are copied from my not yet fully completed bio, with the addition of a date for the vitamin D test. Blood tests results were: This result was received in April 2024 vitamin D 35 - range insufficient These bloods
BlueLipsNoBrows
in
Thyroid UK
12 hours ago
Tested positive for celiac disease today, what next?
I had a gastroscopy in march to test for celiac as i had a very high positive blood test, I received a letter this morning saying that it was positive for celiac and that he is happy to discharge me back to my GP for management of my celiac disease, So my question is what will happen next? Or should
I had a gastroscopy in march to test for celiac as i had a very high positive blood test, I received a letter this morning saying that it was positive for celiac and that he is happy to discharge me back to my GP for management of my celiac disease, So my question is what will happen next? Or should
Mhymer
in
Gluten Free Guerrillas
12 hours ago
Thickened water for dysphagia…any other suggestions?
My 65 yo HWP has had dysphagia added to his list of symptoms a few months ago so has been put on thickened water etc to hopefully avoid aspiration pneumonia. I feel like the nagging wife as I’m all the time telling him to drink more water as he seems to avoid drinking it now as he struggles getting
My 65 yo HWP has had dysphagia added to his list of symptoms a few months ago so has been put on thickened water etc to hopefully avoid aspiration pneumonia. I feel like the nagging wife as I’m all the time telling him to drink more water as he seems to avoid drinking it now as he struggles getting
Jennyjenny2
in
Cure Parkinson's
15 hours ago
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