Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2012

Does the PSPA have any charity shops?

Wouldn't that be a good way to raise both awareness and funds? Just a thought! ;-)

Wouldn't that be a good way to raise both awareness and funds? Just a thought! ;...

•12 years ago

I am from B.C.and I would love more information.

•12 years ago

Itchy hands and feet, wter blisters turning to dry scaly skin any ideas?

•12 years ago

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Physiotherapy update

My father had his 14th physiotherapy today.We have seen improvement from these therapies.Of course, i am not talking for a major difference,but physiotherapy...

My father had his 14th physiotherapy today.We have seen improvement from these t...

•12 years ago

CANADIANS

This is for any and all Canadians .. I am working very hard to get us our own psp site. I can hardly wait!! I think we dropped the ball and alot of us...

This is for any and all Canadians .. I am working very hard to get us our own...

•12 years ago

Northamptonshire Support Group

This is to remind you that the next Support Group will take place on Saturday, 30th June 2012 from 11.30am - 1.30pm at The Kairos Centre, Wilks Walk, Grange...

This is to remind you that the next Support Group will take place on Saturday, 3...

Partner•12 years ago

Wimbledon Support Group

This is to remind you that the Wimbledon Support Group is meeting on Saturday, 30th June, from 2.45pm to 4.30pm at Drake House, 44 St George’s Road, Wimbledon,...

This is to remind you that the Wimbledon Support Group is meeting on Saturday, 3...

Partner•12 years ago

Brentwood Support Group

This is to remind you that the next Support Group is on Saturday, 30th June from 2.30 pm at The Marillac, Eagle Way, Warley, Brentwood, Essex, CM13 3BL...

This is to remind you that the next Support Group is on Saturday, 30th June from...

Partner•12 years ago

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Anyone in the Orlando area with family member or self that has PSP?

I'm trying to locate people in the Orlando, Florida area who are dealing with PSP. If that's you please respond. Jim P

I'm trying to locate people in the Orlando, Florida area who are dealing with PS...

•12 years ago

You Can Get Help With Eyesite Problems

My Sister-in -Law Audrey was diagnosed with PSP in December 2011 But we are sure that she had been miss-diagnosed for at least 6 years when she was being...

My Sister-in -Law Audrey was diagnosed with PSP in December 2011 But we are sure...

•12 years ago

Watch me carry the Olympic Torch here!!

Click on the link below to watch http://www.youtube.com/watch?v=RMf0-QvF3BM

Click on the link below to watch http://www.youtube.com/watch?v=RMf0-QvF3BM

•12 years ago

Fatigue or depression?

My wife has PSP and seems to be tired all the time (naps a lot). Our GP said if it is depression she would know if it was. Wife doesn't feel depressed and I...

My wife has PSP and seems to be tired all the time (naps a lot). Our GP said if...

•12 years ago

Will davunetide just stopo brain detioriation or restore it over time?

Does anyone know if the new drug, when released, davunetide will help stop PSP or will allow the brain to regenerate lost capabilities over time?

Does anyone know if the new drug, when released, davunetide will help stop PSP o...

•12 years ago

Urinary problems

Since my mother has been ill with pneumonia, she seems to have lost bladder control at night. She still asks to go to the toilet during the day but the last 4...

Since my mother has been ill with pneumonia, she seems to have lost bladder cont...

•12 years ago

Carrying the Olympic Torch for PSP.

Wow. What more can I say? Such an amazing day!! I woke up at 5.30am to go to BBC Radio Sheffield to talk about PSP. You can listen on the following link at...

Wow. What more can I say? Such an amazing day!! I woke up at 5.30am to go to...

•12 years ago

no quality of life.....?

you all seem so strong, my step father (peter) has had psp for 8yrs now, i find it hard to remember how he was, now he is always sat in the same chair watching...

you all seem so strong, my step father (peter) has had psp for 8yrs now, i find ...

•12 years ago

Has anybody any experience of using a nasogastric feeding tube? My husband sadly is having great difficulty swallowing ...

and the suggestion is that he has one of these - or allow nature to take its course. He cant have a PEG fitted so this his only option. Any comments - good...

and the suggestion is that he has one of these - or allow nature to take its cou...

•12 years ago

"a million to beat PSP"

Hi all As part of the PSP Associations fundraising campaign to raise "a million to beat PSP" I have decided to do a bit of fundraising and have set myself a...

Hi all As part of the PSP Associations fundraising campaign to raise "a million...

•12 years ago

Brentwood Support Group

At our next meeing on 30 June we have a consultant neuroloigist speaking about research and treatment for PSP. Dr Malasipina works at Barts, The London and...

At our next meeing on 30 June we have a consultant neuroloigist speaking about r...

•12 years ago

what is PSP matters please?

•12 years ago

Is there a medication for anxiety without side effect of making me vomit or be dizzy? TIA

•12 years ago

Fathers Day

This Father's Day I was struck by the realization that there is a very good chance that my youngst two children will have no first hand memory of their...

This Father's Day I was struck by the realization that there is a very good chan...

nelvana_of_the_north

•12 years ago

Aspiration pneumonia again

My mum has been in hospital over a week now with urinary retention while they decide whether she needs a catheter or not. We found out today that she has...

My mum has been in hospital over a week now with urinary retention while they de...

•12 years ago

Dublin support group

Hi all, I noticed in the last edition of PSP matters there is no listing for the next Dublin support group. Does anyone have any info on this? Thanks!

Hi all, I noticed in the last edition of PSP matters there is no listing for the...

•12 years ago

Does moaning mean pain?

Dave is having happy days inspite of how badly he is doing physically. He can not speak so we ask yes and no questions. My daughter and I are with him all day...

Dave is having happy days inspite of how badly he is doing physically. He can no...

•12 years ago

Is anyone in the devanutide trial having any material benefits ?

•12 years ago

why prove incontinence for pads?

why do we need to keep a diary in order to get incontinence pads when PSP automatically means incontinence will ensue?

why do we need to keep a diary in order to get incontinence pads when PSP autom...

•12 years ago

Prism spectacles

Hi everyone For anyone who is having real problems with their downward gaze, (like my Tony) I can highly recommend the prism glasses which were mentioned in...

Hi everyone For anyone who is having real problems with their downward gaze, ...

•12 years ago

Are there any naturopathic remedies that bring about positive results? Our family member has 70% chance it's incurable PSP.

•12 years ago

Is this site the right one for me?

I was diagnosed PSP Dec 2012 but I am not sure this is the right place for me/ I wanted somewhere that PSP people apart from family could exchange messages....

I was diagnosed PSP Dec 2012 but I am not sure this is the right place for me/ I...

•12 years ago

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