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Enterosgel
Hi I’ve been suffering from haemorrhoids for a few months. It’s been getting better very gradually by eating a very high fibre diet to keep my stool very soft. But this has had the side effect of causing urgency several times a day. It’s making it very difficult to leave the house. I’ve had ibs for
Hi I’ve been suffering from haemorrhoids for a few months. It’s been getting better very gradually by eating a very high fibre diet to keep my stool very soft. But this has had the side effect of causing urgency several times a day. It’s making it very difficult to leave the house. I’ve had ibs for
MurphysSoulMate
in
IBS Network
4 months ago
Can Nubeqa (Darolutamide) be used instead of normal ADT drugs for localized PCa?
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Mike58
in
Advanced Prostate Cancer
6 months ago
Adding Docetaxel to T3b?
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
Adendino
in
Advanced Prostate Cancer
5 months ago
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Sex hormones
Does anyone know if 26.3 (16-124) is lower than ideal? My testosterone was bottom of range but now ok with HRT. I’m trying to get to the bottom of my low cortisol and whilst this is in range, wondered if it should ideally be higher like your thyroid? Many thanks
Does anyone know if 26.3 (16-124) is lower than ideal? My testosterone was bottom of range but now ok with HRT. I’m trying to get to the bottom of my low cortisol and whilst this is in range, wondered if it should ideally be higher like your thyroid? Many thanks
CornishChick
in
Thyroid UK
6 months ago
Aviv HBOT
Well it looks impressive…but the cost OMG! “ Thank you for reaching out and expressing interest in Aviv Clinics. We’re excited for the opportunity to get to know you a little bit better. Aviv is a leader in brain and body performance. We treat a variety of conditions through the Aviv Medical Program
Well it looks impressive…but the cost OMG! “ Thank you for reaching out and expressing interest in Aviv Clinics. We’re excited for the opportunity to get to know you a little bit better. Aviv is a leader in brain and body performance. We treat a variety of conditions through the Aviv Medical Program
LeharLover62
in
Cure Parkinson's
8 months ago
QOL gone
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
rfgh20
in
Advanced Prostate Cancer
6 months ago
Bummed, PSA went up 0.08 in a Week! Am I failing ADT?
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Dig the low, low, low, low, lowdown! PSA Update 💙
https://youtu.be/CWW6DRscQIc?si=61otmpzO3ugAJB0D 1.7 Woo Hoo😂🤙 The lowest PSA since 01/2018 @1.3 (552.2, 633, 840.2 in 2014) 39 chemos & 28 IMRT radiation sessions What a crazy 9 yr Rollercoaster Long Strange trip it's been 🤣 I ain't complaining Ain't Misbehavin, Stormy Weather on the
https://youtu.be/CWW6DRscQIc?si=61otmpzO3ugAJB0D 1.7 Woo Hoo😂🤙 The lowest PSA since 01/2018 @1.3 (552.2, 633, 840.2 in 2014) 39 chemos & 28 IMRT radiation sessions What a crazy 9 yr Rollercoaster Long Strange trip it's been 🤣 I ain't complaining Ain't Misbehavin, Stormy Weather on the
dockam
in
Advanced Prostate Cancer
4 months ago
Leg Pain - 4th Week on Lupron
Hi Friends, I'm on 4th week of ADT (Lupron+Abiraterone). Yesterday I started feeling right upper leg pain in the quads area. I'm not sure whether it's bone or muscle pain. But it's getting worse. I can barely walk. At first I was thinking may be I strained it. But I didn't do anything different than
Hi Friends, I'm on 4th week of ADT (Lupron+Abiraterone). Yesterday I started feeling right upper leg pain in the quads area. I'm not sure whether it's bone or muscle pain. But it's getting worse. I can barely walk. At first I was thinking may be I strained it. But I didn't do anything different than
FightCancer101
in
Advanced Prostate Cancer
6 months ago
PSMA PET Scan - Help Interpreting Report?
Hello, My husband had his first PSMA PET scan done today, and I am hoping someone who understands PSMA PET reports can help us interpret/understand the results as well as what to expect or ask for in terms of any further testing and/or treatment? My profile is updated with his history, but in a nutshell
Hello, My husband had his first PSMA PET scan done today, and I am hoping someone who understands PSMA PET reports can help us interpret/understand the results as well as what to expect or ask for in terms of any further testing and/or treatment? My profile is updated with his history, but in a nutshell
FaithOverFear104
in
Advanced Prostate Cancer
6 months ago
New treatment for Parkinson
Has anybody tried LENs Biofeedback?, it is a relatively new and non invasive therapy to Parkinson to improve parkinson's symptoms like tremors and bradykinesia.
Has anybody tried LENs Biofeedback?, it is a relatively new and non invasive therapy to Parkinson to improve parkinson's symptoms like tremors and bradykinesia.
UncleCharlieyoyo
in
Cure Parkinson's
11 months ago
No indication for Docetaxel ?
Helo All, thanks in advance for your usual help. Almost five years in this journey. RP in 2019, followed by SRT plus ADT for 6 mo. First recurrence in 2021, had RT in LN plus ADT for 8mo. Second recurrence in january this year, started ADT again plus Erleada in July. PSA undetectable last month. Zoladex
Helo All, thanks in advance for your usual help. Almost five years in this journey. RP in 2019, followed by SRT plus ADT for 6 mo. First recurrence in 2021, had RT in LN plus ADT for 8mo. Second recurrence in january this year, started ADT again plus Erleada in July. PSA undetectable last month. Zoladex
CarlosBrasil
in
Advanced Prostate Cancer
6 months ago
After some advice
I'm 57 yo post menopausal woman with hypermobility and POTS (POTS only diagnosed in 40's after much pushing with medical profession). I take HRT and meds for POTS. I'm suffering with a number of tendonitis issues and wonder if anyone has any advice about this? At the moment it's achilles tendonitis
I'm 57 yo post menopausal woman with hypermobility and POTS (POTS only diagnosed in 40's after much pushing with medical profession). I take HRT and meds for POTS. I'm suffering with a number of tendonitis issues and wonder if anyone has any advice about this? At the moment it's achilles tendonitis
Lizzog
in
Ehlers-Danlos Support UK
6 months ago
Stage 4. IMRT + HDR Brachytherapy
I have Stage 4 (metastasis in L2). Currently on ADT. I have chosen IMRT followed by HDR Brachytherapy. I'm starting IMRT in January 2024. What was you experience with this combination? Did it work? Any side effects? Thank you for your responses.
I have Stage 4 (metastasis in L2). Currently on ADT. I have chosen IMRT followed by HDR Brachytherapy. I'm starting IMRT in January 2024. What was you experience with this combination? Did it work? Any side effects? Thank you for your responses.
FightCancer101
in
Advanced Prostate Cancer
5 months ago
HRT and Lupus
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
RachelMaryS
in
LUPUS UK
6 months ago
The MAO inhibitors phenelzine and clorgyline revert enzalutamide resistance in castration resistant prostate cancer
I am not using enza (yet) wondering if it's worth taking some nutmeg to keep those mao in check anyway! :-P https://www.nature.com/articles/s41467-020-15396-5
I am not using enza (yet) wondering if it's worth taking some nutmeg to keep those mao in check anyway! :-P https://www.nature.com/articles/s41467-020-15396-5
Maxone73
in
Fight Prostate Cancer
4 months ago
PSMA Results
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Prostate Cancer And Gay Men
6 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
6 months ago
Docataxel
My MO is advising Chemotherapy since I am Mcrp. . The MO said that no Adt will work . I have been reading that most people take Adt along with Docataxcel. I would love to prolong my life. I have concerns about QOL and what are the percentages of this treatment working with and without ADT? Thank
My MO is advising Chemotherapy since I am Mcrp. . The MO said that no Adt will work . I have been reading that most people take Adt along with Docataxcel. I would love to prolong my life. I have concerns about QOL and what are the percentages of this treatment working with and without ADT? Thank
spolyu
in
Advanced Prostate Cancer
6 months ago
restricted urinary flow
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
kainasar
in
Fight Prostate Cancer
5 months ago
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