Posts - PSP Association | HealthUnlocked

PSP Association

9,372 members • 11,414 posts

All posts for April 2016

Still making memories

Today I took Colin to Sissinghurst, a National Trust garden in Kent. He had his eyes open most of the time and managed to see the beautiful spring flowers. We...

Today I took Colin to Sissinghurst, a National Trust garden in Kent. He had his ...

NannaB

•8 years ago

46 Replies

A challenging week ahead

On Easter Monday Des's brother finally escaped the pain and died from cancer in a hospice where they really took good care of him and the family.Des sees no...

On Easter Monday Des's brother finally escaped the pain and died from cancer in ...

loppylugs5

•8 years ago

8 Replies

Our battle with PSP

Hello, My name is Becky and my sister was diagnosed with PSP in 2014, but she had early symptoms for about a year earlier. She started with vision problems,...

Hello, My name is Becky and my sister was diagnosed with PSP in 2014, but she ha...

Gracie_Girl

•8 years ago

20 Replies

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new diagnosis

this past week my mom was diagnosed with psp I have not ever even heard of the disease. She has had many diagnoses but none have really matched her symptoms...

this past week my mom was diagnosed with psp I have not ever even heard of the ...

caroleen

•8 years ago

15 Replies

I hate this illness

George is coughing so much bring up all this horrible green stuff, he has not got a chest infection, is this normal? He makes terrible noises in the night, I...

George is coughing so much bring up all this horrible green stuff, he has not go...

Yvonneandgeorge

•8 years ago

23 Replies

Today was different

Today I had lunch with Heady . V was at the hospice today and S is in respite and Heady was visiting her daughter in South Devon . Since the motorway...

Today I had lunch with Heady . V was at the hospice today and S is in respit...

Georgepa

•8 years ago

26 Replies

My view from the Cafe balcony

This is the view I work with from the balcony at the Cafe at Hunmanby Gap, how I love it there I have today made sure it stops in the family by giving my...

This is the view I work with from the balcony at the Cafe at Hunmanby Gap, how I...

Chrissmitch

•8 years ago

15 Replies

How lucky I am

We have a small Cafe on the north east coast near Filey and although my partner is struggling with his speach, walking and eye sight due to psp I really wanted...

We have a small Cafe on the north east coast near Filey and although my partner ...

Chrissmitch

•8 years ago

21 Replies

Ruth Dawes

The above is my wife, my name is Brian, Ruth`s husband. She has just been diagnosed with PSP The effect is that she has lost of her voice, which has gradually...

The above is my wife, my name is Brian, Ruth`s husband. She has just been diagno...

Hidden

•8 years ago

24 Replies

Bladder distention?

My husband was hospitalized for a distended bladder. They released him with a catheter. Do not know if it is going to be permanent or not. Have to see his...

My husband was hospitalized for a distended bladder. They released him with a ca...

goldcap

•8 years ago

15 Replies

Interesting!

No need for pills or wine.....just eat bananas. X

NannaB

•8 years ago

23 Replies

Watering eyes

Hello, Mum has suffered watery sores eyes for a while not every day but on a bad day . In the last few days they are watering constantly. She does have eye...

Hello, Mum has suffered watery sores eyes for a while not every day but on a bad...

CM2015

•8 years ago

12 Replies

PIP Visi

I wrote a message a couple of weeks ago about a system that seems so disjointed it's almost a farce. I applied for a pip a month or so ago transfering from...

I wrote a message a couple of weeks ago about a system that seems so disjointed ...

allany

•8 years ago

3 Replies

George

I have not been on here much lately, George has not been very well, he kept saying he was going to die, I thought it as well, he has been so poorly. When he...

I have not been on here much lately, George has not been very well, he kept sayi...

Yvonneandgeorge

•8 years ago

45 Replies

My olde hobby horse!!!

I know I have said this before. One day I might actually learn from it!!! Today S went back into respite for TWO WHOLE WEEKS!!!! We are having work done. I...

I know I have said this before. One day I might actually learn from it!!! Today...

Heady

•8 years ago

29 Replies

Graham is at peace

Dear friends, I have not posted since November. It has been a very traumatic and emotional time. Every thing was going well, until December 3 when he fell in...

Dear friends, I have not posted since November. It has been a very traumatic an...

ellie7676

•8 years ago

21 Replies

A week of WILD DREAMS!

This was one heck of a week! So many changes for my guy. He has had the most unusual dreams. Dreams that are so real to him and when he explains them to me,...

This was one heck of a week! So many changes for my guy. He has had the most unu...

psplife

•8 years ago

39 Replies

Last stage?

Hi. Mums had PSP for about 6 years or maybe more. We all moved in together so I could help dad care for her last year. She was, as expected gradually...

Hi. Mums had PSP for about 6 years or maybe more. We all moved in together so I ...

lindsey48

•8 years ago

10 Replies

Toe nails

It's the first time I've been asked but he asked me if I'd cut his toe nails, toe nails cleaning teeth, ooooh don't know how I'm going to do this, even the...

It's the first time I've been asked but he asked me if I'd cut his toe nails, to...

Debbieann

•8 years ago

38 Replies

I just need some respite from the noise.!!!!

Bruce has a DeVilbiss suction unit. I looked on line have had read where others are complaining of the same problem! It's too loud!!! The company has...

Bruce has a DeVilbiss suction unit. I looked on line have had read where others...

abirke

•8 years ago

5 Replies

Last stage

Just been told today mum is in her final stage damn you PSP!!!!

steph75

•8 years ago

15 Replies

Gnashing of teeth

Dear All, My mom is a PSP patient over 6 year. Recently she has faced a gnashing of teeth problem. Do you have any recommendation how to solve this problem?...

Dear All, My mom is a PSP patient over 6 year. Recently she has faced a gnashin...

Esra

•8 years ago

3 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for April 2016

Still making memories

A challenging week ahead

Our battle with PSP

new diagnosis

I hate this illness

Today was different

My view from the Cafe balcony

How lucky I am

Ruth Dawes

Bladder distention?

Interesting!

Watering eyes

PIP Visi

George

My olde hobby horse!!!

Graham is at peace

A week of WILD DREAMS!

Last stage?

Toe nails

I just need some respite from the noise.!!!!

Last stage

Gnashing of teeth

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive