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MRI QUESTION
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
Hidden
in
Kidney Transplant
2 years ago
Who else has Myelodysplastic Syndromes (MDS) in addition to their PCa?
Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone marrow biopsy is required for dx. It morphs into Acute Myloid Leukemia in 30-40% of the cases. Know that my shit is weak and am searching for
Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone marrow biopsy is required for dx. It morphs into Acute Myloid Leukemia in 30-40% of the cases. Know that my shit is weak and am searching for
SpencerBoy11
in
Advanced Prostate Cancer
1 year ago
help with changing hospitals
hi, I’ve been listed for liver transplant in Birmingham. I’m currently being treated for cancer in Liverpool Aintree. They have made so many mistakes it’s unbelievable… They didn’t do bloods for hepatitis and after 16 months of cancer Birmingham discover this is the primary cause. They ruptured
hi, I’ve been listed for liver transplant in Birmingham. I’m currently being treated for cancer in Liverpool Aintree. They have made so many mistakes it’s unbelievable… They didn’t do bloods for hepatitis and after 16 months of cancer Birmingham discover this is the primary cause. They ruptured
Zechariah123
in
British Liver Trust
2 years ago
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Bone Marrow Transplant
A wonderful uplifting post to read first thing in the morning. You've made my day!
A wonderful uplifting post to read first thing in the morning. You've made my day!
Sivasi
in
MPN Voice
1 year ago
DLA renewal
Hi wondering if anyone has had a successful DLA claim for their child post liver transplant? Daughter was born with Biliary atresia and had a liver transplant a year and a half ago.
Hi wondering if anyone has had a successful DLA claim for their child post liver transplant? Daughter was born with Biliary atresia and had a liver transplant a year and a half ago.
Ducks123
in
Children's Liver Disease Foundation
2 years ago
BONE MARROW TRANSPLANT
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
kevinbros
in
MPN Voice
1 year ago
Looking for information
I had my kidney transplant April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
I had my kidney transplant April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
Ynnep
in
Kidney Transplant
2 years ago
Long time on wait list
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Talpa120
in
British Liver Trust
2 years ago
protecting against infection
Since I had my kidney transplant 2 years ago during Covid and I’m over 70 years old,I have had to be particularly careful about getting infections. Now that Covid is subsiding and people are going back to normal, I’m not sure how careful I need to continue to be. Before transplant, I had a robust immune
Since I had my kidney transplant 2 years ago during Covid and I’m over 70 years old,I have had to be particularly careful about getting infections. Now that Covid is subsiding and people are going back to normal, I’m not sure how careful I need to continue to be. Before transplant, I had a robust immune
ProudAmma
in
Kidney Transplant
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
1 year ago
Preemptive kidney transplant experience and results
Everywhere I read, everyone agrees that a preemptive transplant from a living donor is the best you can hope for when you have stage 5 kidney failure. I would like to hear about your experience if you went through transplant before needing dyalisis. What were your GFR, your BUN and your creatinine
Everywhere I read, everyone agrees that a preemptive transplant from a living donor is the best you can hope for when you have stage 5 kidney failure. I would like to hear about your experience if you went through transplant before needing dyalisis. What were your GFR, your BUN and your creatinine
hope1419
in
Kidney Transplant
2 years ago
Sudden rise in Tacrolimus
I received a kidney transplant in July 2021. Everything has gone swimmingly. I caught a mild case of Covid at the end of July and received a multiclonal antibody infusion. When I went for my August bloodwork, my Tacrolimus trough, which had been running 5-7, was suddenly 9.6. When I did my bloodwork
I received a kidney transplant in July 2021. Everything has gone swimmingly. I caught a mild case of Covid at the end of July and received a multiclonal antibody infusion. When I went for my August bloodwork, my Tacrolimus trough, which had been running 5-7, was suddenly 9.6. When I did my bloodwork
ILMA54
in
Kidney Transplant
2 years ago
A Simple explanation of the inaccuracies of eGFR
Please note I don’t condone what they are preaching just hope this better explains why, as so many have wondered. Estimated GFR: time for a critical appraisalEsteban Porrini et al. Nat Rev Nephrol. 2019 Mar. Show details Abstract PubMed PMID Full text linksCiteErratum inAuthor Correction
Please note I don’t condone what they are preaching just hope this better explains why, as so many have wondered. Estimated GFR: time for a critical appraisalEsteban Porrini et al. Nat Rev Nephrol. 2019 Mar. Show details Abstract PubMed PMID Full text linksCiteErratum inAuthor Correction
Blackknight1989
in
Kidney Disease
2 years ago
Amlodipine Side Effects, short and long term
I am on 10mg amlodipine (this dosage was prescribed right off the bat) several years ago, to be taken with 100mg labetalol twice a day. I felt terrible at first but better now, though frequently tired. I'm wondering if these meds are too much and the cause of my fatigue (I am 69 y.o.) I am also being
I am on 10mg amlodipine (this dosage was prescribed right off the bat) several years ago, to be taken with 100mg labetalol twice a day. I felt terrible at first but better now, though frequently tired. I'm wondering if these meds are too much and the cause of my fatigue (I am 69 y.o.) I am also being
Cats8019
in
High Blood Pressure Support
2 years ago
transplant and covid
hi all. My 23 year old son is currently awaiting a kidney transplant. His team as informed him that he has to have the Covid vaccine before his surgery. Has this happened to anyone? He is scared to get the vaccine ! Any input would be amazing!!
hi all. My 23 year old son is currently awaiting a kidney transplant. His team as informed him that he has to have the Covid vaccine before his surgery. Has this happened to anyone? He is scared to get the vaccine ! Any input would be amazing!!
Boymommm
in
Kidney Transplant
2 years ago
Transplant Journey outcomes/advice anyone?
Hi, I have had CKD for several years and declined dramatically over the last 6mths -1yr and was actually started urgently on dialysis in July when my GFR dropped to 3 and creatine was 12.43. I had already had a consult and was added to a wait list for kidney transplant in early February of this year.
Hi, I have had CKD for several years and declined dramatically over the last 6mths -1yr and was actually started urgently on dialysis in July when my GFR dropped to 3 and creatine was 12.43. I had already had a consult and was added to a wait list for kidney transplant in early February of this year.
Hawaiilover
in
Kidney Disease
2 years ago
Preparations afoot for my stem cell transplant
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
Scaredy_cat
in
MPN Voice
1 year ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
Post-Transplant Arterial Line Bruise
Has anyone else experienced inside arm bruises after kidney transplant surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
Has anyone else experienced inside arm bruises after kidney transplant surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
frebusmaxwell
in
Kidney Transplant
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about kidney transplant? Check out our free, self-paced guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses/resource
Are you interested in learning more about kidney transplant? Check out our free, self-paced guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses/resource
KateyC_NKF
Partner
in
Kidney Transplant
2 years ago
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