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49 public communities
Anticoagulation Support
3,812 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
The Children's Trust
239 members
The Children’s Trust, Tadworth is a national charity working with children with brain injury. We are based at a 24 acre site in Tadworth, Surrey but offer our services to children from across the UK. We provide expert rehabilitation, education, therapy and care to support children and their families. The Children's Trust has also developed The Brain Injury Hub which is an online information and advice service for parents and other family members and includes as well as developing an online community and includes Health Unlocked.
Chronic Pancreatitis Support
829 members
Welcome to the Chronic Pancreatitis Support community, here to support anyone impacted by chronic pancreatitis and related conditions, such as EPI (Exocrine Pancreatic Insufficiency). Whether you are looking for a diagnosis or currently on Pancreatic Enzyme Replacement Therapy (PERT), here you will find peers with whom you can share experiences, information and participate in research events within the community. This community is offered by Mission: Cure on the HealthUnlocked platform. We serve the patients & communities affected by recurrent acute and chronic pancreatitis. Our impact extends to disease research and healthcare, applying innovative financing models to advance new therapies and cures. Beginning with chronic pancreatitis, we are committed to advancing new therapies and accelerating a cure for debilitating and untreatable diseases—within ten years. This community has been funded in part by Aimmune Therapeutics, Inc., a Nestlé Health Science Company. Anonymous data from the content shared in this community is used to improve the understanding of this condition.
Mental Health Support
31,408 members
Shawmind is a young charity on a mental health mission. We are committed to helping young people, adults and communities to have access to mental health resources when they need them. We do not provide therapy or counselling. Our focus is on early intervention, helping people to understand anxiety, its triggers and related mental health affects, and how to effectively deal with them before they escalate into more serious mental health challenges. Our Breathe Cafés are the perfect place to just ‘breathe’ when you're feeling stressed or anxious. We are partnering with coffeeshops, pubs and restaurants around the country to provide a trained mental health first aider, mental health books, and other resources for those who need them. BreatheUni is a group run by trained Shawmind student volunteers, for students - dealing with all aspects of student mental health & wellbeing. This group is active on Instagram: @breathe_uni We provide a range of training courses which help one better understand mental health conditions and how to spot the signs of those who are struggling. See our website for more info and help! --- The best way to keep your community as safe as possible is by using "Report" feature. If needed, please do not hesitate to flag any posts to by clicking "Report" button https://support.healthunlocked.com/article/17-how-do-i-report-content or sending an email at support@healthunlocked.com. No one should have to deal with extreme feelings alone, so please reach out to close family and friends for help if you need to. You can also talk to your GP or contact one of the many mental health resources found in our Help Centre article here: https://support.healthunlocked.com/article/12-mental-health-resources-and-services If you feel you need immediate support, please call your emergency number 999 or go to your local A&E.
Pelvic Pain Support Network
19,455 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
IBS Network
47,762 members
The IBS Network is the national charity that helps people with Irritable Bowel Syndrome (IBS) and has provided support to those with the condition and to healthcare professionals for over 25 years. Funding for the charity is received from a number of sources, including: annual memberships, an online shop for purchasing the ‘Can’t Wait’ card, Radar keys and other useful aids, in addition to income from legacies.
Tenovus
589 members
We are the leading cancer charity focusing on supporting those affected by cancer. We help patients and their families get access to treatment, advice and support.
Living Well with HIV
1,012 members
This community is for people affected by HIV/ AIDS. If you or someone you know is positive, this is a safe peer support community is for you.
HIV Partners
2,321 members
Forum Link has joined forces with the HealthUnlocked team to create this HIV positive online community. We want to make it easier for HIV positive people to find a range of information and support we all need, particularly when we have just been diagnosed with HIV. We do this by highlighting resources from selected other community sites and encouraging members of this community to post messages online. Whether you are newly diagnosed or have been living with HIV for some time we hope you will find this online community of other people living with HIV useful. For more details see the Forum Link web site at http://www.forum-link.org
Talk ED (eating disorders)
3,549 members
Talk ED (previously ABC) is a national UK eating disorders organisation with over 25 years of experience. We provide on-going care, emotional support and practical guidance for anyone affected by eating disorders. We support and care for those struggling personally and resource and equip parents, families, friends and professionals.
COPD Friends
3,576 members
We are peer support community for people living with COPD. Join us to share your story and experiences, ask questions and support others. Connect with others like you today!
Cancer Journeys Foundation
380 members
The Cancer Journeys Foundation is a registered non-Profit Charity with the mission of providing cancer survivors and their supporters information, tools, and a community to create and implement cancer survivor programs. Our vision is a world where no one dies from cancer because they did not know they had the disease early enough for effective treatment or because they did not know what steps they personally could take to keep their cancer at bay. A world where every cancer survivor has the information and support they need to develop and implement their own unique self-help cancer survivor journey plan. Our goal for our community here in HealthUnlocked is to tap into the past experiences of cancer survivors and caregivers to pay it forward in helping survivors just beginning their cancer journeys. Our community leader, Robert Hess, is a 13-year prostate cancer survivor. Welcome!
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