Search
Search
About
Log in
Join
Experiences with
Autologous stem cell transplant
Posts
Communities
3,307 public posts
Filter results
Creatinine increasing
Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from
Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from
kidneymom09
in
Kidney Transplant
1 year ago
Home Oxygen is a game changer
Afternoon all! Mindful that it has been a fair while since my last post - much longer than intended. However, in many ways it's a good thing as it means I've got more to update you all on. First and foremost, I'm still on the lung transplant list and have yet to get another call since being re-added
Afternoon all! Mindful that it has been a fair while since my last post - much longer than intended. However, in many ways it's a good thing as it means I've got more to update you all on. First and foremost, I'm still on the lung transplant list and have yet to get another call since being re-added
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
Elevated creatinine from tacrolimus?
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
Hawk12
in
Kidney Transplant Patient Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Kidney Transplant help
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Highgfr
in
Kidney Disease
1 year ago
Liver Transplant Assessment
I attended a two day liver transplant assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone. Eventually i got the call after waiting anxiously all day to say they had been to be busy to discuss my case and
I attended a two day liver transplant assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone. Eventually i got the call after waiting anxiously all day to say they had been to be busy to discuss my case and
Mitmab
in
British Liver Trust
1 year ago
Trying to Maintain Money and Mental Health
My spouse received a kidney transplant in November 2022. He was on dialysis for 18 months and also developed diabetic retinopathy which requires 5 surgeries prior to and after his transplant. He wants to work and going on disability would be terrible for his mental health. We are having trouble financially
My spouse received a kidney transplant in November 2022. He was on dialysis for 18 months and also developed diabetic retinopathy which requires 5 surgeries prior to and after his transplant. He wants to work and going on disability would be terrible for his mental health. We are having trouble financially
Livi5072
in
Kidney Transplant
1 year ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
14 days ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
15 days ago
question about brain aneurysm and transplant
When I was in my he hospital they found a 3mm maybe a little bigger aneurysm on left side of brain. I have had one aneurysm clip back in 1998 and 1999 I had a subarachnoid hemorrhage. I had a grandma seizure and super low blood pressure they took me off all blood pressure meds I was on. The neurologist
When I was in my he hospital they found a 3mm maybe a little bigger aneurysm on left side of brain. I have had one aneurysm clip back in 1998 and 1999 I had a subarachnoid hemorrhage. I had a grandma seizure and super low blood pressure they took me off all blood pressure meds I was on. The neurologist
Beachgirl32
in
Kidney Transplant
1 year ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
18 days ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
19 days ago
Discitis nearly killed me. I suspect streptococcus B was injected into me by Hormone injection for PCa
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
Graham49
in
Advanced Prostate Cancer
1 year ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
23 days ago
New diagnosis of hf
Hi 1st post for me My brother had a heart transplant at 39 due to severe heart failure (he is now 2 years post op and doing amazingly) so I went to see to the Dr to get checked after his team suggested it. I'm 39 and just been diagnosed with hf, my ef is 32%, I am asymptomatic so far. I have been prescribed
Hi 1st post for me My brother had a heart transplant at 39 due to severe heart failure (he is now 2 years post op and doing amazingly) so I went to see to the Dr to get checked after his team suggested it. I'm 39 and just been diagnosed with hf, my ef is 32%, I am asymptomatic so far. I have been prescribed
Forrest14
in
British Heart Foundation
1 year ago
wound vac post kidney transplant anyone?
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
LeslieK
in
Kidney Transplant
1 year ago
Black Outs and Assessment for st James Leeds Hospital
Hi Just a quick couple of question guys As anyone had blackouts who as been diagnosed cirrhosis NAFLD my Husband as suffered with with dizziness but on Monday he started having Blackout’s, also as anyone got any advice on what to expect at the Preassessment clinic at St James Leeds University hospital
Hi Just a quick couple of question guys As anyone had blackouts who as been diagnosed cirrhosis NAFLD my Husband as suffered with with dizziness but on Monday he started having Blackout’s, also as anyone got any advice on what to expect at the Preassessment clinic at St James Leeds University hospital
Dobielove
in
British Liver Trust
1 year ago
The Bone-Marrow-Transplant Revolution
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
Hidden
in
CLL Support
1 month ago
Stem cell transplant
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
Leighcox85
in
MPN Voice
1 month ago
Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
1 month ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
2 months ago
1
...
9
10
11
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
699 results
Lung Conditions Community Forum
457 results
Kidney Transplant
424 results
View top 10 communities
Sort by
Most Relevant
Newest