Posts - PSP Association | HealthUnlocked

PSP Association

9,372 members • 11,414 posts

All posts for April 2016

Cannot open his left hand

Hello All, My dad cannot open his left hand anymore and when we try to open it for him he screams from pain.. doctor suggested to use hand splints to separate...

Hello All, My dad cannot open his left hand anymore and when we try to open it ...

•8 years ago

Gait

When I get up I have a terrible gait problem but can walk almost perfectly within 2 hours. Any thoughts?

When I get up I have a terrible gait problem but can walk almost perfectly withi...

•8 years ago

Big Day for My Guy: Stem Cell Injections Today

Quick background information: My husband is 68 and was diagnosed with PSP November 2015, but PD diagnoses since Spring 2012. He has alot of right leg pain...

Quick background information: My husband is 68 and was diagnosed with PSP Novemb...

•8 years ago

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1009Luck

It is with a heavy heart I wish to inform you that my dear husband passed away peacefully on the 9th April 2016 He endured all the pain of not being able to...

It is with a heavy heart I wish to inform you that my dear husband passed away p...

•8 years ago

Deterioration

Hi, my mum has deteriorated very quickly over the last few weeks, she had a uti that didn't respond to the first lot of antibiotics but the second lot have...

Hi, my mum has deteriorated very quickly over the last few weeks, she had a uti ...

Julieanne25arobinson

•8 years ago

Disability Living Allowance

I was diagnosed with PSP after I was 65 and so recieved the Higher Rate Attendance allowance instead of the Disability Living Allowance. Thinking tha I would...

I was diagnosed with PSP after I was 65 and so recieved the Higher Rate Attendan...

•8 years ago

an online party?

owzabout another one/ i am away sat.23rd to 30th A{PRIL

owzabout another one/ i am away sat.23rd to 30th A{PRIL

•8 years ago

George

Hi all we went to the hospital yesterday, not good news George has got a lot worse, doctor spoke about having a peg fitted in the near future, his coughing and...

Hi all we went to the hospital yesterday, not good news George has got a lot wor...

Yvonneandgeorge

•8 years ago

communicating

Just thought this might help someone if they are struggling to communicate, I bought my wife a Boogie Board from a web site :-www.imrovelectronics.com It is...

Just thought this might help someone if they are struggling to communicate, I bo...

•8 years ago

Advice again please

Are UTI's a common thing with PSP, I've seen a lot of post about them Many thanks Debbie

Are UTI's a common thing with PSP, I've seen a lot of post about them Many than...

•8 years ago

Deteriorating

Mum seems to be deteriorating she is pooling saliva in her throat and sound horrendous sometimes with the gurgling she does manage to swallow it with...

Mum seems to be deteriorating she is pooling saliva in her throat and sound hor...

•8 years ago

Anyone had success with Stem Cell Therapy and has anyone used this clinic in California America called Stemgenex for degenerative illness

Hi Is there anyone out there who can help me? My mother has been living with Cortical Basal Degeneration for approxiametely 5 years. It is a degenerative...

Hi Is there anyone out there who can help me? My mother has been living with Cor...

•8 years ago

A few tips

Hi everyone, I don't post often but love reading everyone's input. We're now in our 5th year since diagnosis, and I thought I'd share a few helpful tips I've...

Hi everyone, I don't post often but love reading everyone's input. We're now in...

•8 years ago

Travel!

We booked a Mediterranean cruise two years ago, pre the PSP diagnosis. Ever since, and right up to the moment of departure I was ready to cancel it many many...

We booked a Mediterranean cruise two years ago, pre the PSP diagnosis. Ever sinc...

•8 years ago

Concerned

Hi New to this site, have only written one post explaining that my wife has just been told that she has PSP. The one symptom she suffers is that she has lost...

Hi New to this site, have only written one post explaining that my wife has just...

•8 years ago

Fighting snoring, swallowing etc....

My wife diagnosed with PSP for several years has all sort of problems associated with a loss of muscular control for respiration, elocution, swallowing...

My wife diagnosed with PSP for several years has all sort of problems associated...

•8 years ago

Back from Gainesville, FL

Good Evening! My sister just got back from Shands Movement Disorders Clinic in Gainesville, FL. Even though we had been told that there was no cure, I still...

Good Evening! My sister just got back from Shands Movement Disorders Clinic in G...

•8 years ago

Add on to my previous post.

When Kathryn Leigh Scott's husband was diagnosed with progressive supranuclear palsy (PSP), a neurological disease for which there is (so far) no cure, it was...

When Kathryn Leigh Scott's husband was diagnosed with progressive supranuclear p...

•8 years ago

A book written by a woman who cared for her husband with PSP.

Hi everyone! I just received notice of a book released on Amazon by the lovely actress Kathyrn Leigh Scott. LAST DANCE AT THE SAVOY : Life Love and Caring For...

Hi everyone! I just received notice of a book released on Amazon by the lovely a...

•8 years ago

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Respite

I had heard you guys using this word,respite, on here, but I thought it was a UK thing. I did not look it up. Long story short; I was invited to go to Puerto...

I had heard you guys using this word,respite, on here, but I thought it was a UK...

•8 years ago

Swallowing tip

Tip to use a carbonated beverage to help swallowing of liquids seems to help my husband. He can swallow water without coughing. Yay!...

Tip to use a carbonated beverage to help swallowing of liquids seems to help my...

•8 years ago

Trip to Cornell, Ithaca, New YOr

Dear Easterncedar, I gat very confused, but I THINK it was you who wrote about my trip to see my grand daughter at Cornell in Ithaca, New York. It was so...

Dear Easterncedar, I gat very confused, but I THINK it was you who wrote about m...

•8 years ago

Another book on PSP

Kathryn Leigh Scott has written a new book that may be of interest. Last Dance at the Savoy: Life, Love and Caring for Someone with Progressive Supranuclear...

Kathryn Leigh Scott has written a new book that may be of interest. Last Danc...

•8 years ago

ROTTEN WEAK, LOUSY NEWS AND GEE IT IS ONLY TUESDAY

Took D to the cardio was told his pacer is working 100% of the time. Guess that is what keeping him with me and I can't bear the thought of being without him....

Took D to the cardio was told his pacer is working 100% of the time. Guess that ...

•8 years ago

Thought this may make you smile. It did me.

Our chef son phoned this evening while his evening meal was cooking. Our 6 year old grandson wanted to speak to me so our son passed him the phone. This was...

Our chef son phoned this evening while his evening meal was cooking. Our 6 year...

•8 years ago

lost

Hi everyone, i'm new to this site. My dad has had psp for 6 years, he is now very aggressive with my mother his main caregiver. I'm trying to explain...

Hi everyone, i'm new to this site. My dad has had psp for 6 years, he is now ver...

•8 years ago

Is this alien hand?

Hi all, My dad has been grabbing hold of his caregivers on the arm or around the neck during transfers with a grip like a vise. He's bruised the caregivers and...

Hi all, My dad has been grabbing hold of his caregivers on the arm or around the...

•8 years ago

At peace

Hi. Mum passed away yesterday morning after a long struggle with PSP. Thank you all for your support x

Hi. Mum passed away yesterday morning after a long struggle with PSP. Thank you ...

•8 years ago

For Tim!!!

Hi Tim,. Sending you lots of love and a hug team hug. We are all thinking of you and sending lots of strength down the ether. Please be gentle with yourself,...

Hi Tim,. Sending you lots of love and a hug team hug. We are all thinking of yo...

•8 years ago

New book released

"Where the Light Gets In" by Kimberly Williams Paisley On Amazon

"Where the Light Gets In" by Kimberly Williams Paisley On Amazon

•8 years ago

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