Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,482 members • 38,445 posts

All posts for May 2019

Methotrexate pros and cons needed

my rheumy wants me to go on 10mg meth ea. week (after I had turned it down last fall) and he is pressing me now...I was diagnosed in july '18 with pmr, and...

my rheumy wants me to go on 10mg meth ea. week (after I had turned it down last ...

izzyart

•5 years ago

24 Replies

GPs' strange attitude towards prescribing...

I went to my local pharmacy this morning for my repeat prescription for 1 mg pred tablets and methotrexate. It should have been there, but wasn't. The...

I went to my local pharmacy this morning for my repeat prescription for 1 mg pre...

Marijo1951

•5 years ago

33 Replies

Prednisolone and Carpal Tunnel

Been on prednisolone since January and now have carpal tunnel in both wrists. Are the steroids the cause? Anyone else experienced this? thanks

Been on prednisolone since January and now have carpal tunnel in both wrists. Ar...

Hidden

•5 years ago

16 Replies

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Exercise!

I’m totally flabbergasted at the exercise regimes some people are talking about. These don’t relate at all to the experience of PMR that most of us have. Do...

I’m totally flabbergasted at the exercise regimes some people are talking about....

Roltuba

•5 years ago

45 Replies

Vitamin D and Vitamin K2

The conclusion of this article should be of interest to those trying to avoid taking bone medications for bone thinning:...

The conclusion of this article should be of interest to those trying to avoid ta...

HeronNS

•5 years ago

33 Replies

A 50% reduction in pred.

Around two weeks ago I posted that my rheumatologist cut my prednisone from 5 mgs to 2.5 mgs. I had several comments from this forum about going down too...

Around two weeks ago I posted that my rheumatologist cut my prednisone from 5 mg...

PJarret

•5 years ago

8 Replies

Exercising with PMR

As a lifelong triathlete (no world beater but somewhat competitive), this recent diagnosis of PMR has certainly challenged my traditional method of recovery...

As a lifelong triathlete (no world beater but somewhat competitive), this recent...

Hidden

•5 years ago

14 Replies

K2 question .. Take this, not this.

I was told by my pharmacist that I should not take K2 while on blood thinners (low dose aspirin) because K2 is a coagulant. Seems K2 is an important one to...

I was told by my pharmacist that I should not take K2 while on blood thinners (l...

PinkertonCat

•5 years ago

28 Replies

Persuaded GP to restart Prednisolone

So, as I have posted before, I have seen 3 different Rheumatologist. First one diagnosed PMR as result of rapid relief on Pred. On follow up and tapering to 1...

So, as I have posted before, I have seen 3 different Rheumatologist. First one d...

Breconblue

•5 years ago

18 Replies

LDN low dose naltrexone and PMR

Does anyone have any experience of this? A friend with ME has sent me a bit of information/links for this drug so I have had a bit of a read. It is suggested...

Does anyone have any experience of this? A friend with ME has sent me a bit of i...

Lochy

•5 years ago

24 Replies

Raised A1c

Good morning everyone, at least it’s morning here in Northern California. A beautiful sunny spring day. I was diagnosed with PMR/GCA in January...

Good morning everyone, at least it’s morning here in Northern California. ...

Mstiles

•5 years ago

9 Replies

Serepeptase

Can anyone tell me if they have been on Serepeptase tablets, and how long, has it helped you. I have Ra and Osto, and Fibromyalgia.

Can anyone tell me if they have been on Serepeptase tablets, and how long, has i...

jessie69

•5 years ago

1 Reply

T2305

Who is the administrator for this site, as I have done my profile but it won’t allow me to put items in, is it me ? Or are things not working ?

Who is the administrator for this site, as I have done my profile but it won’t a...

T2305

•5 years ago

2 Replies

Harlow Group

Come along to our next meeting on Monday 13th May. We meet at the Redeemer Lutheran Church, Bush Fair, 22 Tawney's Road, Harlow, CM18 6PN at 1230 until 1400....

Come along to our next meeting on Monday 13th May. We meet at the Redeemer Luthe...

Roy46

•5 years ago

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PMR update on taking 10mg

My PMR journey update. I was diagnosed in December went from 30 mg to now 10 mg. I just finished the broad street run which is a 10 mile race. So far I have...

My PMR journey update. I was diagnosed in December went from 30 mg to now 10 mg...

jensen0518

•5 years ago

2 Replies

PMRGCAuk Newswire magazine - online now

Dear all, In case you haven't come across PMRGCAuk's magazine, Newswire, the latest copy is now on our website. As well as a research round up, you can read...

Dear all, In case you haven't come across PMRGCAuk's magazine, Newswire, the lat...

Hidden

•5 years ago

Eyes after cataract surgery

In 2014 I had both my eyes operated on for cataracts. Yesterday when I visited my Optometrist he announced that one of my lenses is developing what he...

In 2014 I had both my eyes operated on for cataracts. Yesterday when I visited m...

prunus

•5 years ago

12 Replies

Cardiff Meeting with Prof Dasgupta

The next meeting is on Friday 24th May at 11am in Central Library and Prof Dasgupta is going to speak to us. Please contact me for further information.

The next meeting is on Friday 24th May at 11am in Central Library and Prof Dasgu...

slewis

•5 years ago

5 Replies

Is it the reason for fatigue?

Have reduced pred from 40mg down to 20 in 2 weeks as markers were ok. However I am inordinately tired with sore stinging eyes and no energy. I have my temporal...

Have reduced pred from 40mg down to 20 in 2 weeks as markers were ok. However I ...

polymy

•5 years ago

12 Replies

Re splitting dose again......

After posting a few days ago and having read replies and advice I did decide yesterday to split my 15mg dose and took 10mg at 5am and 5mg at 5pm. This seems...

After posting a few days ago and having read replies and advice I did decide yes...

jaycee444

•5 years ago

3 Replies

PMR-GCA Support East Anglia AGM & Meeting

The AGM and meeting will be held on Thursday, 16th May 2019, at 10.30 for 11.00 The speaker will be Dr Max Yates, Clinical Senior Lecturer UEA and Honorary...

The AGM and meeting will be held on Thursday, 16th May 2019, at 10.30 for 11.00 ...

Vanner460

•5 years ago

3 Replies

Bristol Branch

I am being very dense as I can’t seem to get into the Forum beyond the posts. I wrote a while ago about a friend of a friend who had undiagnosed GCA and lost...

I am being very dense as I can’t seem to get into the Forum beyond the posts. I ...

EdithWales

•5 years ago

6 Replies

Synacthen Test UK

Is this standad at 5mg pred or does patient have to ask GP to make request (no rheumatologist involved with OH)?

Is this standad at 5mg pred or does patient have to ask GP to make request (no r...

Nuff1

•5 years ago

19 Replies

Reduce 5 or less

So just took ESR and CRP. CRP normal waiting on ESR Had to go up to 40 because of eye infection. Blood markets went up and I got scared. I have been...

So just took ESR and CRP. CRP normal waiting on ESR Had to go up to 40 because ...

Nap1

•5 years ago

10 Replies

First appointment at the a Endocrinologist

I know I’m writing this post late but I’m hoping that I might get a few replies back before tomorrow afternoon. First time visit to see and endocrinologist...

I know I’m writing this post late but I’m hoping that I might get a few replies ...

Suffolklady

•5 years ago

32 Replies

Seronegative PMR

I have been diagnosed with PMR, but have none of the traditional markers; ESR 2 mm/hr (normal), and CRP 1.3 mg/L (normal). I've had it for 6 months and only...

I have been diagnosed with PMR, but have none of the traditional markers; ESR 2 ...

bmgtc

•5 years ago

32 Replies

compression glove at night for the hands and wrists

I've been having problems with my wrists, hands, and fingers particulary about 0330 till 0600 in the morning. This simple little Mueller compression glove...

I've been having problems with my wrists, hands, and fingers particulary about 0...

Hidden

•5 years ago

5 Replies

Magnesium pills

Anyone else take them? I started two days ago and my calves are not as tight and uncomfortable now.... coincidence?

Anyone else take them? I started two days ago and my calves are not as tight and...

Hidden

•5 years ago

28 Replies

Vitamins and Minerals

I am 4 weeks into my Pred, currently at 15mg and about to drop to 12.5 tomorrow. I refused to take Alendronic Acid mainly because of the terrible potential...

I am 4 weeks into my Pred, currently at 15mg and about to drop to 12.5 tomorrow....

palewolf

•5 years ago

50 Replies

Dropping the mg's when and how much ?

I am wondering if I was dropped too much was on 15mg to begin with and by February everything was looking good so have come down in last threee weeks or so to...

I am wondering if I was dropped too much was on 15mg to begin with and by Februa...

Barbaracole

•5 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

Methotrexate pros and cons needed

GPs' strange attitude towards prescribing...

Prednisolone and Carpal Tunnel

Exercise!

Vitamin D and Vitamin K2

A 50% reduction in pred.

Exercising with PMR

K2 question .. Take this, not this.

Persuaded GP to restart Prednisolone

LDN low dose naltrexone and PMR

Raised A1c

Serepeptase

T2305

Harlow Group

PMR update on taking 10mg

PMRGCAuk Newswire magazine - online now

Eyes after cataract surgery

Cardiff Meeting with Prof Dasgupta

Is it the reason for fatigue?

Re splitting dose again......

PMR-GCA Support East Anglia AGM & Meeting

Bristol Branch

Synacthen Test UK

Reduce 5 or less

First appointment at the a Endocrinologist

Seronegative PMR

compression glove at night for the hands and wrists

Magnesium pills

Vitamins and Minerals

Dropping the mg's when and how much ?

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